title: Perspectives on use and protection of genetic information in work settings: results of a preliminary study.
abstract: The societal use of genetic information raises ethical concerns, and the views of working persons regarding genetic information have received little attention. We performed an empirical project to characterize perspectives of 63 employees at two sites who expressed strong interest in learning about and protecting their personal genetic information. Genetic data were seen as more sensitive than other health data, and disclosure of genetic susceptibility was perceived as having negative consequences. This study suggests the value of exploring the perspectives of key stakeholders most directly affected by genetic applications across diverse societal settings.
authors.affiliation: Deparatment of Psychiatry and Behaviorl Medicine, Medical College of Wisconsin, 8701 Watertown Plank Road, Milwaukee, WI 53226, USA. robertsl@mcw.edu
authors.forename: Laura Weiss
authors.initials: LW
authors.lastname: Roberts
authors.forename: Cynthia M A
authors.initials: CM
authors.lastname: Geppert
authors.forename: Teddy D
authors.initials: TD
authors.lastname: Warner
authors.forename: Katherine A
authors.initials: KA
authors.lastname: Green Hammond
authors.forename: Melinda
authors.initials: M
authors.lastname: Rogers
authors.forename: Julienne
authors.initials: J
authors.lastname: Smrcka
authors.forename: Brian B
authors.initials: BB
authors.lastname: Roberts
mesh_terms: D000328:Adult; D001294:Attitude to Health; D030881:Disclosure; D005260:Female; D030661:Genetic Privacy / Q000523:psychology*; D005820:Genetic Testing / Q000523:psychology; D006801:Humans; D007343:Insurance Carriers; D008297:Male; D016347:Medical Records Systems, Computerized; D011795:Surveys and Questionnaires; D017132:Workplace