title: Outcome of operated and unoperated adults with congenital cardiac disease lost to follow-up for more than five years.
abstract: Many patients with congenital cardiac disease need a regular cardiologic follow-up (FU) even after successful primary treatment. Nevertheless, many of them are lost to FU. The present study verifies for the first time the outcome of adults with congenital cardiac disease lost to FU of a specialized institution for >5 years.
authors.affiliation: Klinik für Kinderkardiologie und angeborene Herzfehler, Deutsches Herzzentrum München, Klinik an der Technischen Universität München, München, Germany.
authors.forename: Annette
authors.initials: A
authors.lastname: Wacker
authors.forename: Harald
authors.initials: H
authors.lastname: Kaemmerer
authors.forename: Regina
authors.initials: R
authors.lastname: Hollweck
authors.forename: Michael
authors.initials: M
authors.lastname: Hauser
authors.forename: Marc Andre
authors.initials: MA
authors.lastname: Deutsch
authors.forename: Silke
authors.initials: S
authors.lastname: Brodherr-Heberlein
authors.forename: Andreas
authors.initials: A
authors.lastname: Eicken
authors.forename: John
authors.initials: J
authors.lastname: Hess
mesh_terms: D000203:Activities of Daily Living / Q000145:classification; D000293:Adolescent; D000328:Adult; D000368:Aged; D005260:Female; D005500:Follow-Up Studies; D005858:Germany; D006330:Heart Defects, Congenital / Q000401:mortality / Q000601:surgery*; D006801:Humans; D008297:Male; D008875:Middle Aged; D017063:Outcome Assessment, Health Care; D011183:Postoperative Complications / Q000209:etiology* / Q000401:mortality; D011788:Quality of Life; D012803:Sick Role; D013177:Sports; D011795:Surveys and Questionnaires; D014938:Work Capacity Evaluation