title: Parents' experiences of asthma: process from chaos to coping.
abstract: The aim of the present qualitative study was to describe nine parents' everyday experiences of living with a child suffering from asthma. Data were collected by means of in-depth interviews and phenomenological content analysis. Four main themes emerged: feelings of uncertainty, helplessness and guilt; the need for support and help from healthcare professionals; adaptation to everyday life; and the development of coping strategies. In addition, two subthemes; trying out and seeking information, emerged. Trying out was found to be an important strategy for parents in managing the illness. In encounters with healthcare professionals, parents felt that they were not respected and that their competence was questioned. In conclusion, this study emphasizes the importance of a mutual dialogue between healthcare professionals and parents to enable the parents to develop the competence necessary to care for their child.
authors.affiliation: Hedmark University College, Faculty of Health Studies, Elverum University of Oslo, Institute of Nursing Science, Oslo, Norway. Anne.Trollvik@hse.hihm.no
authors.forename: Anne
authors.initials: A
authors.lastname: Trollvik
authors.forename: Elisabeth
authors.initials: E
authors.lastname: Severinsson
mesh_terms: D000203:Activities of Daily Living; D000223:Adaptation, Psychological; D000328:Adult; D001249:Asthma / Q000517:prevention & control*; D001294:Attitude to Health; D002648:Child; D002654:Child Care / Q000379:methods / Q000523:psychology; D002669:Child Welfare; D005239:Fear; D005260:Female; D006167:Guilt; D006266:Health Education; D007722:Health Knowledge, Attitudes, Practice; D006301:Health Services Needs and Demand; D006766:Hospitals, County; D006801:Humans; D008016:Life Change Events; D008297:Male; D009664:Norway; D015404:Nursing Methodology Research; D010290:Parents / Q000193:education / Q000523:psychology*; D011368:Professional-Family Relations; D036301:Qualitative Research; D012944:Social Support; D011795:Surveys and Questionnaires