The incubation of a social movement? Preterm babies, parent activists, and neonatal productions in the US context.
This article explores health-based activism on the part of the US 'parents of preemies' movement, a mutual-help network mobilized around babies born precariously early and acutely dependent upon life-support incubators. The movement articulates two meta-agendas for parental empowerment: (1) the quest to access/exercise greater participatory inclusivity vis-à-vis the preterm baby within the biomedical domain; and, (2) the quest to secure/command greater representational authority over the preterm baby within the public domain. Seen in terms of the erosion of the status quo, it can be argued that the movement's tangible and intangible aims to chip away at these traditions have been softly revolutionary: heralding new working partnerships between medical practitioners and patients' families; radical shifts in the technological consciousness and competences of preemie parents; and cyborg changes in conventional categories of the person. Yet, seen in terms of a normative order of things, it can be argued that the movement has largely and willingly been "co/operated": meaning that it has been "cooperative," but equally "co-opted" and "operated into" the disciplinary trajectory of neonatal medicine as well as the historical march of biopolitics with its governance of the collective body populous. From this critical perspective, the movement qua social movement thus itself might be considered incubated--cocooned, gestated, disciplined--and brought into existence by the very powers and hegemonic (patriarchal) machinery that viable resistance might struggle to govern instead of serve.
Landzelius
Kyra
K
Department of Science and Technology Studies, Gothenburg University, Box 510, 405 30 Gothenburg, Sweden. kyra_landzelius@yahoo.com
D000328:Adult; D003256:Community Participation; D006801:Humans; D007231:Infant, Newborn; D007234:Infant, Premature; D015931:Intensive Care, Neonatal; D009359:Neonatology / Q000639:trends*; D010290:Parents / Q000523:psychology*; D010344:Patient Advocacy / Q000639:trends*; D011209:Power, Psychological; D011368:Professional-Family Relations; D012922:Social Change; D012962:Sociology, Medical / Q000639:trends*; D014481:United States