Community-building versus career-building research: the challenges, risks, and responsibilities of conducting research with Aboriginal and Native American communities.
BACKGROUND
The Aboriginal Women's Cancer Care Project used a participatory research model guided by an Aboriginal advisory group.


METHODS
The researchers attempted to conduct cancer research with 5 culturally and geographically different communities in North America.


RESULTS
We discuss the challenges of conducting ethical research in keeping with the emergent research principles of community ownership and control of the research process and products.


CONCLUSIONS
Although there are many perils for researchers and communities in conducting participatory research, clearer practice guidelines will ensure that research in Aboriginal communities will increasingly prioritize community- versus career-building outcomes.
Mitchell
Terry Leigh
TL
Native American Cancer Research, Pine, CO 80470-7830, USA.
Baker
Emerance
E
D035843:Biomedical Research / Q000941:ethics* / Q000379:methods*; D001943:Breast Neoplasms / Q000208:ethnology*; D002170:Canada; D003256:Community Participation / Q000379:methods*; D003159:Community-Institutional Relations; D003466:Cultural Characteristics; D005260:Female; D005833:Genital Neoplasms, Female / Q000208:ethnology*; D006801:Humans; D007198:Indians, North American; D004930:Inuit; D018579:Patient Selection / Q000941:ethics; D014481:United States