Assessing palliative care outcomes for people with motor neurone disease living at home.
A number of palliative care outcome measures are used to facilitate the provision of palliative care. This short article reports the use of one palliative care outcome measure, the Palliative care Outcome Scale, with people with motor neurone disease (MND) living at home. The outcome measure was generally viewed positively by those involved. However, problems with this scale itself point to the need for a specialized instrument to assess palliative care outcomes for people living with MND.
Hughes
Rhidian A
RA
Centre for Health and Social Care, School for Policy Studies, University of Bristol, Bristol, BS8 1TZ, UK. rhidian.hughes@ukonline.co.uk
Aspinal
Fiona
F
Higginson
Irene J
IJ
Addington-Hall
Julia M
JM
Dunckley
Maria
M
Faull
Christina
C
Sinha
Anu
A
D000328:Adult; D000368:Aged; D000369:Aged, 80 and over; D001291:Attitude of Health Personnel; D001294:Attitude to Health; D003152:Community Health Nursing / Q000592:standards; D005240:Feasibility Studies; D005260:Female; D006699:Home Care Services / Q000592:standards; D006801:Humans; D008131:London; D008297:Male; D008875:Middle Aged; D016472:Motor Neuron Disease / Q000451:nursing / Q000523:psychology; D020380:Needs Assessment; D015403:Nursing Evaluation Research / Q000379:methods / Q000592:standards; D009740:Nursing Staff / Q000523:psychology / Q000592:standards; D017063:Outcome Assessment, Health Care / Q000379:methods* / Q000592:standards; D010166:Palliative Care / Q000592:standards; D018802:Patient-Centered Care / Q000592:standards; D011795:Surveys and Questionnaires / Q000592:standards*