title: [Intractable neurological diseases and neurology].
abstract: In intractable neurological diseases, there are often no appropriate treatment methods even after admission and the course is frequently chronic. Therefore treatment at home is a major choice. In particular, in Parkinson's disease and amyotrophic lateral sclerosis, care at home while symptoms are stable is appropriate in terms of extension of ADL and the QOL of the patient and family. We have performed continuous treatment at home according to our plan for the previous 9 years. This treatment was favorably accepted by the patient and family without major problems. It is important to organize network to support patient with intractable neurological diseases. By virtue of the care insurance system established in 2000, services of medical care, health and welfare are being collectively provided at present. But, there still remain many issues awaiting solution on the support to advanced intractable neurological diseases. A pending problem about suction of sputa for the ALS patients serving at home are being allowed to non-medical profession like home helper.
authors.affiliation: Department of Neurology, National Minamikyusyu Hospital.
authors.forename: Hidetoshi
authors.initials: H
authors.lastname: Fukunaga
mesh_terms: D000203:Activities of Daily Living; D000690:Amyotrophic Lateral Sclerosis / Q000628:therapy; D002908:Chronic Disease; D006699:Home Care Services / Q000191:economics / Q000706:statistics & numerical data; D018576:Home Health Aides; D006801:Humans; D007353:Insurance, Long-Term Care; D007564:Japan / Q000453:epidemiology; D008134:Long-Term Care / Q000191:economics / Q000706:statistics & numerical data; D019636:Neurodegenerative Diseases / Q000191:economics / Q000534:rehabilitation* / Q000628:therapy; D011788:Quality of Life; D013396:Suction