'I know my body, I've lived in it all my life': therapy experiences of young people with disabilities.
Remedial surgery and other treatments are a common feature of disabled childhoods. These treatments are founded on notions of a normal:abnormal divide in which the task of health professionals is to bring such young people as close to societal concepts of normal as possible. Working with new paradigm disability and childhood research young people who are growing up with a disability have been able to contribute to our understanding from their perspectives. The young people identify the physical, social and emotional implications of remediation and identify a personal cost:benefit ratio. Questions of outcomes, definitions of success, and 'how much remediation is enough?' further complicate this. What may be perceived as a successful outcome by the health professional may not result in any functional gain for the young person. In discourses heavily influenced by health professional and parent perceptions the inclusion of the young people themselves contributes an additional dimension to our understanding.
Bricher
Gillian
G
Women's and Children's Hospital, Adelaide, South Australia.
Darbyshire
Philip
P
D000203:Activities of Daily Living; D000223:Adaptation, Psychological; D000293:Adolescent; D001294:Attitude to Health; D001315:Australia; D002648:Child; D002908:Chronic Disease / Q000523:psychology / Q000534:rehabilitation; D017281:Cost of Illness; D019988:Children with Disabilities / Q000523:psychology / Q000534:rehabilitation; D019317:Evidence-Based Medicine; D005260:Female; D017144:Focus Groups; D006801:Humans; D008297:Male; D015404:Nursing Methodology Research; D000297:Psychology, Adolescent; D002666:Psychology, Child; D011788:Quality of Life; D013165:Splints / Q000009:adverse effects; D011795:Surveys and Questionnaires; D016896:Treatment Outcome; D035502:Trust