title: Registry research and medical privacy.
authors.forename: Julie R
authors.initials: JR
authors.lastname: Ingelfinger
authors.forename: Jeffrey M
authors.initials: JM
authors.lastname: Drazen
mesh_terms: D035843:Biomedical Research / Q000331:legislation & jurisprudence; D002170:Canada; D003219:Confidentiality / Q000331:legislation & jurisprudence*; D028744:Ethics Committees, Research; D020408:Health Insurance Portability and Accountability Act; D006801:Humans; D007258:Informed Consent / Q000331:legislation & jurisprudence*; D012042:Registries; D020521:Stroke; D014481:United States