Half the family members of intensive care unit patients do not want to share in the decision-making process: a study in 78 French intensive care units.
OBJECTIVE
To evaluate the opinions of intensive care unit staff and family members about family participation in decisions about patients in intensive care units in France, a country where the approach of physicians to patients and families has been described as paternalistic.


METHODS
Prospective multiple-center survey of intensive care unit staff and family members.


METHODS
Seventy-eight intensive care units in university-affiliated hospitals in France.


METHODS
We studied 357 consecutive patients hospitalized in the 78 intensive care units and included in the study starting on May 1, 2001, with five patients included per intensive care unit.


METHODS
We recorded opinions and experience about family participation in medical decision making. Comprehension, satisfaction, and Hospital Anxiety and Depression Scale scores were determined in family members.


RESULTS
Poor comprehension was noted in 35% of family members. Satisfaction was good but anxiety was noted in 73% and depression in 35% of family members. Among intensive care unit staff members, 91% of physicians and 83% of nonphysicians believed that participation in decision making should be offered to families; however, only 39% had actually involved family members in decisions. A desire to share in decision making was expressed by only 47% of family members. Only 15% of family members actually shared in decision making. Effectiveness of information influenced this desire.


CONCLUSIONS
Intensive care unit staff should seek to determine how much autonomy families want. Staff members must strive to identify practical and psychological obstacles that may limit their ability to promote autonomy. Finally, they must develop interventions and attitudes capable of empowering families.
Azoulay
Elie
E
Intensive Care Unit of the Saint-Louis Teaching Hospital and University of Paris 7, Assistance Publique-Hôpitaux de Paris, Paris, France.
Pochard
Frédéric
F
Chevret
Sylvie
S
Adrie
Christophe
C
Annane
Djilali
D
Bleichner
Gérard
G
Bornstain
Caroline
C
Bouffard
Yves
Y
Cohen
Yves
Y
Feissel
Marc
M
Goldgran-Toledano
Dany
D
Guitton
Christophe
C
Hayon
Jan
J
Iglesias
Esther
E
Joly
Luc-Marie
LM
Jourdain
Mercé
M
Laplace
Christian
C
Lebert
Christine
C
Pingat
Juliette
J
Poisson
Catherine
C
Renault
Anne
A
Sanchez
Olivier
O
Selcer
Dominique
D
Timsit
Jean-François
JF
Le Gall
Jean-Roger
JR
Schlemmer
Benoît
B
D000328:Adult; D000368:Aged; D001007:Anxiety; D001291:Attitude of Health Personnel; D001294:Attitude to Health; D003258:Consumer Behavior; D003657:Decision Making; D003863:Depression; D005190:Family / Q000523:psychology*; D005260:Female; D005602:France; D006801:Humans; D007362:Intensive Care Units; D016015:Logistic Models; D008297:Male; D008875:Middle Aged; D015999:Multivariate Analysis; D011446:Prospective Studies