title: Availability of caregiver support services: implications for implementation of the National Family Caregiver Support Program.
abstract: This study examines the scope and range of existing resources for family caregivers from the perspective of the Area Agencies on Aging (AAAs), which are charged with implementing Title III-E of the reauthorized Older Americans Act. California is used as a case example because of its substantial experience in providing caregiver support services. In particular, we examine the extent and adequacy of resources available in California corresponding to each of the five Title III-E service areas, utilizing data from AAAArea Plans, a follow-up survey of AAAs, and an Internet search. AAAs identified more than 276 providers of caregiver support services, and our Internet search identified another 195. Nearly two-thirds of these programs offer access to respite care, while other support services (e.g., counseling, training, support groups) are less often available. Service gaps most frequently identified included culturally and linguistically appropriate caregiver services, transportation, respite care, financial assistance, and services in rural areas. These findings suggest the need for enhanced efforts to improve the service network for supporting family caregivers, as states implement the National Family Caregiver Support Program.
authors.affiliation: Center for the Advanced Study of Aging Services, University of California, Berkeley, CA 94720, USA.
authors.forename: Stephanie
authors.initials: S
authors.lastname: Whittier
authors.forename: Andrew E
authors.initials: AE
authors.lastname: Scharlach
authors.forename: Teresa S
authors.initials: TS
authors.lastname: Dal Santo
mesh_terms: D000368:Aged; D002140:California; D017028:Caregivers / Q000331:legislation & jurisprudence / Q000458:organization & administration*; D005190:Family; D006291:Health Policy / Q000331:legislation & jurisprudence; D006297:Health Services Accessibility / Q000331:legislation & jurisprudence / Q000458:organization & administration; D006299:Health Services for the Aged / Q000331:legislation & jurisprudence / Q000458:organization & administration; D006801:Humans; D008134:Long-Term Care; D020380:Needs Assessment; D012144:Respite Care