Grief support for informal caregivers of patients with ALS: a national survey.
Providing emotional support to caregivers is integral to comprehensive ALS care. The authors surveyed ALS Association centers and clinics and Muscular Dystrophy Association/ALS centers. Respondents thought that grief and bereavement support was integral to ALS care but thought that the support provided by their centers was often inadequate.
Hebert
R S
RS
Division of General Medicine, Section of Palliative Care and Medical Ethics, MUH 933 W, 200 Lothrop Street, Pittsburgh, PA 15213, USA. hebertrs@msx.upmc.edu
Lacomis
D
D
Easter
C
C
Frick
V
V
Shear
M K
MK
D000690:Amyotrophic Lateral Sclerosis / Q000473:pathology*; D017028:Caregivers / Q000523:psychology*; D003625:Data Collection / Q000379:methods; D006117:Grief; D006801:Humans; D012944:Social Support; D014481:United States