Are we making progress? Not in haematology!
It will be shown, through the presentation of recent research findings, that haematology is a neglected area in terms of sensitive care of the dying. The Australian evidence indicates that scant progress has been made in relation to even the most basic palliative care practices such as sensitive, honest information giving or appropriate referral to the palliative system. Rather, the data show that during terminal trajectory, patients from these diagnostic groups and their families remain trapped in processes within the high-tech, curative system that are not responsive to the needs of the dying.
McGrath
Pam
P
School of History, Philosophy, Religion and Classics, University of Queensland, St. Lucia Q 4072, Australia. pam_mcgrath@bigpond.com
D000293:Adolescent; D000328:Adult; D001315:Australia; D017028:Caregivers / Q000523:psychology*; D002675:Child, Preschool; D003717:Denial, Psychological; D005260:Female; D019337:Hematologic Neoplasms / Q000523:psychology* / Q000628:therapy; D017051:Hospice Care / Q000706:statistics & numerical data; D006801:Humans; D007407:Interviews as Topic; D007938:Leukemia / Q000523:psychology / Q000628:therapy; D008228:Lymphoma, Non-Hodgkin / Q000523:psychology / Q000628:therapy; D008297:Male; D008875:Middle Aged; D020380:Needs Assessment / Q000706:statistics & numerical data; D010166:Palliative Care / Q000706:statistics & numerical data; D010817:Physician-Patient Relations; D011379:Prognosis; D036301:Qualitative Research; D012017:Referral and Consultation / Q000706:statistics & numerical data; D013727:Terminal Care / Q000941:ethics* / Q000523:psychology; D019452:Terminally Ill / Q000523:psychology; D014342:Truth Disclosure