title: [Intervention to promote recognition of the rights of families of an elderly relative with dementia living in a long-term care facility].
abstract: The rights of families of an institutionalized elderly relative with dementia have yet to be recognized. The results of our pilot study based on a participatory approach show, among other things, that family caregivers, women for the most part, have little input in the decisions regarding their relative's care and are uneasy to express their opinions to health care staff. As part of the pilot study, caregivers developed a group intervention program entitled "Taking Care of Myself" geared, among other things, towards increasing their competence in expressing their viewpoint to health care staff and in taking part in care-related decisions. According to an efficacy study conducted after the pilot study, the program produced successful outcomes in terms of caregiver competence in dealing with the health care staff and of perceived challenge of the caregiver situation. Recommendations are made aimed at giving caregivers recognition, that is their due.
authors.affiliation: Centre de recherche, Institut universitaire de gériatrie de Montréal.
authors.forename: Louise
authors.initials: L
authors.lastname: Lévesque
authors.forename: Francine
authors.initials: F
authors.lastname: Ducharme
authors.forename: Alain
authors.initials: A
authors.lastname: Legault
authors.forename: Francine
authors.initials: F
authors.lastname: Giroux
mesh_terms: D000223:Adaptation, Psychological; D000368:Aged; D001242:Assertiveness; D001294:Attitude to Health; D017028:Caregivers / Q000193:education / Q000331:legislation & jurisprudence / Q000523:psychology*; D003657:Decision Making; D003704:Dementia / Q000451:nursing*; D005190:Family / Q000523:psychology*; D007722:Health Knowledge, Attitudes, Practice; D006293:Health Promotion / Q000458:organization & administration; D006806:Human Rights / Q000331:legislation & jurisprudence; D006801:Humans; D009720:Nurse Clinicians / Q000458:organization & administration; D015403:Nursing Evaluation Research; D015404:Nursing Methodology Research; D010865:Pilot Projects; D011368:Professional-Family Relations; D015397:Program Evaluation; D011792:Quebec; D012648:Self Care / Q000379:methods / Q000523:psychology; D012657:Self-Help Groups / Q000458:organization & administration*; D012866:Skilled Nursing Facilities; D012944:Social Support