title: [The Estonian Genome Project in the context of European genome research].
abstract: It is the aim of the Estonian Genome Project to establish a database which compiles phenotype and genotype data of a large part of the Estonian population. The Gene Bank will only be used for scientific and public health research. Researchers hope that it will help identify disease genes and prepare the ground for the personalized medicine of the future. Additionally, the project will improve Estonian's international competitiveness in high technology and have a strong educational effect on the population. The legal framework, the Human Genes Research Act, was passed by the Estonian parliament in December 2000. It had been drafted by a group of experts who took into account all available international guidance documents on genetic research. With the pilot project involving three selected regions successfully finished, the main project has now started.
authors.affiliation: Estonian Genome Project Foundation, University of Tartu and Estonian Biocentre, Tartu, Estonia.
authors.forename: A
authors.initials: A
authors.lastname: Metspalu
authors.forename: F
authors.initials: F
authors.lastname: Köhler
authors.forename: G
authors.initials: G
authors.lastname: Laschinski
authors.forename: D
authors.initials: D
authors.lastname: Ganten
authors.forename: I
authors.initials: I
authors.lastname: Roots
mesh_terms: D030561:Databases, Nucleic Acid / Q000941:ethics / Q000331:legislation & jurisprudence / Q000458:organization & administration*; D004957:Estonia; D005788:Gene Pool; D036281:Genetic Research; D015316:Genetic Therapy; D005838:Genotype; D006291:Health Policy; D016045:Human Genome Project / Q000941:ethics / Q000331:legislation & jurisprudence; D006801:Humans; D010641:Phenotype; D010865:Pilot Projects