title: Community-driven Native American cancer survivors' quality of life research priorities.
abstract: BACKGROUND
  This commentary summarizes quality of life (QOL) research priorities gleaned from three sources: (1) Native survivors who are participating as working group members to develop QOL education modules, (2) enrolled members of the "National Native American Cancer Survivors' Support Network," and (3) participants of the "1st National Native American Cancer Survivors'/Thrivers' Conference."
  
  
  METHODS
  Criteria for including issues within this summary are that the issue was raised by 8 or more different survivors from at least 2 of the data collection sources.
  
  
  RESULTS
  The research priorities identified insufficient or lack of access to quality care and resources.
  
  
  CONCLUSIONS
  Nine research issues were prioritized by Native cancer survivors.
authors.affiliation: Native Amerivcan Cancer Research Corp., CO 80470-7830, USA. lindab@natamcancer.org
authors.forename: Linda
authors.initials: L
authors.lastname: Burhansstipanov
mesh_terms: D002055:Burnout, Professional / Q000517:prevention & control; D017028:Caregivers / Q000523:psychology; D003256:Community Participation / Q000379:methods*; D003466:Cultural Characteristics; D006297:Health Services Accessibility / Q000458:organization & administration; D006302:Health Services Research / Q000458:organization & administration*; D006801:Humans; D007198:Indians, North American; D008519:Medicine, Traditional; D009369:Neoplasms / Q000150:complications / Q000208:ethnology* / Q000628:therapy; D010146:Pain / Q000208:ethnology / Q000209:etiology; D059408:Pain Management; D010166:Palliative Care / Q000458:organization & administration; D011787:Quality of Health Care / Q000458:organization & administration; D011788:Quality of Life; D017741:Survivors