title: [Retinal implants. Patients' expectations].
abstract: The "Pro Retina" Society and the "Retina Implant" Foundation, two patients associations with the goal of "preventing blindness," view the "Retina Implant" project as a possibility for providing blind individuals a modicum of restored vision. Both patients associations cultivated a cooperative relationship with researchers and policy makers already during the research phase, introducing the wishes and concerns of patients into considerations and providing information and the groundwork for acceptance in society and among those who may potentially benefit from the method. An initial survey of patients, the visually impaired, and blind people revealed that recovery of sight not only represents a medical and technical problem but that it also involves numerous psychosocial implications. By adhering to ethical standards in implantations, in particular by taking patient autonomy into consideration, anxieties and fears can be reduced. It would appear from early positive results in a short-term clinical study that soon successful chronic retinal implantation can be expected. The dedication displayed by physicians, researchers, and the industry as well as the willingness of the Federal Ministry for Research to take the risk are appreciated and greatfully accepted by the patients and their relatives.
authors.affiliation: Pro Retina Deutschland e.V., Aachen. Gusseck@t-online.de
authors.forename: H
authors.initials: H
authors.lastname: Gusseck
mesh_terms: D001766:Blindness / Q000523:psychology / Q000534:rehabilitation; D005582:Foundations; D005858:Germany; D006801:Humans; D010342:Patient Acceptance of Health Care / Q000523:psychology*; D010361:Patients / Q000523:psychology; D019736:Prostheses and Implants / Q000941:ethics; D019919:Prosthesis Implantation; D012160:Retina / Q000601:surgery; D012162:Retinal Degeneration / Q000534:rehabilitation; D012174:Retinitis Pigmentosa / Q000534:rehabilitation; D014786:Vision Disorders / Q000534:rehabilitation*