Innovative ways of responding to the information needs of people with MS.
There have been a number of studies looking into the information needs of people with multiple sclerosis (MS). All the studies have shown that people with MS want information tailored to their individual requirements, delivered in different formats and within a time-frame to suit them. This article reviews the studies and demonstrates how two neurology centres in Leeds and York have striven to meet the needs and expectations of the client group. By continuing to include service users in developments, and carrying out audits, these centres are continually aiming to improve services for people with MS, as well as responding to the recommendations in the National Institute for Clinical Excellence guidelines for MS and the recently published Department of Health "National Service Framework for Long-term Conditions".
MacLean
Rhona
R
St James' University Hospital, Leeds, UK.
Russell
Andrew
A
D001294:Attitude to Health; D004509:Education, Nursing, Continuing; D004739:England; D019983:Guideline Adherence; D006801:Humans; D007253:Information Centers / Q000458:organization & administration*; D009103:Multiple Sclerosis / Q000451:nursing / Q000517:prevention & control* / Q000523:psychology; D020380:Needs Assessment / Q000458:organization & administration*; D009720:Nurse Clinicians / Q000193:education / Q000458:organization & administration*; D024802:Nurse's Role; D015402:Nursing Education Research; D015403:Nursing Evaluation Research; D010353:Patient Education as Topic / Q000458:organization & administration*; D017410:Practice Guidelines as Topic; D011379:Prognosis; D012944:Social Support; D011795:Surveys and Questionnaires; D013997:Time Factors