title: The tissue donation experience: a comparison of donor and nondonor families.
abstract: BACKGROUND
  Although there has been an increase in studies examining the experiences of organ donor and nondonor families, scant empirical research specifically concerning tissue donation has been conducted.
  
  
  OBJECTIVE
  To assess the perceptions and attitudes of both donor and nondonor next of kin to whom a tissue donation request had been directed.
  
  
  METHODS
  Cross-sectional, 2-group analysis of a telephone survey.
  
  
  METHODS
  Participants were 507 adults who consented to tissue donation and 507 adults who refused consent to tissue donation following the death of a family member. All donation requests were made by telephone by trained staff.
  
  
  METHODS
  The primary outcome measures were demographic and contextual information surrounding the donation request, perceptions and attitudes toward tissue donation, and reasons for donation or refusal to donate.
  
  
  RESULTS
  Findings suggest that most tissue donor family members were satisfied with the request and donation experience. Also, there were important differences in attitudes and perceptions between donor and nondonor family members, with nondonors reporting more negative attitudes and beliefs about tissue donation.
authors.affiliation: Center for Behavioral Health Research in Organ Transplantation and Donation, Gainesville, Fla, USA.
authors.forename: James R
authors.initials: JR
authors.lastname: Rodrigue
authors.forename: Michael P
authors.initials: MP
authors.lastname: Scott
authors.forename: Anneliese R
authors.initials: AR
authors.lastname: Oppenheim
mesh_terms: D000328:Adult; D000368:Aged; D003430:Cross-Sectional Studies; D005190:Family; D005260:Female; D007722:Health Knowledge, Attitudes, Practice; D006801:Humans; D008297:Male; D008875:Middle Aged; D009927:Tissue and Organ Procurement