title: The user perspective: respected or rejected in mental health care?
abstract: The purpose of this study was to examine the extent to which patient views influence treatment planning by measuring the level of agreement between patients and health workers regarding patient needs as well as the impact of patient wishes on decision making when viewpoints conflict. Data on patient characteristics and needs were collected for a sample of 1080 patients within Norwegian mental health care using patient interviews and health worker ratings. Results of the assessment were then reviewed by multidisciplinary treatment teams responsible for making decisions regarding patient needs for services. On average, patients, health workers, and teams identified 4.3 (SD = 4.2), 9.3 (SD = 5.5), and 10.3 (SD = 5.7), respectively, of 40 possible needs per patient. In cases where patient and health workers disagreed on the presence of a need, the teams tended to concur with the health worker. Interestingly, health care workers and teams were far more inclined than their patients to identify needs related to professional monitoring and follow-up. Results may indicate that contemporary tenets in mental health care regarding user involvement and autonomy are not sufficiently emphasized in practice.
authors.affiliation: Department of Mental Health Services Research, SINTEF Unimed, Trondheim, Norway. han@nova.no
authors.forename: T
authors.initials: T
authors.lastname: Hansen
authors.forename: T
authors.initials: T
authors.lastname: Hatling
authors.forename: E
authors.initials: E
authors.lastname: Lidal
authors.forename: T
authors.initials: T
authors.lastname: Ruud
mesh_terms: D000328:Adult; D000368:Aged; D000369:Aged, 80 and over; D001291:Attitude of Health Personnel; D001294:Attitude to Health; D003657:Decision Making; D005260:Female; D006801:Humans; D008297:Male; D001523:Mental Disorders / Q000453:epidemiology / Q000451:nursing*; D008605:Mental Health Services / Q000592:standards* / Q000706:statistics & numerical data; D008875:Middle Aged; D020380:Needs Assessment / Q000706:statistics & numerical data; D009664:Norway / Q000453:epidemiology; D009730:Nursing Assessment / Q000379:methods; D010348:Patient Care Team / Q000592:standards* / Q000706:statistics & numerical data; D010358:Patient Participation / Q000706:statistics & numerical data; D011369:Professional-Patient Relations; D011568:Psychiatric Nursing / Q000592:standards; D012044:Regression Analysis