title: The Willowbrook futures project: a longitudinal analysis of person-centered planning.
abstract: We conducted a longitudinal comparative evaluation of person-centered planning processes and outcomes for 20 individuals with intellectual disabilities and problem behavior (former residents of Willowbrook) and a matched contrast group, who received traditional interdisciplinary service planning (ISP). At the inception of the study, all participants were living in one of four other developmental centers (institutions) in New York City. Process and outcome data obtained from questionnaires completed by team members approximately every 8 months at four time periods showed that the rate of improvement in both person-centered planning process and outcomes for the intervention group was significantly greater than that of the comparison group. Eighteen of 19 person-centered planning participants moved to community living arrangements, as did 5 of 18 in the contrast group.
authors.affiliation: New York State Institute for Basic Research in Developmental Disabilities, Staten Island, NY 10314, USA. holbursc@infionline.net
authors.forename: Steve
authors.initials: S
authors.lastname: Holburn
authors.forename: John W
authors.initials: JW
authors.lastname: Jacobson
authors.forename: Allen A
authors.initials: AA
authors.lastname: Schwartz
authors.forename: Michael J
authors.initials: MJ
authors.lastname: Flory
authors.forename: Peter M
authors.initials: PM
authors.lastname: Vietze
mesh_terms: D000203:Activities of Daily Living / Q000523:psychology; D000328:Adult; D005260:Female; D005500:Follow-Up Studies; D006801:Humans; D007318:Inservice Training; D008607:Intellectual Disability / Q000175:diagnosis / Q000523:psychology / Q000534:rehabilitation*; D008297:Male; D001523:Mental Disorders / Q000175:diagnosis / Q000523:psychology / Q000534:rehabilitation*; D008875:Middle Aged; D009519:New York City; D010043:Outcome and Process Assessment, Health Care; D010347:Patient Care Planning; D010348:Patient Care Team; D011788:Quality of Life / Q000523:psychology; D012112:Residential Facilities