title: Being in the light or in the shade: persons with Parkinson's disease and their partners' experience of support.
abstract: Interviews with six couples, persons with Parkinson's disease and their partners, were tape-recorded, transcribed and analysed using manifest and latent content analysis. The couples' experiences could be interpreted as Being in the light and Being in the shade of support, with internal variations for the patients and their partners. The narratives also revealed that the disease meant a transition of roles in their relation seen in different patterns: From unity towards unity, From unity towards distance and From distance towards unity. The results indicate that there is a need for more specialised and individually adjusted support.
authors.affiliation: Department of Health Sciences, Kristianstad University, Kristianstad SE 291 88, Sweden.
authors.forename: A M B
authors.initials: AM
authors.lastname: Birgersson
authors.forename: A-K
authors.initials: AK
authors.lastname: Edberg
mesh_terms: D000368:Aged; D000369:Aged, 80 and over; D005260:Female; D006801:Humans; D007398:Interpersonal Relations; D008297:Male; D008875:Middle Aged; D020380:Needs Assessment; D010300:Parkinson Disease / Q000523:psychology*; D010549:Personal Satisfaction; D012934:Social Isolation; D012944:Social Support; D018454:Spouses / Q000523:psychology*; D013548:Sweden