Towards a culturally acceptable end-of-life survey questionnaire: a Bengali translation of VOICES.
OBJECTIVE
To assess the cultural acceptability and appropriateness of an English end-of-life survey questionnaire translated into Bengali for use in east London.


METHODS
Group discussions with informal carers (n=3 groups) and professionals (n = l1 group).


METHODS
Informal carers within a Bengali-speaking community (n = 26) in east London participated in three groups discussions led by three community workers trained in interviewing procedures. These data were followed up with one group discussion with bilingual health and social care professionals (n = 6).


METHODS
Data subject to content analysis.


RESULTS
Participants were supportive of the development of the translated questionnaire. However, attention should be paid to vocabulary, shared meanings, cultural equivalence and the ways people conceptualize health and illness, and death and dying.


CONCLUSIONS
These findings, together with participants' views on the administration of the questionnaire, will prompt revisions to the research approach when targeting ethnic and cultural groups in the future.
Hughes
Rhidian
R
School for Policy Studies, University of Bristol, Bristol BS8 ITZ, UK. rhidian.hughes@ukonline.co.uk
Saleem
Tariq
T
Addington-Hall
Julia
J
D000328:Adult; D000368:Aged; D001459:Bangladesh / Q000208:ethnology; D017028:Caregivers; D005006:Ethnicity; D005260:Female; D019538:Health Care Surveys; D006801:Humans; D007194:India / Q000208:ethnology; D008131:London; D008297:Male; D008875:Middle Aged; D010166:Palliative Care; D011795:Surveys and Questionnaires