title: Revision and psychometric testing of the City of Hope Quality of Life-Ostomy Questionnaire.
abstract: OBJECTIVE
  Ostomies may be performed for bowel or urinary diversion, and occur in both cancer and non-cancer patients. Impact on physical, psychological, social and spiritual well-being is not unexpected, but has been minimally described in the literature. The City of Hope Quality of Life (COH-QOL)-Ostomy Questionnaire is an adult patient self-report instrument designed to assess quality of life. This report focuses on the revision and psychometric testing of this questionnaire.
  
  
  METHODS
  The revised COH-QOL-Ostomy Questionnaire involved in-depth patient interviews and expert panel review. The format consisted of a 13-item disease and demographic section, a 34-item forced-choice section, and a 41-item linear analogue scaled section. A mailed survey to California members of the United Ostomy Association resulted in a 62% response rate (n = 1513). Factor analysis was conducted to refine the instrument. Construct validity involved testing a number of hypotheses identifying contrasting groups.
  
  
  RESULTS
  Factor analysis confirmed the conceptual framework. Reliability of subscales ranged from 0.77 to 0.90. The questionnaire discriminated between subpopulations with specific concerns.
  
  
  CONCLUSIONS
  Overall, the analyses provide evidence for the validity and reliability of the COH-QOL-Ostomy Questionnaire as a comprehensive, multidimensional self-report questionnaire for measuring quality of life in patients with intestinal ostomies.
authors.affiliation: Nursing Research and Education, City of Hope National Medical Center, Duarte, California 91010, USA. mgrant@coh.org
authors.forename: Marcia
authors.initials: M
authors.lastname: Grant
authors.forename: Betty
authors.initials: B
authors.lastname: Ferrell
authors.forename: Grace
authors.initials: G
authors.lastname: Dean
authors.forename: Gwen
authors.initials: G
authors.lastname: Uman
authors.forename: David
authors.initials: D
authors.lastname: Chu
authors.forename: Robert
authors.initials: R
authors.lastname: Krouse
mesh_terms: D000368:Aged; D000369:Aged, 80 and over; D002140:California; D004766:Enterostomy / Q000523:psychology*; D005260:Female; D006801:Humans; D008297:Male; D011594:Psychometrics / Q000295:instrumentation*; D011788:Quality of Life / Q000523:psychology*; D018434:Sickness Impact Profile; D011795:Surveys and Questionnaires