title: Children with developmental delays twenty years later: where are they? How are they?
abstract: Data from parents and young adults were collected as part of a 20-year follow-up of children with developmental delays who had been identified at age 3 years. The young adults and their parents provided information through questionnaires and personal interviews. Findings documented a broad range of outcomes, with some young adults leading independent and productive lives, whereas the majority were un- or underemployed, living with and financially dependent upon their families, and socially isolated. Three types of parent-young adult relationships were identified. For both parents and young adults, IQ was significantly and negatively related to perceived life satisfaction.
authors.affiliation: University of California, Los Angeles, Center for Culture and Health, Los Angeles, CA 90024, USA.
authors.forename: Barbara K
authors.initials: BK
authors.lastname: Keogh
authors.forename: Lucinda P
authors.initials: LP
authors.lastname: Bernheimer
authors.forename: Donald
authors.initials: D
authors.lastname: Guthrie
mesh_terms: D000328:Adult; D002675:Child, Preschool; D002658:Developmental Disabilities / Q000175:diagnosis* / Q000453:epidemiology; D004522:Educational Status; D004651:Employment / Q000706:statistics & numerical data; D005260:Female; D005500:Follow-Up Studies; D006801:Humans; D008297:Male; D010287:Parent-Child Relations; D010549:Personal Satisfaction; D011788:Quality of Life; D012720:Severity of Illness Index; D017678:Sex Distribution; D011795:Surveys and Questionnaires