title: A comparison of prospective and retrospective evaluations of the Systemic Lupus International Collaborating Clinics/American College of Rheumatology Damage Index for systemic lupus erythematosus.
abstract: OBJECTIVE
  To evaluate the comparability of prospective and retrospective evaluations of the Systemic Lupus International Collaborating Clinics/American College of Rheumatology Damage Index (SLICC/ACR DI).
  
  
  METHODS
  Consecutive patients meeting ACR criteria for SLE were enrolled prospectively in our cohort. Prospective SLICC/ACR DI scores were collected on the 134 cohort members who were observed in the cohort between 1993-1999. The last available prospective SLICC/ACR DI scores were compared to scores that were retrospectively assigned (for the corresponding time point) from chart review by a research nurse blinded to the prospective values. Intra- and inter-observer agreement was assessed. Kappa coefficients with 95% confidence intervals (CI) were determined.
  
  
  RESULTS
  The kappa correlation coefficient for agreement between prospective versus retrospective total damage scores was 0.68 (95% CI 0.54-0.81). Moderate to very good agreement was also observed with respect to the 12 individual organ systems itemized in this damage index. Substantial agreement was found between assessments done by different research nurses and for repeat assessments done by the same research nurse.
  
  
  CONCLUSIONS
  These data suggest good agreement between prospective and retrospective evaluations of the SLICC/ACR DI scores.
authors.affiliation: Division of Clinical Epidemiology, Montreal General Hospital Research Institute, Montreal, Quebec, Canada.
authors.forename: Sasha
authors.initials: S
authors.lastname: Bernatsky
authors.forename: Ann
authors.initials: A
authors.lastname: Clarke
authors.forename: Michal
authors.initials: M
authors.lastname: Abrahamowicz
authors.forename: Carolyn
authors.initials: C
authors.lastname: Neville
authors.forename: Igor
authors.initials: I
authors.lastname: Karp
authors.forename: Christian A
authors.initials: CA
authors.lastname: Pineau
mesh_terms: D000328:Adult; D005260:Female; D006305:Health Status Indicators; D006801:Humans; D008180:Lupus Erythematosus, Systemic / Q000503:physiopathology*; D008297:Male; D008875:Middle Aged; D015588:Observer Variation; D011446:Prospective Studies; D012189:Retrospective Studies; D012720:Severity of Illness Index