Paediatric cochlear implantation: the views of parents.
The purpose of this study was to understand the parental perspective on paediatric cochlear implantation over time. Face-to-face semi-structured interviews were conducted with 216 families of children who were implanted at the Nottingham Paediatric Cochlear Implant Programme between 1989 and 2002, and who were attending an appointment during the study period (July 2001 August 2002). The qualitative data revealed that time played an important role in family experiences of paediatric cochlear implantation. Expectations were continually revised throughout the process, as a result of new knowledge and new technological developments. The results show that outcomes are highly individualistic although parents had a shared hope of the implant enabling the child to function in a "hearing world"; that the biggest area of contention is in respect of their child's education; and that parents talked openly about constraints imposed on them by implantation. The vast majority of parents did not regret their decision to proceed with implantation.
Sach
Tracey H
TH
School of Community Health Sciences, University of Nottingham, Nottingham, UK. tracey.sach@nottingham.ac.uk
Whynes
David K
DK
D000328:Adult; D002648:Child; D002675:Child, Preschool; D003054:Cochlear Implants / Q000523:psychology*; D003638:Deafness / Q000523:psychology / Q000534:rehabilitation; D003657:Decision Making; D004522:Educational Status; D005190:Family / Q000523:psychology*; D005260:Female; D006801:Humans; D007223:Infant; D007407:Interviews as Topic; D008297:Male; D010290:Parents / Q000523:psychology*; D011788:Quality of Life; D016896:Treatment Outcome