title: The Appalachia Cancer Network: cancer control research among a rural, medically underserved population.
abstract: Residents of Appalachia, especially those in rural Appalachia, are generally considered to be medically underserved. In fact, cancer mortality in Appalachia, especially in rural Appalachia, is higher than it is in the remainder of the United States. Developing from the Appalachia Leadership Initiative on Cancer, the Appalachia Cancer Network (ACN) is a network of academic and community organizations that seek to conduct surveillance, intervention, and dissemination research to reduce this excess cancer burden in Appalachia. The purpose of this report is to (1) describe the approach to cancer control research in ACN, a Special Population Network, among the medically underserved of Appalachia, and (2) to put forward observations from this experience to enhance the research of other academic and community networks among underserved populations. ACN has instituted a conceptual model, organizational structure, and other methods to foster this research and to develop junior and community-based investigators. Important issues and questions related to the effectiveness of such research networks have also been articulated.
authors.affiliation: Department of Health Evaluation Sciences, Pennsylvania State University College of Medicine, University Park, Pa., USA. elengerich@psu.edu
authors.forename: Eugene J
authors.initials: EJ
authors.lastname: Lengerich
authors.forename: Stephen W
authors.initials: SW
authors.lastname: Wyatt
authors.forename: Angel
authors.initials: A
authors.lastname: Rubio
authors.forename: Joyce E
authors.initials: JE
authors.lastname: Beaulieu
authors.forename: Cathy A
authors.initials: CA
authors.lastname: Coyne
authors.forename: Linda
authors.initials: L
authors.lastname: Fleisher
authors.forename: Ann J
authors.initials: AJ
authors.lastname: Ward
authors.forename: Pamela K
authors.initials: PK
authors.lastname: Brown
mesh_terms: D001061:Appalachian Region / Q000453:epidemiology; D002986:Clinical Trials as Topic; D015179:Colorectal Neoplasms / Q000453:epidemiology / Q000517:prevention & control; D019058:Community Networks / Q000458:organization & administration*; D005260:Female; D006266:Health Education / Q000458:organization & administration; D006801:Humans; D008297:Male; D008507:Medically Underserved Area; D017146:Models, Organizational; D009369:Neoplasms / Q000453:epidemiology / Q000517:prevention & control*; D018579:Patient Selection; D011159:Population Surveillance / Q000379:methods; D016730:Program Development / Q000379:methods; D012041:Regional Medical Programs / Q000458:organization & administration*; D012106:Research / Q000458:organization & administration; D019035:Rural Health Services / Q000458:organization & administration*; D035862:Vulnerable Populations