title: Life, epidermolysis bullosa and chasing tornadoes.
abstract: Sam Hall was diagnosed with epidermolysis bullosa as a baby. Here she describes growing up with the condition and the continual dressing changes it brings, and how she has not let it prevent her from leading an active and exciting life.
authors.forename: Sam
authors.initials: S
authors.lastname: Hall
mesh_terms: D000203:Activities of Daily Living; D000223:Adaptation, Psychological; D000293:Adolescent; D001294:Attitude to Health; D001458:Bandages; D002266:Carboxymethylcellulose Sodium / Q000627:therapeutic use; D016108:Epidermolysis Bullosa Dystrophica / Q000175:diagnosis / Q000517:prevention & control / Q000523:psychology*; D005260:Female; D006801:Humans; D010290:Parents / Q000523:psychology; D000297:Psychology, Adolescent; D011788:Quality of Life; D012828:Silicones / Q000627:therapeutic use; D017592:Skin Care / Q000379:methods / Q000523:psychology
chemical_list: D012828:Silicones; C114834:mepitel; D002266:Carboxymethylcellulose Sodium