title: Development of risk-based guidelines for pediatric cancer survivors: the Children's Oncology Group Long-Term Follow-Up Guidelines from the Children's Oncology Group Late Effects Committee and Nursing Discipline.
abstract: The Children's Oncology Group Long-Term Follow-Up Guidelines for Survivors of Childhood, Adolescent, and Young Adult Cancers are risk-based, exposure-related clinical practice guidelines intended to promote earlier detection of and intervention for complications that may potentially arise as a result of treatment for pediatric malignancies. Developed through the collaborative efforts of the Children's Oncology Group Late Effects Committee, Nursing Discipline, and Patient Advocacy Committee, these guidelines represent a statement of consensus from a multidisciplinary panel of experts in the late effects of pediatric cancer treatment. The guidelines are both evidence-based (utilizing established associations between therapeutic exposures and late effects to identify high-risk categories) and grounded in the collective clinical experience of experts (matching the magnitude of risk with the intensity of screening recommendations). They are intended for use beginning 2 or more years following the completion of cancer therapy; however, they are not intended to provide guidance for follow-up of the survivor's primary disease. A complementary set of patient education materials ("Health Links") was developed to enhance follow-up care and broaden the application of the guidelines. The information provided in these guidelines is important for health care providers in the fields of pediatrics, oncology, internal medicine, family practice, and gynecology, as well as subspecialists in many fields. Implementation of these guidelines is intended to increase awareness of potential late effects and to standardize and enhance follow-up care provided to survivors of pediatric cancer throughout the lifespan. The Guidelines, and related Health Links, can be downloaded in their entirety at www.survivorshipguidelines.org.
authors.affiliation: Division of Pediatrics, City of Hope Comprehensive Cancer Center, Duarte, CA, USA.
authors.forename: Wendy
authors.initials: W
authors.lastname: Landier
authors.forename: Smita
authors.initials: S
authors.lastname: Bhatia
authors.forename: Debra A
authors.initials: DA
authors.lastname: Eshelman
authors.forename: Katherine J
authors.initials: KJ
authors.lastname: Forte
authors.forename: Teresa
authors.initials: T
authors.lastname: Sweeney
authors.forename: Allison L
authors.initials: AL
authors.lastname: Hester
authors.forename: Joan
authors.initials: J
authors.lastname: Darling
authors.forename: F Daniel
authors.initials: FD
authors.lastname: Armstrong
authors.forename: Julie
authors.initials: J
authors.lastname: Blatt
authors.forename: Louis S
authors.initials: LS
authors.lastname: Constine
authors.forename: Carolyn R
authors.initials: CR
authors.lastname: Freeman
authors.forename: Debra L
authors.initials: DL
authors.lastname: Friedman
authors.forename: Daniel M
authors.initials: DM
authors.lastname: Green
authors.forename: Neyssa
authors.initials: N
authors.lastname: Marina
authors.forename: Anna T
authors.initials: AT
authors.lastname: Meadows
authors.forename: Joseph P
authors.initials: JP
authors.lastname: Neglia
authors.forename: Kevin C
authors.initials: KC
authors.lastname: Oeffinger
authors.forename: Leslie L
authors.initials: LL
authors.lastname: Robison
authors.forename: Kathleen S
authors.initials: KS
authors.lastname: Ruccione
authors.forename: Charles A
authors.initials: CA
authors.lastname: Sklar
authors.forename: Melissa M
authors.initials: MM
authors.lastname: Hudson
mesh_terms: D000293:Adolescent; D000971:Antineoplastic Combined Chemotherapy Protocols / Q000009:adverse effects* / Q000627:therapeutic use*; D002648:Child; D002675:Child, Preschool; D019317:Evidence-Based Medicine; D005260:Female; D006801:Humans; D007223:Infant; D007231:Infant, Newborn; D008297:Male; D009369:Neoplasms / Q000150:complications* / Q000628:therapy*; D009732:Nursing Care; D011832:Radiation Injuries; D018570:Risk Assessment; D017741:Survivors