title: Brief report: Predictors of parenting stress among parents of children with biochemical genetic disorders.
abstract: OBJECTIVE
  To examine predictors of parenting stress in parents whose children were diagnosed with a biochemical genetic disorder clinically or through newborn screening.
  
  
  METHODS
  Parents of 263 children with biochemical genetic disorders (139 identified by newborn screening, 124 identified clinically) completed interviews focused on child health, medical service use, satisfaction with services, parenting stress, and family functioning.
  
  
  RESULTS
  Multiple regression analyses suggested that child adaptive functioning, parental satisfaction with support, and difficulties parents experienced meeting their child's health care needs were associated with scores on the Parenting Stress Index (R2 =.51).
  
  
  CONCLUSIONS
  Initiatives to improve child adaptive functioning and parental support as well as practical assistance to help parents meet their child's health needs may reduce parental stress and family disruption in this population.
authors.affiliation: Children's Hospital and Harvard Medical School, Inborn Errors of Metabolism Clinic, Boston, Massachusetts 02115, USA. susan.waisbren@childrens.harvard.edu
authors.forename: Susan E
authors.initials: SE
authors.lastname: Waisbren
authors.forename: Michelle
authors.initials: M
authors.lastname: Rones
authors.forename: Catherine Y
authors.initials: CY
authors.lastname: Read
authors.forename: Deborah
authors.initials: D
authors.lastname: Marsden
authors.forename: Harvey L
authors.initials: HL
authors.lastname: Levy
mesh_terms: D000328:Adult; D002648:Child; D005260:Female; D005693:Galactosemias / Q000235:genetics*; D005977:Glutarates / Q000378:metabolism*; D006801:Humans; D008297:Male; D016487:Parenting / Q000523:psychology*; D010290:Parents / Q000523:psychology*; D010661:Phenylketonurias / Q000235:genetics*; D012944:Social Support; D013315:Stress, Psychological / Q000523:psychology*; D011795:Surveys and Questionnaires
chemical_list: D005977:Glutarates; C035736:glutaric acid