Providing a primary care medical home for children and youth with cerebral palsy.
Children and youth with cerebral palsy present pediatricians with complex diagnostic and therapeutic challenges. In most instances, care also requires communication and comanagement with pediatric subspecialists and pediatric surgical specialists, therapists, and community developmental and educational teams. The importance of family resilience to the patient's well-being broadens the ecologic scope of care, which highlights the value of a primary care medical home from which care is initiated, coordinated, and monitored and with which families can form a reliable alliance for information, support, and advocacy from the time of diagnosis through the transition to adulthood. This report reviews the aspects of care specific to cerebral palsy that a medical home should provide beyond the routine health maintenance, preventive care, and anticipatory guidance needed by all children.
W Carl
WC
Cooley
D002547:Cerebral Palsy / Q000175:diagnosis / Q000209:etiology / Q000628:therapy*; D002648:Child; D006801:Humans; D007223:Infant; D009128:Muscle Spasticity / Q000628:therapy; D005791:Patient Care / Q000379:methods; D010348:Patient Care Team; D011788:Quality of Life; D012307:Risk Factors