title: Community integration status 4 years after traumatic brain injury: participant-proxy agreement.
abstract: OBJECTIVE
  To measure the level of agreement on community integration outcomes 4 years after traumatic brain injury (TBI) in relation to injury severity, proxy-participant relationship, and type of question.
  
  
  METHODS
  Thirty-one survivors of TBI (14 with mild TBI and 17 with moderate-severe TBI) and 31 significant other proxies.
  
  
  METHODS
  General and leisure activity scales of the Katz Adjustment Scale (KAS).
  
  
  RESULTS
  Agreement was highest between proxies and participants with mild versus moderate-severe TBIs, between spouse proxies and TBI participants compared to nonspouse proxies and on the more objective subscales (frequency of participation) compared to the expectation and satisfaction scales regardless of injury severity or proxy-participant relationship.
  
  
  CONCLUSIONS
  For research purposes, proxy data are acceptable but clinicians should assess outcomes and set goals with input from both persons with TBIs and their proxies.
authors.affiliation: Department of Psychology, University of Toronto, Ontario, Canada. ddawson@klaru-baycrest.on.ca
authors.forename: Deirdre R
authors.initials: DR
authors.lastname: Dawson
authors.forename: Michelle
authors.initials: M
authors.lastname: Markowitz
authors.forename: Donald T
authors.initials: DT
authors.lastname: Stuss
mesh_terms: D000223:Adaptation, Psychological; D000293:Adolescent; D000328:Adult; D001930:Brain Injuries / Q000175:diagnosis / Q000523:psychology* / Q000534:rehabilitation*; D003430:Cross-Sectional Studies; D004185:Disability Evaluation; D005260:Female; D006801:Humans; D015601:Injury Severity Score; D007398:Interpersonal Relations; D008297:Male; D008875:Middle Aged; D010349:Patient Compliance; D011379:Prognosis; D019727:Proxy; D018570:Risk Assessment; D018434:Sickness Impact Profile; D012917:Social Adjustment; D013997:Time Factors; D016896:Treatment Outcome