title: [Implementation of the unified model of presenting cancer diagnosis in Polish pediatric onco-hematology centers].
abstract: Presentation of full information related to diagnosis of children with cancer should be one of principles in pediatric oncology. Multidisciplinary approach to each newly diagnosed child and its parents contributes to improving this standard. The Polish Pediatric Leukemia and Lymphoma Group is engaged in these activities since 1998 and it resulted in implementation of several SIOP recommendations in most of Polish pediatric oncohematology centers. The unified model of presentation of diagnosis for a child, parents and family was of an importance and the efforts to introduce it in all cooperating centers was undertaken. Proposed model of informing consists of several steps. Procedure should be individually tailored according to natural history of the disease and characteristics of the family. The purpose of the study was to evaluate the informing procedure in 60 children with newly diagnosed neoplasmatic disease.
authors.affiliation: Klinika Hematologii i Onkologii Dzieciecej Akademii Medycznej, Lublin. psychonk@dsk.lublin.pl
authors.forename: Marzena
authors.initials: M
authors.lastname: Samardakiewicz
authors.forename: Jerzy R
authors.initials: JR
authors.lastname: Kowalczyk
authors.forename: Mieczysława
authors.initials: M
authors.lastname: Mazurowa
authors.forename: Waldemar
authors.initials: W
authors.lastname: Budziński
authors.forename: Małgorzata
authors.initials: M
authors.lastname: Antonowicz
authors.forename: Anna
authors.initials: A
authors.lastname: Borysławska
authors.forename: Elzbieta
authors.initials: E
authors.lastname: Szweda
authors.forename: Anna
authors.initials: A
authors.lastname: Groth
authors.forename: Małgorzata
authors.initials: M
authors.lastname: Pyka
authors.forename: Martyna
authors.initials: M
authors.lastname: Figurska
authors.forename: Alicja
authors.initials: A
authors.lastname: Chybicka
authors.forename: Roma
authors.initials: R
authors.lastname: Rokicka-Milewska
authors.forename: Michał
authors.initials: M
authors.lastname: Matysiak
authors.forename: Walentyna
authors.initials: W
authors.lastname: Balwierz
authors.forename: Danuta
authors.initials: D
authors.lastname: Sońta-Jakimczyk
authors.forename: Anna
authors.initials: A
authors.lastname: Balcerska
authors.forename: Jacek
authors.initials: J
authors.lastname: Wachowiak
mesh_terms: D000223:Adaptation, Psychological; D000293:Adolescent; D002173:Cancer Care Facilities / Q000592:standards*; D002648:Child; D005260:Female; D006405:Hematology / Q000592:standards; D006801:Humans; D033183:Interdisciplinary Communication; D008297:Male; D017146:Models, Organizational; D009369:Neoplasms / Q000175:diagnosis* / Q000523:psychology / Q000628:therapy; D016522:Oncology Service, Hospital / Q000592:standards; D010290:Parents / Q000193:education* / Q000523:psychology; D010347:Patient Care Planning / Q000458:organization & administration*; D010348:Patient Care Team / Q000458:organization & administration*; D011044:Poland; D011368:Professional-Family Relations; D011369:Professional-Patient Relations; D015397:Program Evaluation; D013315:Stress, Psychological / Q000209:etiology / Q000517:prevention & control; D014342:Truth Disclosure