Memories and history of Hansen's disease in Brazil told by witnesses (1960-2000).
This report is a preliminary result of a survey on memories and history of Hansen's disease, or 'hanseniasis', prepared by the Fundação Oswaldo Cruz (Fiocruz) and the Universidade Federal do Rio de Janeiro (UFRJ) using statements from those who have been afflicted by the disease or those that have fought against it. It outlines the methodology used by the authors and gives a succinct history of Hansen's disease in Brazil, together wish information on the stage of the survey with extracts from our archives of statements. The founding and the role of Movement for the Reintegration of People Afflicted by Hansen's Disease (Morhan) are explained in the testimony of Thomas Frist, a social scientist who worked in Brazil in the 1970s and 1980s, when the country's old colonies were being restructured, and Cristiano Torres, a former patient who spent time in prevention centers and leproseries in Pará state and who is now active in proposing new policy for the control of Hansen's disease.
Rosa Maciel
Laurinda
L
Casa de Oswaldo Cruz/Fundação Oswaldo Cruz, Rio de Janeiro, Brasil. laurinda@coc.fiocruz.br
Oliveira
Maria Leide Wand-del-Rey
ML
Gallo
Maria Eugênia N
ME
Damasco
Mariana Santos
MS
D001680:Biographies as Topic; D001938:Brazil; D006663:Historiography; D049673:History, 20th Century; D049674:History, 21st Century; D007918:Leprosy / Q000266:history*