title: Quality-of-life concerns of African American breast cancer survivors within rural North Carolina: blending the techniques of photovoice and grounded theory.
abstract: Social norms imposing a prevailing silence around breast cancer in rural African American communities have made it difficult for survivors to express their quality-of-life (QOL) concerns. In this article, the authors describe how they blended the photovoice method (providing participants with cameras so they can record, discuss, and relate the realities of their lives) with grounded theory techniques to assist 13 African American breast cancer survivors from rural eastern North Carolina in (a) exploring how they perceive and address their QOL within their own social context and (b) developing a conceptual framework of survivorship QOL. The framework that emerged reveals that three social forces (racism, stigmas regarding cancer, and cultural expectations of African American women) drive four QOL concerns (seeking safe sources of support, adjusting to the role of cancer survivor, feeling comfortable about the future, and serving as role models) and that survivors address these concerns by relying on spiritual faith and devising strategies to maintain social standing.
authors.affiliation: Department of Clinical and Health Psychology, College of Public Health and Health Professions, University of Florida at Gainesville, Gainesville, FL 32610-3151, USA. elopez@phhp.ufl.edu
authors.forename: Ellen D S
authors.initials: ED
authors.lastname: López
authors.forename: Eugenia
authors.initials: E
authors.lastname: Eng
authors.forename: Elizabeth
authors.initials: E
authors.lastname: Randall-David
authors.forename: Naomi
authors.initials: N
authors.lastname: Robinson
mesh_terms: D000223:Adaptation, Psychological; D000328:Adult; D001741:Black or African American / Q000523:psychology*; D000368:Aged; D000369:Aged, 80 and over; D001943:Breast Neoplasms / Q000523:psychology*; D005260:Female; D006801:Humans; D008875:Middle Aged; D009657:North Carolina; D036301:Qualitative Research; D011788:Quality of Life; D012424:Rural Population; D012931:Social Environment; D017741:Survivors / Q000523:psychology*