title: Validation of the caregiving at life's end questionnaire.
abstract: The researchers in this study developed and validated a questionnaire to measure the needs of end-of-life (EOL) caregivers. The model is used to facilitate meaningful and supportive experiences for both the patient and caregiver The questionnaire was developed using existing scales of meaning, self-acceptance, burden, and gain as well as new scales of caregiver comfort, importance of caregiving tasks, and caregiver closure. The sample included 34 current and 17 bereaved caregivers affiliated with The Hospice Institute of the Florida Suncoast. The scales performed well in terms of concurrent validity, internal consistency, and reliability.
authors.affiliation: School of Aging Studies, Florida Policy Exchange Center on Aging, University of South Florida, Tampa, Florida, USA.
authors.forename: Jennifer R
authors.initials: JR
authors.lastname: Salmon
authors.forename: Jung
authors.initials: J
authors.lastname: Kwak
authors.forename: Kimberly D
authors.initials: KD
authors.lastname: Acquaviva
authors.forename: Kathleen A
authors.initials: KA
authors.lastname: Egan
authors.forename: Katherine
authors.initials: K
authors.lastname: Brandt
mesh_terms: D000368:Aged; D017028:Caregivers / Q000523:psychology; D005260:Female; D005431:Florida; D017051:Hospice Care / Q000523:psychology; D006801:Humans; D008016:Life Change Events; D008297:Male; D008875:Middle Aged; D017063:Outcome Assessment, Health Care / Q000379:methods; D010166:Palliative Care / Q000523:psychology; D011788:Quality of Life / Q000523:psychology; D015203:Reproducibility of Results; D013315:Stress, Psychological / Q000209:etiology; D011795:Surveys and Questionnaires / Q000592:standards*