title: Secondary analysis of primary and preventive services accessed and perceived service barriers by children with developmental disabilities and their families.
abstract: Children and youths with developmental disabilities (DD) have needs for more community-based services to address ongoing health, educational, employment, housing, transportation, and recreational concerns. Secondary data analysis was conducted to examine the array of services accessed and service obstacles to primary, preventive and special health care services of 102 children and youths with developmental disabilities. The two services most frequently reported as being used by families were SSI (29.4%) and MediCal (California's Medicaid program) (27.8%). Speech therapy was the most frequently identified support service accessed by respondents (51%). Respondents identified a number of unaddressed concerns and perceived barriers to having these concerns addressed as it related to service referrals for speech therapy, nutrition services, dental services, and behavior management services.
authors.affiliation: USC UCEDD at Childrens Hospital Los Angeles, Los Angeles, California 90033, USA. cbetz@usc.edu
authors.forename: Cecily L
authors.initials: CL
authors.lastname: Betz
authors.forename: Marion Taylor
authors.initials: MT
authors.lastname: Baer
authors.forename: Marie
authors.initials: M
authors.lastname: Poulsen
authors.forename: Umme
authors.initials: U
authors.lastname: Vahanvaty
authors.forename: Melissa
authors.initials: M
authors.lastname: Bare
authors.forename: Youmna
authors.initials: Y
authors.lastname: Haddad
authors.forename: Goldie
authors.initials: G
authors.lastname: Nwachuken
mesh_terms: D000293:Adolescent; D002140:California; D002648:Child; D002662:Child Health Services; D002675:Child, Preschool; D015331:Cohort Studies; D002658:Developmental Disabilities; D019988:Children with Disabilities; D005190:Family; D005260:Female; D006297:Health Services Accessibility; D006301:Health Services Needs and Demand; D006801:Humans; D008297:Male; D011314:Preventive Health Services / Q000706:statistics & numerical data*; D011320:Primary Health Care / Q000706:statistics & numerical data*