Community-driven Native American cancer survivors' quality of life research priorities.
BACKGROUND
This commentary summarizes quality of life (QOL) research priorities gleaned from three sources: (1) Native survivors who are participating as working group members to develop QOL education modules, (2) enrolled members of the "National Native American Cancer Survivors' Support Network," and (3) participants of the "1st National Native American Cancer Survivors'/Thrivers' Conference."


METHODS
Criteria for including issues within this summary are that the issue was raised by 8 or more different survivors from at least 2 of the data collection sources.


RESULTS
The research priorities identified insufficient or lack of access to quality care and resources.


CONCLUSIONS
Nine research issues were prioritized by Native cancer survivors.
Burhansstipanov
Linda
L
Native Amerivcan Cancer Research Corp., CO 80470-7830, USA. lindab@natamcancer.org
D002055:Burnout, Professional / Q000517:prevention & control; D017028:Caregivers / Q000523:psychology; D003256:Community Participation / Q000379:methods*; D003466:Cultural Characteristics; D006297:Health Services Accessibility / Q000458:organization & administration; D006302:Health Services Research / Q000458:organization & administration*; D006801:Humans; D007198:Indians, North American; D008519:Medicine, Traditional; D009369:Neoplasms / Q000150:complications / Q000208:ethnology* / Q000628:therapy; D010146:Pain / Q000208:ethnology / Q000209:etiology; D059408:Pain Management; D010166:Palliative Care / Q000458:organization & administration; D011787:Quality of Health Care / Q000458:organization & administration; D011788:Quality of Life; D017741:Survivors