title: Family caregivers in palliative care.
abstract: This article defines caregiving broadly to include the informal (ie, unpaid) care provided by family members that goes beyond customary and normative social support provided in social relationships. Family caregivers in particular play significant roles in the care of elders with advanced chronic disease and in the context of palliative and end-of-life care. These caregivers typically are involved in critical medical decisions, provide vital assistance with activities of daily living, and carry out most nonpharmacologic and pharmacologic treatment recommendations for community-based elders. This article describes family caregivers and the costs of care and introduces the stress process model to highlight essential caregiving experiences and needs in the context of palliative care. Common interventions used to support caregivers are highlighted, and the bereavement experience among caregivers is discussed.
authors.affiliation: Department of Medicine, Buehler Center on Aging, Feinberg School of Medicine, Northwestern University, 750 North Lake Shore Drive, Suite 601, Chicago, IL 60611, USA. j-hauser@northwestern.edu
authors.forename: Joshua M
authors.initials: JM
authors.lastname: Hauser
authors.forename: Betty J
authors.initials: BJ
authors.lastname: Kramer
mesh_terms: D001601:Bereavement; D017028:Caregivers / Q000458:organization & administration / Q000523:psychology; D006801:Humans; D010166:Palliative Care; D011368:Professional-Family Relations; D013315:Stress, Psychological / Q000523:psychology