title: Fertility- and menopause-related information needs of younger women with a diagnosis of early breast cancer.
abstract: OBJECTIVE
  The use of chemotherapy and endocrine therapies in the treatment of premenopausal women carries with it reproductive and gynecologic implications that young women may find distressing and discordant with plans for childbearing. This multicenter study aimed to investigate fertility- and menopause-related information needs among young women with a diagnosis of early-stage breast cancer.
  
  
  METHODS
  Two hundred twenty-eight women with a diagnosis of early-stage breast cancer who were aged 40 years or younger at diagnosis and who were 6 to 60 months after diagnosis were entered onto the trial. Participants completed a mailed self-report questionnaire that included a purposely designed fertility- and menopause-related information needs survey and standardized measures of distress, anxiety, quality of life, menopausal symptoms, and information-seeking style.
  
  
  RESULTS
  Seventy-one percent of participants discussed fertility-related issues with a health professional as part of their breast cancer treatment, and 86% discussed menopause-related issues. Consultation with a fertility or menopause specialist was the most preferred method of obtaining this information. Receiving fertility-related information was rated as being significantly more important than receiving menopause-related information at time of diagnosis (P < .001) and at treatment decision making (P = .058). Receiving menopause-related information was rated as being significantly more important than receiving fertility-related information during adjuvant treatment (P < .05), at completion of adjuvant treatment (P < .001), and during follow-up (P < .001). Common questions, sources of information, and correlates of perceived importance were identified.
  
  
  CONCLUSIONS
  The results of this study suggest that younger women have unmet needs for fertility- and menopause-related information and provide preliminary empirical data to guide the development of better fertility- and menopause-related patient education materials for younger women with a diagnosis of early breast cancer.
authors.affiliation: Department of Medical Oncology, Prince of Wales Hospital, Randwick, New South Wales 2031, Australia. b.thewes@unsw.edu.au
authors.forename: B
authors.initials: B
authors.lastname: Thewes
authors.forename: B
authors.initials: B
authors.lastname: Meiser
authors.forename: A
authors.initials: A
authors.lastname: Taylor
authors.forename: K A
authors.initials: KA
authors.lastname: Phillips
authors.forename: S
authors.initials: S
authors.lastname: Pendlebury
authors.forename: A
authors.initials: A
authors.lastname: Capp
authors.forename: D
authors.initials: D
authors.lastname: Dalley
authors.forename: D
authors.initials: D
authors.lastname: Goldstein
authors.forename: R
authors.initials: R
authors.lastname: Baber
authors.forename: M L
authors.initials: ML
authors.lastname: Friedlander
mesh_terms: D000328:Adult; D017668:Age of Onset; D001943:Breast Neoplasms / Q000150:complications* / Q000523:psychology / Q000628:therapy*; D005260:Female; D005298:Fertility; D019538:Health Care Surveys; D006801:Humans; D008593:Menopause; D020380:Needs Assessment; D009367:Neoplasm Staging; D010353:Patient Education as Topic; D011788:Quality of Life; D013315:Stress, Psychological