title: An ethnography of nonadherence: culture, poverty, and tuberculosis in urban Bolivia.
abstract: The author conducted a focused descriptive ethnographic study of nonadherence with tuberculosis (TB) therapy among Aymara-speaking residents of the city of La Paz, Bolivia. A cohort of patient-informants was identified from the District III TB Control Registry of La Paz as having been nonadherent with their TB medication protocol. From June to August 1998, ethnographic material was collected through participant-observation and repeated interviews and visits in homes, workplaces, clinics, and the community. Ethnographic analysis revealed structural barriers to be more important than cultural differences in the production of nonadherence. Though informants maintained a variety of beliefs and practices related to Aymara medicine, the majority of patients were comfortable with a biomedical model of tuberculosis and maintained belief in the efficacy of antituberculosis chemotherapy and desire to finish treatment. Patients overwhelmingly cited hidden costs of treatments, poor access to care, ethnic discrimination, and prior maltreatment by the health system as reasons for abandoning treatment. These data suggest that overemphasis of cultural difference without exploration of other social dimensions of health care delivery can obscure a more practical understanding of nonadherence in marginalized populations.
authors.affiliation: Department of Social Medicine, Harvard Medical School, Boston, MA 02115, USA. greene@fas.harvard.edu
authors.forename: Jeremy A
authors.initials: JA
authors.lastname: Greene
mesh_terms: D000328:Adult; D000995:Antitubercular Agents / Q000008:administration & dosage / Q000191:economics; D001294:Attitude to Health / Q000208:ethnology*; D001838:Bolivia; D003466:Cultural Characteristics; D005260:Female; D015438:Health Behavior / Q000208:ethnology*; D006297:Health Services Accessibility; D006801:Humans; D008297:Male; D010342:Patient Acceptance of Health Care / Q000208:ethnology* / Q000523:psychology; D011203:Poverty; D011369:Professional-Patient Relations; D012959:Socioeconomic Factors; D013997:Time Factors; D016896:Treatment Outcome; D016312:Treatment Refusal / Q000208:ethnology* / Q000523:psychology; D014397:Tuberculosis, Pulmonary / Q000188:drug therapy / Q000208:ethnology* / Q000523:psychology; D014505:Urban Population
chemical_list: D000995:Antitubercular Agents