title: [Out-patient palliative care of children with cancer and their families].
abstract: Pediatric palliative care is still in its beginning. Most children with life-threatening disorders succumb with incomplete symptom control under in-patient conditions. Due to the limited number of patients and large hospital-home distances the realization of out-patient concepts of palliative care especially for children and adolescents with cancer is purposeful and beneficial. In a pilot project such an a aforementioned concept of pediatric palliative care proved successfully working despite insufficient conditions. Guidelines of pediatric palliative care are to be defined at short notice in order to ascertain autonomy and mobility of patients aiming at highest possible quality of life. The recently initiated program of integrating ambulatory and in-patient care within the regulations set forth in Germany's last health care system reform offers the chance of palliative home care of children in their terminal phase of life.
authors.affiliation: Klinik für Kinder-Onkologie, -Hämatologie und -Immunologie, Universitätsklinikum Düsseldorf. Janssen@med.uni-duesseldorf.de
authors.forename: G
authors.initials: G
authors.lastname: Janssen
authors.forename: C
authors.initials: C
authors.lastname: Friedland
authors.forename: U
authors.initials: U
authors.lastname: Richter
authors.forename: H
authors.initials: H
authors.lastname: Leonhardt
authors.forename: U
authors.initials: U
authors.lastname: Göbel
mesh_terms: D000293:Adolescent; D001293:Attitude to Death; D002648:Child; D003131:Combined Modality Therapy; D005858:Germany; D019337:Hematologic Neoplasms / Q000523:psychology / Q000628:therapy*; D006699:Home Care Services; D006760:Hospitalization; D006801:Humans; D009369:Neoplasms / Q000523:psychology / Q000628:therapy*; D010166:Palliative Care; D010348:Patient Care Team; D011788:Quality of Life / Q000523:psychology; D013727:Terminal Care / Q000523:psychology