Osteogenesis imperfecta: an overview of general pediatric rehabilitation.
The unique biological changes associated with Osteogenesis Imperfecta (OI) result in a dramatic reduction in a child's functional capacity. Successful adaptation and optimal functioning for the child and family, the over-arching goal of comprehensive rehabilitation, are dependent upon the complex interactions between biological processes and a host of behavioral, psychosocial, and environmental factors. This article reviews the premises underlying the need for rehabilitation; general rehabilitation strategies; the aims and outcomes to be achieved through the provision of rehabilitation; and the broad-based issues and variables that affect outcome. Because of the multifactorial and complex nature of the pediatric disability, advances in the rehabilitation of children with OI will require long-term, multivariant, and multicenter studies that will capture health-related, psychosocial, environmental, and functional variables.
Jaffe
K M
KM
Department of Rehabilitation Medicine, University of Washington School of Medicine, Seattle, Washington, USA.
D000223:Adaptation, Psychological; D017028:Caregivers; D002648:Child; D006801:Humans; D010013:Osteogenesis Imperfecta / Q000523:psychology* / Q000534:rehabilitation*; D010372:Pediatrics / Q000592:standards* / Q000639:trends*; D011287:Prejudice; D011584:Psychology; D012046:Rehabilitation / Q000592:standards* / Q000639:trends*; D012574:Schools / Q000592:standards; D012649:Self Concept