Surgical outcomes in congenital heart disease: expectations and realities.
The past 50 years of congenital heart surgery has produced enormous progress. Current results surpass expectations. Yet there are important residual problems in patients growing up after heart surgery for congenital heart disease. Our system of care must evolve to care for these people throughout their lives. The evolution of congenital heart surgery has reached a point in time when we should extend care to patients in under serviced emerging countries. Development of local expertise will be required within those countries that are willing to commit resources to an organized program of caring for people with congenital heart disease. Database technology is an essential tool for ensuring and improving quality of care in every congenital heart centre. Both Registry and Academic databases have much to offer in improving care for future patients. Yet overzealous privacy laws threaten the knowledge base provided by computerized databases. We need to guide our legislators in ensuring that the valuable resource provided by database technology is not lost.
Williams
William G
WG
Hospital for Sick Children and The Toronto General Hospital, University of Toronto, No. 1525, 555 University Avenue, Toronto, Ont., Canada M5G 1X8. bill.williams@sickkids.ca
D003219:Confidentiality; D016208:Databases, Factual; D006330:Heart Defects, Congenital / Q000601:surgery*; D006801:Humans; D007231:Infant, Newborn; D007391:International Cooperation; D011788:Quality of Life; D012042:Registries; D017741:Survivors; D016896:Treatment Outcome