title: Terminal dyspnea and respiratory distress.
abstract: Dyspnea is a subjective experience that can be reported by the patient. Respiratory distress is an observable corollary, and represents the physical or emotional suffering that results from the experience of dyspnea. Recognizing and understanding this subjective phenomenon poses a challenge to intensive care unit (ICU) clinicians when caring for the patient who is dying in the ICU. Dyspnea and cognitive impairment are highly prevalent in the terminally ill ICU patient. A Respiratory Distress Observation Model may provide a theoretical foundation for the assessment of this phenomenon that is grounded in emotional and autonomic domains of neurologic function. Treatment of dyspnea and respiratory distress relies on nonpharmacologic interventions and opioids and sedatives. As with pain, the treatment of dyspnea and respiratory distress relies on close evaluation of the patient and treatment to satisfactory effect. Empirical evidence suggests that quality care with control of distressing symptoms does not hasten death. Withholding opioids or sedatives in the face of unrelieved dyspnea or respiratory distress has no moral foundation.
authors.affiliation: Palliative Care Service, Nursing Administration, Detroit Receiving Hospital, 4201 St. Antoine Boulevard, Detroit, MI 48201, USA. mcampbe3@dmc.org
authors.forename: Margaret L
authors.initials: ML
authors.lastname: Campbell
mesh_terms: D000698:Analgesia / Q000941:ethics / Q000379:methods / Q000592:standards; D003072:Cognition Disorders / Q000150:complications; D016292:Procedural Sedation / Q000941:ethics / Q000379:methods / Q000592:standards; D003422:Critical Care / Q000941:ethics / Q000379:methods* / Q000592:standards; D004417:Dyspnea / Q000175:diagnosis / Q000209:etiology / Q000628:therapy*; D006801:Humans; D017146:Models, Organizational; D010146:Pain / Q000150:complications / Q000517:prevention & control; D015995:Prevalence; D011785:Quality Assurance, Health Care / Q000458:organization & administration; D012131:Respiratory Insufficiency / Q000175:diagnosis / Q000209:etiology / Q000628:therapy*; D013727:Terminal Care / Q000941:ethics / Q000379:methods* / Q000592:standards