title: Assessing palliative care outcomes for people with motor neurone disease living at home.
abstract: A number of palliative care outcome measures are used to facilitate the provision of palliative care. This short article reports the use of one palliative care outcome measure, the Palliative care Outcome Scale, with people with motor neurone disease (MND) living at home. The outcome measure was generally viewed positively by those involved. However, problems with this scale itself point to the need for a specialized instrument to assess palliative care outcomes for people living with MND.
authors.affiliation: Centre for Health and Social Care, School for Policy Studies, University of Bristol, Bristol, BS8 1TZ, UK. rhidian.hughes@ukonline.co.uk
authors.forename: Rhidian A
authors.initials: RA
authors.lastname: Hughes
authors.forename: Fiona
authors.initials: F
authors.lastname: Aspinal
authors.forename: Irene J
authors.initials: IJ
authors.lastname: Higginson
authors.forename: Julia M
authors.initials: JM
authors.lastname: Addington-Hall
authors.forename: Maria
authors.initials: M
authors.lastname: Dunckley
authors.forename: Christina
authors.initials: C
authors.lastname: Faull
authors.forename: Anu
authors.initials: A
authors.lastname: Sinha
mesh_terms: D000328:Adult; D000368:Aged; D000369:Aged, 80 and over; D001291:Attitude of Health Personnel; D001294:Attitude to Health; D003152:Community Health Nursing / Q000592:standards; D005240:Feasibility Studies; D005260:Female; D006699:Home Care Services / Q000592:standards; D006801:Humans; D008131:London; D008297:Male; D008875:Middle Aged; D016472:Motor Neuron Disease / Q000451:nursing / Q000523:psychology; D020380:Needs Assessment; D015403:Nursing Evaluation Research / Q000379:methods / Q000592:standards; D009740:Nursing Staff / Q000523:psychology / Q000592:standards; D017063:Outcome Assessment, Health Care / Q000379:methods* / Q000592:standards; D010166:Palliative Care / Q000592:standards; D018802:Patient-Centered Care / Q000592:standards; D011795:Surveys and Questionnaires / Q000592:standards*