title: Internet parent support groups for primary caregivers of a child with special health care needs.
abstract: Little is known about the efficacy of Internet Parent Support Groups (IPSGs). This exploratory study describes factors related to use of Internet Parent Support Groups (IPSGs) by primary caregivers of Children with Special Health Care Needs (CSHCN). An Internet survey was administered to 114 participants using stress and coping theory as a guide for measuring perceived satisfaction, stressors, social support, personal characteristics, appraisal, positive and negative emotion, coping, timing, somatic health, physical functioning, family relationships, and well-being. The majority of participants not only obtained what they sought, but found more than expected in terms of insight and people to trust. The strongest outcome factor related to satisfaction was improved caregiver-CSHCN relationship, and nearly 90% of the sample suggested participating in an IPSG as soon as possible. Nurses may want to consider IPSGs as an adjunct for social support in this population.
authors.affiliation: VA Medical Center in Salt Lake City, USA.
authors.forename: Lynda S
authors.initials: LS
authors.lastname: Baum
mesh_terms: D000223:Adaptation, Psychological; D000328:Adult; D001294:Attitude to Health; D017028:Caregivers / Q000193:education / Q000523:psychology*; D002648:Child; D019988:Children with Disabilities; D005260:Female; D006304:Health Status; D006701:Home Nursing / Q000523:psychology*; D006801:Humans; D020407:Internet / Q000458:organization & administration*; D016014:Linear Models; D008297:Male; D008960:Models, Psychological; D015404:Nursing Methodology Research; D010290:Parents / Q000193:education / Q000523:psychology*; D015397:Program Evaluation; D036301:Qualitative Research; D012189:Retrospective Studies; D012657:Self-Help Groups / Q000458:organization & administration*; D012944:Social Support; D013315:Stress, Psychological / Q000209:etiology / Q000517:prevention & control / Q000523:psychology; D011795:Surveys and Questionnaires