title: Chronic sorrow and depression in parents of children with neural tube defects.
abstract: Chronic sorrow has been described in the caregivers of individuals with myelomeningocele, multiple sclerosis, Parkinson's disease, cancer, and premature infants. Most studies have reported small numbers of fathers for comparison with mothers. One unpublished study compared chronic sorrow and depression. The purpose of the current study was to describe parental chronic sorrow following the birth of a child with neural tube defect and to explore the relationship between chronic sorrow and depression. One hundred and thirty-two parents (63 mother/father pairs and 6 single parents) responded to 3 measures of chronic sorrow and 1 measure of depression. Multivariate analysis of variance demonstrated significant differences between mothers and fathers in chronic sorrow. In addition, a relationship between chronic sorrow and depression was demonstrated. Chronic sorrow is a potential barrier to parental understanding of their child's care and diagnosis. Based on these findings, separate assessments of each parent and timely interventions are warranted. Further research should include more than 1 measure of chronic sorrow and delineate the dimensions being measured.
authors.affiliation: Section of Pediatric Neurology, St. Christopher's Hospital for Children, Philadelphia, PA, USA. elizabeth.hobdell@tenethealth.com
authors.forename: Elizabeth
authors.initials: E
authors.lastname: Hobdell
mesh_terms: D000223:Adaptation, Psychological; D000293:Adolescent; D000328:Adult; D000368:Aged; D002648:Child; D002908:Chronic Disease; D003865:Major Depressive Disorder / Q000523:psychology*; D019988:Children with Disabilities; D005260:Female; D006801:Humans; D008297:Male; D008875:Middle Aged; D009436:Neural Tube Defects; D010290:Parents / Q000523:psychology*; D012737:Sex Factors; D011795:Surveys and Questionnaires