The European Competence Network on Mastocytosis (ECNM).
The European Competence Network on Mastocytosis (ECNM) is a Europe-wide, multinational cooperative approach attempting to improve recognition, diagnosis, and therapy of mastocytosis. The network is composed of local centers, physicians, and scientists who have dedicated their work to patients with mastocytosis. However, because of the rarity and complexity of the disease, each single component in the network alone would fail to meet important demands and to reach solid conclusions in this field of applied medicine. The ECNM represents an attempt to overcome this restriction as a cooperative multicenter platform that should serve as an important basis for the development of new therapeutic strategies and diagnostic concepts, and for the standardization of techniques used to determine diagnostic and prognostic parameters. Moreover, using future central databases and registries, a suitable infrastructure for the development of co-operative multicenter clinical trials will be established. In addition, the ECNM is dedicated to provide the best available information about the disease to patients and physicians.
Valent
Peter
P
Division of Hematology and Hemostaseology, Department of Internal Medicine I, Medical University of Vienna, Austria. peter.valent@meduniwien.ac.at
Arock
Michel
M
Bischoff
Stephan C
SC
Bühring
Hans-Jörg
HJ
Brockow
Knut
K
Escribano
Luis
L
Födinger
Manuela
M
Grabbe
Jürgen
J
Hartmann
Karin
K
Henz
Beate M
BM
Horny
Hans-Peter
HP
Kluin-Nelemans
Hanneke C
HC
Lima
Margarida
M
Marone
Gianni
G
Orfao
Alberto
A
Parwaresch
Reza M
RM
Sillaber
Christian
C
Sotlar
Karl
K
Sperr
Wolfgang R
WR
Triggiani
Massimo
M
Van Doormaal
Jaap J
JJ
Wolff
Klaus
K
Zuberbier
Torsten
T
D002983:Clinical Competence / Q000592:standards*; D003245:Consensus Statements as Topic; D005060:Europe; D006801:Humans; D007255:Information Services / Q000458:organization & administration*; D007391:International Cooperation; D008407:Mast Cells; D008415:Mastocytosis / Q000175:diagnosis* / Q000628:therapy*; D015337:Multicenter Studies as Topic; D016032:Randomized Controlled Trials as Topic; D012015:Reference Standards; D012017:Referral and Consultation / Q000592:standards; D012106:Research