title: Consulting the "experts": a pilot study on perceptions of professional support among lung transplant recipients and accompanying relatives.
abstract: BACKGROUND
  Lung transplantation is extremely stressful for patients and accompanying support persons.
  
  
  OBJECTIVE
  To improve delivery of care, we designed a cross-sectional study about unmet needs and perceived helpfulness of staff.
  
  
  METHODS
  The sample consisted of 30 adult lung transplant recipients with cystic fibrosis (and 22 relatives) and 20 age-matched recipients with other reasons for transplantation (and 17 relatives). Mean survival since transplantation was 5 years. Data were collected via questionnaires (numerical rating scales and fill-in-the-blank items).
  
  
  RESULTS
  Most patients in both groups were satisfied with staff support (nurse, doctor) especially during the acute stage of illness. Relatives were less satisfied at all stages. Patients' satisfaction with doctors' support was higher after than before transplantation, but the opposite was true for relatives. Insufficient continuity of care was the most frequent critical comment from patients and support persons. Recommendations to improve delivery of care included providing access to psychosocial professionals and broadening the information provided before transplantation.
  
  
  CONCLUSIONS
  Regular screening of customer satisfaction should become routine. Particular attention should be paid to support persons.
authors: Department of Pediatric Pulmonology and Neonatology, Hannover Medical School, Hannover, Germany.
authors: Gerald
authors: G
authors: Ullrich
authors: Heyka
authors: H
authors: Jänsch
authors: Sandra
authors: S
authors: Schmidt
authors: Martin
authors: M
authors: Strüber
authors: Jost
authors: J
authors: Niedermeyer
mesh_terms: D000328:Adult; D001294:Attitude to Health; D016022:Case-Control Studies; D002983:Clinical Competence / Q000592:standards*; D003142:Communication; D003266:Continuity of Patient Care / Q000592:standards; D003430:Cross-Sectional Studies; D003550:Cystic Fibrosis / Q000523:psychology / Q000601:surgery; D005190:Family / Q000523:psychology*; D005260:Female; D005858:Germany; D019538:Health Care Surveys; D006297:Health Services Accessibility / Q000592:standards; D006379:Helping Behavior; D006801:Humans; D016040:Lung Transplantation / Q000009:adverse effects / Q000523:psychology*; D008297:Male; D020380:Needs Assessment; D010353:Patient Education as Topic / Q000592:standards; D018802:Patient-Centered Care / Q000592:standards; D010865:Pilot Projects; D011369:Professional-Patient Relations; D012944:Social Support; D013315:Stress, Psychological / Q000209:etiology / Q000517:prevention & control / Q000523:psychology; D011795:Surveys and Questionnaires