title: Parental experiences of adult child death from cancer.
abstract: BACKGROUND
  Although parents experience the death of adult children diagnosed with cancer, most of the literature on adult child death has examined the issues of violent death or suicide. Where death from cancer has been studied, the focus has been mainly on psychological outcomes. Little is known about parents' experiences with this phenomenon.
  
  
  OBJECTIVE
  To understand parents' experience of having an adult child die from cancer.
  
  
  METHODS
  Descriptive-exploratory study utilizing semistructured interviews with parents of 10 adult children who had died of cancer.
  
  
  METHODS
  Parents who had lost a child to cancer were interviewed in their own home or in the interviewer's office.
  
  
  METHODS
  Interviews were recorded, transcribed, and analyzed. Latent content analysis and constant comparison techniques were used to develop coding labels, which were then classified into categories and subcategories.
  
  
  RESULTS
  Parents experienced a tension between their strong desire to "parent" their child, and their recognition that their child was an autonomous adult, sometimes with a spouse and family who took precedence over them. Parents of a dying child felt helpless, and sometimes were excluded/unacknowledged by health care professionals. To cope, they reconfigured their parent role using various strategies. After the death of their child further reconfiguring takes place, including preserving memories of the child, and talking about him/her. Continuing family and social relationships influence this stage.
  
  
  CONCLUSIONS
  The conflict of wishing to "parent" a dying adult child while recognizing the child's autonomy creates uncertainty for parents at an already stressful time. Facilitating parent-child communication during the illness is important. After the death of the adult child parents may continue to face difficulty with their perceived role in society (parent and/or bereaved person), and sometimes within their family. Health care professionals should make greater efforts to include the parents of the dying adult in the circle of care. The bereavement experience of these parents is intense and long-lasting. Further research is needed regarding the ways in which health care providers can best assist parents to successfully integrate this profound loss.
authors.affiliation: Western Health Care Corporation, Western Memorial Regional Hospital, PO Box 2005, Corner Brook, Newfoundland A2H 6J7, Canada. mdean@healthwest.nf.ca
authors.forename: Mervyn
authors.initials: M
authors.lastname: Dean
authors.forename: Susan
authors.initials: S
authors.lastname: McClement
authors.forename: John B
authors.initials: JB
authors.lastname: Bond
authors.forename: Paul J
authors.initials: PJ
authors.lastname: Daeninck
authors.forename: Fred
authors.initials: F
authors.lastname: Nelson
mesh_terms: D032721:Adult Children; D000368:Aged; D003643:Death; D005260:Female; D006801:Humans; D007407:Interviews as Topic; D008297:Male; D008350:Manitoba; D008875:Middle Aged; D009369:Neoplasms; D010290:Parents / Q000523:psychology*