title: The Eurocleft study: intercenter study of treatment outcome in patients with complete cleft lip and palate. Part 4: relationship among treatment outcome, patient/parent satisfaction, and the burden of care.
abstract: OBJECTIVE
  To assess patient/parent satisfaction with the treatment they had received from their respective teams, and to explore interrelationships between satisfaction, objectively rated outcome, and the burden of care.
  
  
  METHODS
  This study reports cross-sectional data as part of the overall longitudinal cohort study reported in the other four papers of this series.
  
  
  METHODS
  Multidisciplinary cleft services in Northern Europe.
  
  
  METHODS
  127 consecutively treated 17-year-olds with repaired complete unilateral cleft lip and palate and their parents.
  
  
  METHODS
  Patient/parent satisfaction.
  
  
  RESULTS
  Generally, there was a high level of patient/parent satisfaction. There were no relationships among satisfaction, objectively rated outcomes, and the amount of care.
  
  
  CONCLUSIONS
  This study highlights various challenges involved in questionnaire surveys into patient/parent satisfaction, and underlines the need for collective efforts to improve our understanding of this issue.
authors.affiliation: Department of Plastic Surgery, National Hospital, and Bredtvet Resource Center, University of Oslo, Norway. gunvor.semb@man.ac.uk
authors.forename: Gunvor
authors.initials: G
authors.lastname: Semb
authors.forename: Viveca
authors.initials: V
authors.lastname: Brattström
authors.forename: Kirsten
authors.initials: K
authors.lastname: Mølsted
authors.forename: Birte
authors.initials: B
authors.lastname: Prahl-Andersen
authors.forename: Petra
authors.initials: P
authors.lastname: Zuurbier
authors.forename: Nichola
authors.initials: N
authors.lastname: Rumsey
authors.forename: William C
authors.initials: WC
authors.lastname: Shaw
mesh_terms: D000293:Adolescent; D002971:Cleft Lip / Q000601:surgery*; D002972:Cleft Palate / Q000601:surgery*; D003430:Cross-Sectional Studies; D005060:Europe; D005260:Female; D006801:Humans; D008297:Male; D019647:Oral Surgical Procedures / Q000523:psychology*; D017063:Outcome Assessment, Health Care / Q000379:methods*; D017060:Patient Satisfaction; D012919:Social Behavior; D011795:Surveys and Questionnaires