title: Link Family Support - an evaluation of an in-home support service.
abstract: A significant body of research has shown that parents who have a child or a dependent adult with a disability experience significant and persistent levels of stress. One of the recognized strategies for coping includes the provision of in-home practical support. Enable Ireland provides a range of services for children and adults with a physical disability. The present study explored home support services with a sample of 16 families of service users of Enable Ireland Cork. Practical support was deemed to be whatever support or intervention requested by the parent of the child/dependent adult which afforded the service user the opportunity to engage in social/recreational opportunities and that gave the parent free time. Sixteen members of the chosen families were interviewed (15 mothers and one father) using a semi-structured interview schedule and a standardized stress measure before and after the introduction of Link Family Support (LFS). LFS was put in place for a period of 12 months, tailored to the families and service users' individual needs. Although levels of stress continued to be high and scores on the Parenting Stress Index (PSI) did not show a statistically significant reduction after the programme, reported stress levels had improved. Parents reported LFS to be very helpful in reducing perceived stress and improving family's quality of life through providing free time and access to leisure and recreation facilities. This study provided limited but clear evidence of the need for regular, flexible, in-home support for families with children and dependent adults with a disability. LFS provided a personal, regular and effective means of meeting this need as the findings of this study demonstrated.
authors.affiliation: Research Department, Enable Ireland, Ballintemple, Cork, Ireland.
authors.forename: H
authors.initials: H
authors.lastname: Forde
authors.forename: H
authors.initials: H
authors.lastname: Lane
authors.forename: D
authors.initials: D
authors.lastname: McCloskey
authors.forename: V
authors.initials: V
authors.lastname: McManus
authors.forename: E
authors.initials: E
authors.lastname: Tierney
mesh_terms: D000293:Adolescent; D000328:Adult; D002648:Child; D002675:Child, Preschool; D005190:Family; D005260:Female; D006699:Home Care Services / Q000592:standards* / Q000600:supply & distribution; D006801:Humans; D007223:Infant; D007494:Ireland; D007859:Learning Disabilities / Q000451:nursing*; D008297:Male; D010290:Parents / Q000523:psychology; D012944:Social Support