Measures used to assess burden among caregivers of stroke patients: a review.
OBJECTIVE
To describe measures used to evaluate the burden of caregiving experienced by caregivers of stroke patients and their clinimetric properties.


METHODS
A review of the literature was conducted to examine burden scales with regard to concept, feasibility, internal consistency, validity, reliability and responsiveness.


RESULTS
The literature search resulted in 45 measures of caregiver outcomes, including 16 different measures of caregiver burden. About half of the scales were used only once and were not further described. Nearly all instruments measure the various dimensions of burden (competency, negative feelings, social relations, participation problems, physical and mental health and economic aspects), but not in the same proportions. Most measures showed good internal consistency, and validity was demonstrated for all measures except one. However, not much is known about the reliability and responsiveness of these measures.


CONCLUSIONS
No measure has proven superiority above others. Future research should focus on comparisons between existing instruments and on their reliability and responsiveness.
Rehabilitation Centre De Hoogstraat, Rembrandtkade 10, 3583 TM Utrecht, The Netherlands. a.visser@dehoogstraat.nl
J M Anne
JM
Visser-Meily
Marcel W M
MW
Post
Ingrid I
II
Riphagen
Eline
E
Lindeman
D017028:Caregivers / Q000523:psychology; D017281:Cost of Illness; D005190:Family; D006801:Humans; D011788:Quality of Life; D013315:Stress, Psychological; D000071939:Stroke Rehabilitation; D011795:Surveys and Questionnaires