title: [The situation of caregiver counselling in patients with frontotemporal lobar dementia in old psychiatry].
abstract: Caregiver counselling is an indispensable feature of current concepts for dementia treatment. Self-support groups and psychoeducative programms for caregivers of patients with Alzheimer's disease may reduce the burden of nursing and psychological strain. Specific caregiver needs from patients with frontotemporal lobar dementia (FTLD [frontotemporal dementia, semantic dementia, progressive aphasia, corticobasal degeneration]) are only partially taken into account. We conducted a German wide epidemiologic study which revealed that specific counselling for supporting relatives and caregivers of patients with FTLD is only fragmentary in hospital services for old age psychiatry. In most cases, they are referred to the local Alzheimer's disease Associations (89 %). Besides that, the existence of large hospital care units has significant negative repercussions on psychosocial supply for caregivers of patients with FTLD. To establish decentralized support units by these hospitals would lead to a significant improvement of medical and social care in this field.
authors.affiliation: Für die Arbeitsgruppe Gerontopsychiatrie der psychiatrischen Versorgungskrankenhäuser Deutschlands. bernd.ibach@medbo.de
authors.forename: Bernd
authors.initials: B
authors.lastname: Ibach
authors.forename: Horst
authors.initials: H
authors.lastname: Koch
authors.forename: Manfred
authors.initials: M
authors.lastname: Koller
authors.forename: Göran
authors.initials: G
authors.lastname: Hajak
authors.forename: Albert
authors.initials: A
authors.lastname: Putzhammer
mesh_terms: D000368:Aged; D000544:Alzheimer Disease / Q000523:psychology / Q000628:therapy; D017028:Caregivers / Q000193:education / Q000523:psychology*; D017281:Cost of Illness; D003376:Counseling / Q000600:supply & distribution*; D003704:Dementia / Q000523:psychology* / Q000628:therapy; D005858:Germany; D006301:Health Services Needs and Demand / Q000706:statistics & numerical data; D006701:Home Nursing / Q000523:psychology; D006801:Humans; D008875:Middle Aged; D011446:Prospective Studies; D012017:Referral and Consultation; D012657:Self-Help Groups; D012944:Social Support; D011795:Surveys and Questionnaires