title: Nurses' perception of adequacy of care for leukemia patients with distress during the incurable phase and related factors.
abstract: Leukemia patients experience distress during the incurable phase of illness. Adequacy of care (i.e., extent to which care relieves the patients' suffering) was described from the nurses' viewpoint, and institutional factors related to adequacy of care were explored. A self-administered questionnaire was completed by 425 nurses working in 26 hematology wards. Nurses tended to rate the care as inadequate. In particular, care for social distress needs to be improved. Our findings suggest that communication among health professionals, utilization of hospital resources, and palliative care education for staff were important in palliative care for leukemia patients during the incurable phase.
authors.affiliation: Department of Adult Nursing/Terminal and Long-term Care Nursing, School of Health Sciences and Nursing, Graduate School of Medicine, The University of Tokyo, 7-3-1 Hongo, Bunkyo-ku, Tokyo 113-0033, Japan. ykishirai-tky@umin.ac.jp
authors.forename: Yuki
authors.initials: Y
authors.lastname: Shirai
authors.forename: Masako
authors.initials: M
authors.lastname: Kawa
authors.forename: Mitsunori
authors.initials: M
authors.lastname: Miyashita
authors.forename: Keiko
authors.initials: K
authors.lastname: Kazuma
mesh_terms: D000328:Adult; D001291:Attitude of Health Personnel; D001293:Attitude to Death; D003142:Communication; D005260:Female; D006295:Health Resources / Q000706:statistics & numerical data; D006801:Humans; D007938:Leukemia / Q000523:psychology / Q000628:therapy*; D008297:Male; D008875:Middle Aged; D020380:Needs Assessment; D009726:Nurses; D010166:Palliative Care; D011787:Quality of Health Care / Q000592:standards*; D019452:Terminally Ill / Q000523:psychology*