HealthConnect and privacy: a policy conundrum.
A shared electronic health record is intrinsically privacy-invasive because it creates a comprehensive record for information-sharing. The author explains the significance of information privacy and why it is that health information warrants special protection. She also provides an overview of the existing regulatory framework and an evaluation of suggested options and proposals for addressing privacy-related issues. Her analysis of suggested consent models suggests that they ultimately involve a trade-off between privacy and the broader benefits promised by HealthConnect and that obtaining the right balance is essential if HealthConnect is to achieve optimal health outcomes.
Paterson
Moira
M
Faculty of Law, Monash University, Clayton, Vic 3800, Australia.
D001315:Australia; D003219:Confidentiality / Q000331:legislation & jurisprudence; D016208:Databases, Factual / Q000331:legislation & jurisprudence; D003695:Delivery of Health Care / Q000331:legislation & jurisprudence; D030881:Disclosure / Q000331:legislation & jurisprudence; D006801:Humans; D008498:Medical Record Linkage / Q000379:methods*; D016347:Medical Records Systems, Computerized / Q000331:legislation & jurisprudence*; D011050:Policy Making