[Bioethical principles concerning human genetic data].
UNESCO'S Universal declaration on the human genome and human rights (1997) has been accepted by the international scientific community. To apply these laws, it is necessary to get more specific rules about data regulation, human genetic samples and its derived information in biomedic research. Indeed, genetic material recollection, processing, use and storing, has potential risks over human rights' protection and exercise. The author, member of UNESCO'S intergovernmental Bioethics Committee which approved the final draft in June 2003, has taken part in the writing of the final text of an international declaration about human genetic data, whose abbreviate text is described and commented in this communication.
Cruz-Coke
Ricardo
R
Departamento de Bioética y Humanidades Médicas, Servicio de Genética, Hospital Clínico, Facultad de Medicina, Universidad de Chile, Santiago de Chile, Chile.
D018070:Biological Specimen Banks / Q000941:ethics / Q000331:legislation & jurisprudence; D003219:Confidentiality / Q000941:ethics* / Q000331:legislation & jurisprudence; D016172:DNA Fingerprinting / Q000941:ethics / Q000331:legislation & jurisprudence; D003625:Data Collection / Q000941:ethics* / Q000331:legislation & jurisprudence; D030541:Databases, Genetic / Q000941:ethics / Q000331:legislation & jurisprudence; D005554:Forensic Medicine / Q000941:ethics / Q000331:legislation & jurisprudence; D005821:Genetic Techniques / Q000941:ethics; D005820:Genetic Testing / Q000941:ethics / Q000331:legislation & jurisprudence; D005826:Genetics, Medical / Q000941:ethics* / Q000331:legislation & jurisprudence; D006806:Human Rights / Q000331:legislation & jurisprudence*; D006801:Humans; D016247:Information Storage and Retrieval / Q000941:ethics / Q000331:legislation & jurisprudence; D007258:Informed Consent / Q000941:ethics* / Q000331:legislation & jurisprudence; D007391:International Cooperation; D008499:Medical Records / Q000331:legislation & jurisprudence; D028701:Patient Rights / Q000941:ethics / Q000331:legislation & jurisprudence; D028723:Personhood; D012106:Research / Q000331:legislation & jurisprudence; D014480:United Nations