title: Minority recruitment in hereditary breast cancer research.
abstract: Although recruitment of ethnic and racial minorities in medical research has been evaluated in several studies, much less is known about the methods used to recruit these populations to participate in cancer genetics research. This report reviews the resources that have been used to identify and recruit ethnic and racial minorities to participate in hereditary breast cancer research. Overall, hospital-based resources were used most often to identify potential subjects, and active recruitment methods were used most frequently to enroll eligible subjects. This review suggests that there appears to be a finite number of resources and strategies to identify and recruit potential subjects to participate in cancer genetics research; however, options for improving awareness about cancer genetics research among ethnic and racial minorities have not been extensively evaluated. To study ethnic and racial minority participation in cancer genetics research, stronger evaluation components will need to be integrated into research methods. Both observational and experimental studies are needed to determine resources that are most effective for identifying potential subjects who are ethnic and racial minorities and to evaluate the effects of different recruitment strategies on enrollment decisions among these populations.
authors.affiliation: Abramson Cancer Center and Department of Psychiatry, University of Pennsylvania, Philadelphia, 19104, USA. chanita@mail.med.upenn.edu
authors.forename: Chanita
authors.initials: C
authors.lastname: Hughes
authors.forename: Susan K
authors.initials: SK
authors.lastname: Peterson
authors.forename: Amelie
authors.initials: A
authors.lastname: Ramirez
authors.forename: Kipling J
authors.initials: KJ
authors.lastname: Gallion
authors.forename: Paige Green
authors.initials: PG
authors.lastname: McDonald
authors.forename: Celette Sugg
authors.initials: CS
authors.lastname: Skinner
authors.forename: Deborah
authors.initials: D
authors.lastname: Bowen
mesh_terms: D001943:Breast Neoplasms / Q000208:ethnology / Q000235:genetics*; D016208:Databases, Factual; D005260:Female; D019398:Genes, BRCA1; D024522:Genes, BRCA2; D020022:Genetic Predisposition to Disease / Q000208:ethnology*; D006801:Humans; D008913:Minority Groups / Q000523:psychology*; D009154:Mutation; D018579:Patient Selection; D044469:Racial Groups / Q000235:genetics*; D018426:SEER Program