title: Stephanie's story: caring for a child with terminal 22q deletion syndrome.
authors.forename: Sarah M
authors.initials: SM
authors.lastname: Axel
authors.forename: Kathleen Gorman
authors.initials: KG
authors.lastname: Wermuth
mesh_terms: D000015:Abnormalities, Multiple / Q000235:genetics; D001321:Autistic Disorder / Q000235:genetics; D002648:Child; D002892:Chromosomes, Human, Pair 22; D005260:Female; D006801:Humans; D007806:Language Disorders / Q000235:genetics; D016487:Parenting; D014178:Translocation, Genetic