Children with developmental delays twenty years later: where are they? How are they?
Data from parents and young adults were collected as part of a 20-year follow-up of children with developmental delays who had been identified at age 3 years. The young adults and their parents provided information through questionnaires and personal interviews. Findings documented a broad range of outcomes, with some young adults leading independent and productive lives, whereas the majority were un- or underemployed, living with and financially dependent upon their families, and socially isolated. Three types of parent-young adult relationships were identified. For both parents and young adults, IQ was significantly and negatively related to perceived life satisfaction.
Keogh
Barbara K
BK
University of California, Los Angeles, Center for Culture and Health, Los Angeles, CA 90024, USA.
Bernheimer
Lucinda P
LP
Guthrie
Donald
D
D000328:Adult; D002675:Child, Preschool; D002658:Developmental Disabilities / Q000175:diagnosis* / Q000453:epidemiology; D004522:Educational Status; D004651:Employment / Q000706:statistics & numerical data; D005260:Female; D005500:Follow-Up Studies; D006801:Humans; D008297:Male; D010287:Parent-Child Relations; D010549:Personal Satisfaction; D011788:Quality of Life; D012720:Severity of Illness Index; D017678:Sex Distribution; D011795:Surveys and Questionnaires