title: Quality of life and social outcomes in adults with congenital heart disease living in rural areas of Kentucky.
abstract: As revealed by a quality-of-life survey done in a small rural Kentucky cohort, adults who live in rural areas who have congenital heart disease have a relatively poor health-related quality of life and face unique challenges in gaining employment, maintaining health insurance, and overcoming the perceived childhood stigma of being "different."
authors.affiliation: Texas Heart Institute at St. Luke's Episcopal Hospital, Texas Children's Hospital, and Baylor College of Medicine, Houston, Texas, USA. jlj@bcm.tcm.edu
authors.forename: John L
authors.initials: JL
authors.lastname: Jefferies
authors.forename: Jacqueline A
authors.initials: JA
authors.lastname: Noonan
authors.forename: Bradley B
authors.initials: BB
authors.lastname: Keller
authors.forename: John F
authors.initials: JF
authors.lastname: Wilson
authors.forename: Charles
authors.initials: C
authors.lastname: Griffith
mesh_terms: D000293:Adolescent; D000328:Adult; D003430:Cross-Sectional Studies; D004651:Employment; D005260:Female; D006305:Health Status Indicators; D006330:Heart Defects, Congenital; D006801:Humans; D007629:Kentucky; D008297:Male; D008875:Middle Aged; D011788:Quality of Life; D012424:Rural Population; D012944:Social Support