Sample genetic policy language for research conducted with native communities.
BACKGROUND
[corrected] We have been repeatedly asked to clarify genetic issues that have cultural ramifications for Native communities.


METHODS
In the following commentary, we explain selected genetic issues that may vary among tribal nations; nonetheless, scientists should allocate sufficient time to meet with the tribal leaders and/or members of the tribal institutional review board prior to designing a genetic study to learn how selected issues are perceived by that specific tribal nation.


RESULTS
Tribal nations generally encourage and mandate community-based participatory research methodology.


CONCLUSIONS
We have included in this commentary draft language for study protocols to support researchers and tribal nations when developing studies pertaining to genetic issues.
Burhansstipanov
Linda
L
Native American Cancer Research Corporation, Pine, CO 80470-7830, USA. LindaB@NatAmCancer.org
Bemis
Lynne
L
Kaur
Judith S
JS
Bemis
Gordon
G
D003142:Communication; D003256:Community Participation / Q000379:methods*; D003466:Cultural Characteristics; D036281:Genetic Research; D005820:Genetic Testing / Q000379:methods; D006801:Humans; D007198:Indians, North American; D007802:Language; D010330:Patents as Topic; D011050:Policy Making; D013048:Specimen Handling / Q000379:methods