title: E-oncology and health portals: instructions and standards for the evaluation, production organisation and use.
abstract: In 2002 the Italian Ministry of Health promoted the institution of a network and a web portal, E-oncology (2), for the seven NHS research institutions specialising in oncology (Istituti di Ricovero e Cura a Carattere Scientifico-IRCCS). One of the aims was to gather and provide information on tumoral pathologies to operators and the public. For an optimum organisation of a health web site it is necessary to comply with the standards internationally used. The World Wide Web Consortium (W3C) has developed guidelines for accessibility and usability of the sites, implemented in Italy through governmental issues. Many international organisations adopt rules and codes of conduct to validate biomedical information and have organised quality portals such as NLM, OMNI, MEDCIRCLE, HON etc. Some terminological standards, such as the MESH thesaurus and UMLS, have been produced by the libraries for a correct management and an effective information retrieval, and are currently used by the most important biomedical web sites. The Dublin Core, metadata standard for the integration of information deriving from heterogeneous archives, has also been developed by the libraries. The easy access to information dims the complex architecture necessary for the construction of a web site. The contribution of different professionals is necessary to guarantee the production of quality medical/health web sites, among them librarians have always been involved with the management of knowledge and their skills are extremely valuable. Furthermore, the libraries' network is essential in order to guarantee universal access to health information, mostly still against payment, and to contribute to overcoming the 'digital divide' and 'second-level digital divide'.
authors.affiliation: Scientific Library, Regina Elena National Cancer Institute, Rome, Italy. g.cognetti@ifo.it
authors.forename: G
authors.initials: G
authors.lastname: Cognetti
authors.forename: L
authors.initials: L
authors.lastname: Cecere
mesh_terms: D005069:Evaluation Studies as Topic; D035082:Federal Government; D017408:Guidelines as Topic; D006801:Humans; D020407:Internet / Q000458:organization & administration* / Q000592:standards*; D007558:Italy; D008490:Medical Informatics / Q000193:education* / Q000592:standards*; D008495:Medical Oncology / Q000193:education / Q000379:methods / Q000592:standards; D009316:National Institutes of Health (U.S.); D009317:National Library of Medicine (U.S.); D011786:Quality Control; D014481:United States