title: Proxy consent in neonatal care--goal-directed or procedure-specific?
abstract: The prescription of practice guidelines for consent in neonatal care that are appropriate for all interventions faces substantial problems. Current practice varies widely. Consent in neonatal care is compromised by postnatal constraints on information sharing and decision-making. Empirical research shows marked individual and cultural variation in the degree to which parents want to contribute to decision-making on behalf of their infants. Conflict between the parents' wishes and the infant's best interests could arise if consent for a recommended intervention were refused, and parental refusal of consent may have to be overridden. Consent to an appropriate package of care (such as special, intensive or palliative care) may be morally preferable to a universal requirement to seek consent for all individual interventions entailed by that package.
authors.affiliation: Wirral Hospital, Arrowe Park, Wirral, Merseyside CH49 5PE. donal.manning@whnt.nhs.uk
authors.forename: Donal
authors.initials: D
authors.lastname: Manning
mesh_terms: D003466:Cultural Characteristics; D003657:Decision Making; D034462:Dissent and Disputes; D006801:Humans; D007224:Infant Care / Q000941:ethics / Q000331:legislation & jurisprudence*; D007231:Infant, Newborn; D015931:Intensive Care, Neonatal / Q000941:ethics / Q000331:legislation & jurisprudence; D010166:Palliative Care / Q000941:ethics / Q000331:legislation & jurisprudence; D033282:Parental Consent; D010290:Parents / Q000523:psychology*; D011181:Postnatal Care; D011368:Professional-Family Relations; D019727:Proxy / Q000331:legislation & jurisprudence; D014342:Truth Disclosure; D006113:United Kingdom