title: An evaluation of the domiciliary occupational therapy service in palliative cancer care in a community trust: a patient and carers perspective.
abstract: In the past 20 years there has been considerable growth in the provision of palliative care services. The shift in emphasis from hospice and hospital care to the development of community services has been significant. This enables people to be cared for at home and is in keeping with Government agenda. While this may be beneficial for the patient and fit in with the wishes of the family, it is likely to put heavy demands on the coping resources of individual carers. The views of service users are of paramount importance when discussing service evaluation and patient, family and carer empowerment. This research presents the findings of an evaluation of the domiciliary occupational therapy service provided for patients in the palliative stage of cancer care in North and West Belfast from the perspective of the patients and carers. For the purpose of this study, the palliative stage of cancer care is defined as the point from which the patient is no longer responsive to curative treatment, until death. A sample of 30 patients and their primary informal carers were selected using purposive sampling. A structured interview was carried out with both the patients and their carers to obtain views. Results suggest that although both patients and their carers value the service provided and report high levels of satisfaction, there are gaps identified in service provision and a lack of clear information among patients and their carers about the role of the occupational therapist and the range of services they can provide. There is a need to build upon the good work being done by domiciliary occupational therapists in the area of palliative cancer care and increase education and resources to ensure that a patient-centred, holistic, approach to care is used, addressing both the needs of the patient and their carers.
authors.affiliation: Palliative Care, Iveagh Buildings, Belfast BT12 6HF, UK. paula.kealey@nwb.n-i.nhs.uk
authors.forename: P
authors.initials: P
authors.lastname: Kealey
authors.forename: I
authors.initials: I
authors.lastname: McIntyre
mesh_terms: D000203:Activities of Daily Living; D000223:Adaptation, Psychological; D000293:Adolescent; D000328:Adult; D000368:Aged; D017028:Caregivers / Q000523:psychology; D005260:Female; D006297:Health Services Accessibility / Q000458:organization & administration; D006699:Home Care Services / Q000458:organization & administration / Q000592:standards*; D006801:Humans; D008297:Male; D008875:Middle Aged; D009369:Neoplasms / Q000150:complications / Q000534:rehabilitation*; D009788:Occupational Therapy / Q000295:instrumentation; D010166:Palliative Care / Q000379:methods*; D017060:Patient Satisfaction; D011369:Professional-Patient Relations; D012919:Social Behavior