Disability profile of patients with HTLV-I-associated myelopathy/tropical spastic paraparesis using the Functional Independence Measure (FIM).
METHODS
Survey.


OBJECTIVE
To determine the disability profile of a group of patients with human T-cell lymphotropic virus type I-associated myelopathy/tropical spastic paraparesis (HAM/TSP), using the Functional Independence Measure (FIM) to identify the most affected functional areas.


METHODS
Reference center for HTLV Rio de Janeiro, Brazil.


METHODS
A total of 72 patients (49 female and 23 male), consecutively referred by tertiary care centers, were assessed using the FIM.


RESULTS
The average FIM score was 108 (+/-12 SD) ranging from 58 to 122. The lowest items scores were obtained in locomotion and bladder management. When divided into two groups (above, and below or equal to the average score), there were significant differences (P<0.05) in age at time of assessment, in the degree of muscular power and in low back pain. There were no significant differences in terms of age of onset and duration of the disease.


CONCLUSIONS
The most affected areas in FIM motor items were locomotion (walk and stairs) and bladder management. Age, strength in lower limbs and low back pain interfere with functional activities in patients with HAM/TSP. The duration of the disease is not a significant factor for patient disabilities. The goals of rehabilitation in HAM/TSP patients should target the modifiable factors, such as pain, strength and the neurogenic bladder.
Franzoi
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AC
The Federal University of Rio de Janeiro (UFRJ), Clementino Fraga Filho University Hospital (HUCFF), Rio de Janeiro, Brazil.
Araújo
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AQ
D000203:Activities of Daily Living; D000293:Adolescent; D000328:Adult; D000367:Age Factors; D017668:Age of Onset; D000368:Aged; D001416:Back Pain / Q000209:etiology; D004185:Disability Evaluation; D005260:Female; D006801:Humans; D015459:Leukemia-Lymphoma, Adult T-Cell / Q000175:diagnosis* / Q000453:epidemiology / Q000503:physiopathology*; D008297:Male; D008875:Middle Aged; D009043:Motor Activity / Q000502:physiology; D009460:Neurologic Examination; D015493:Paraparesis, Tropical Spastic / Q000175:diagnosis* / Q000453:epidemiology / Q000503:physiopathology*; D001743:Urinary Bladder / Q000503:physiopathology