The National Registry of Veterans with Amyotrophic Lateral Sclerosis: Department of Veterans Affairs Cooperative Studies Program (CSP) #500a.
In response to concern about the development of ALS among veterans of the U.S. armed forces, particularly Gulf War veterans, the Department of Veterans Affairs established a national registry of veterans with ALS. This Registry will identify living veterans with ALS, track the progression of their disease, and serve as a vehicle to facilitate study of epidemiological risk factors for ALS in a military context. The Registry will also function as a means of communication with the enrolled patients about basic and clinical ALS-specific research. Executive and scientific research committees guide the activity of the registry.
Kasarkis
Edward J
EJ
VA Medical Center, Lexington, KY 40502-2236, USA. ejkas@pop.uky.edu
Dominic
Kelli
K
Oddone
Eugene Z
EZ
D000690:Amyotrophic Lateral Sclerosis / Q000175:diagnosis / Q000188:drug therapy / Q000453:epidemiology*; D003299:Cooperative Behavior; D006801:Humans; D012042:Registries / Q000706:statistics & numerical data*; D015203:Reproducibility of Results; D014481:United States; D014493:United States Department of Veterans Affairs / Q000458:organization & administration*; D014728:Veterans