title: A randomised controlled trial of a psychoeducational intervention for women at increased risk of breast cancer.
abstract: This study aimed to compare the impact of two versions of a psychoeducational written intervention on cancer worry and objective knowledge of breast cancer risk-related topics in women who had been living with an increased risk of familial breast cancer for several years. Participants were randomised to three conditions: scientific and psychosocial information pack (Group 1), scientific information pack only (Group 2) or standard care control (Group 3). They completed postal questionnaires at baseline (n=163) and 4 weeks (n=151). As predicted, there was a significant decrease in cancer worry for Group 1, but not Group 2. Objective knowledge significantly improved for both Group 1 and Group 2 as expected, but not Group 3. However, there was an unpredicted decline in cancer worry for Group 3. This study supports the value of a scientific and psychosocial information pack in providing up-to-date information related to familial risk of breast cancer for long-term attendees of a familial breast cancer clinic. Further research is warranted to determine how the information pack could be incorporated into the existing clinical service, thus providing these women with the type of ongoing psychosocial support that many familial breast cancer clinics are currently lacking.
authors.affiliation: Cancer Research UK, Edinburgh Oncology Unit, Western General Hospital, Crewe Road South, Edinburgh EH4 2XR, UK. Sally.Appleton@ed.ac.uk
authors.forename: S
authors.initials: S
authors.lastname: Appleton
authors.forename: M
authors.initials: M
authors.lastname: Watson
authors.forename: R
authors.initials: R
authors.lastname: Rush
authors.forename: S
authors.initials: S
authors.lastname: Garcia-Minaur
authors.forename: M
authors.initials: M
authors.lastname: Porteous
authors.forename: J
authors.initials: J
authors.lastname: Campbell
authors.forename: E
authors.initials: E
authors.lastname: Anderson
authors.forename: A
authors.initials: A
authors.lastname: Cull
mesh_terms: D000328:Adult; D001007:Anxiety; D001943:Breast Neoplasms / Q000235:genetics* / Q000523:psychology*; D005239:Fear; D005260:Female; D020022:Genetic Predisposition to Disease; D006801:Humans; D008875:Middle Aged; D010353:Patient Education as Topic; D010375:Pedigree; D012307:Risk Factors; D012944:Social Support