title: Alienated advocacy: perspectives of Latina mothers of young adults with developmental disabilities on service systems.
abstract: Although collaborative partnership between parents and professionals is a cornerstone of the special education and service systems, this relationship exists more as an ideal, especially when low-income, culturally diverse families are involved. Through three focus groups, we examined the beliefs of 16 low-income Latina mothers of young adults with developmental disabilities about their relationships with the educational and service delivery systems. Primary concerns identified were (a) poor communication, (b) low effort in providing services, (c) negative attitudes of professionals toward the client-children, (d) negative treatment of parents by professionals, and (e) the mother's role as central to the well-being of her child. Mothers tended to adopt a posture of alienated advocacy in relation to their child's educational and service needs.
authors.affiliation: Department of Family Medicine, University of California Irvine, College of Medicine, 101 The City Dr., South, Rte 81, Bldg. 200, Ste 512, Orange, CA 92868-3298, USA. jfshapir@uci.edu
authors.forename: Johanna
authors.initials: J
authors.lastname: Shapiro
authors.forename: Lilia D
authors.initials: LD
authors.lastname: Monzó
authors.forename: Robert
authors.initials: R
authors.lastname: Rueda
authors.forename: Juan A
authors.initials: JA
authors.lastname: Gomez
authors.forename: Jan
authors.initials: J
authors.lastname: Blacher
mesh_terms: D000328:Adult; D001294:Attitude to Health / Q000208:ethnology*; D002648:Child; D005260:Female; D006630:Hispanic or Latino; D006801:Humans; D008607:Intellectual Disability; D009035:Mothers; D010344:Patient Advocacy; D011368:Professional-Family Relations