Secure communication and management of clinical and genomic data: the use of pseudonymisation as privacy enhancing technique.
The growing need of managing both clinical and genetic data raises important legal and ethical challenges. This article introduces some of the privacy protection problems related to genomic medicine and highlights the relevance of Trusted Third Parties and of Privacy Enhancing Techniques (PETs) in the context of e.g. research. Practical approaches based on two pseudonymisation models, for both batch and interactive data collection and exchange, are presented.
Claerhout
Brecht
B
Department of Medical Informatics and Statistics, University Hospital Gent, Belgium.
De Moor
Georges J
GJ
De Meyer
Filip
F
D022126:Access to Information; D001530:Belgium; D035843:Biomedical Research; D016494:Computer Security; D003219:Confidentiality; D003625:Data Collection; D030541:Databases, Genetic / Q000592:standards*; D006801:Humans; D020407:Internet / Q000592:standards*