title: Grief support for informal caregivers of patients with ALS: a national survey.
abstract: Providing emotional support to caregivers is integral to comprehensive ALS care. The authors surveyed ALS Association centers and clinics and Muscular Dystrophy Association/ALS centers. Respondents thought that grief and bereavement support was integral to ALS care but thought that the support provided by their centers was often inadequate.
authors.affiliation: Division of General Medicine, Section of Palliative Care and Medical Ethics, MUH 933 W, 200 Lothrop Street, Pittsburgh, PA 15213, USA. hebertrs@msx.upmc.edu
authors.forename: R S
authors.initials: RS
authors.lastname: Hebert
authors.forename: D
authors.initials: D
authors.lastname: Lacomis
authors.forename: C
authors.initials: C
authors.lastname: Easter
authors.forename: V
authors.initials: V
authors.lastname: Frick
authors.forename: M K
authors.initials: MK
authors.lastname: Shear
mesh_terms: D000690:Amyotrophic Lateral Sclerosis / Q000473:pathology*; D017028:Caregivers / Q000523:psychology*; D003625:Data Collection / Q000379:methods; D006117:Grief; D006801:Humans; D012944:Social Support; D014481:United States