title: Caregiver attitudes towards gastrostomy removal after renal transplantation.
abstract: Gastrostomy tube (G-tube) removal has been suggested at 3 months following successful renal transplantation (Tx). We noticed a delay in the removal of G-tubes in our pediatric patients following Tx and therefore conducted a cross-sectional single center survey on all renal transplant recipients to assess the causes of delayed G-tube removal. In total, 17 of 23 patients completed the survey, including all patients with G-tubes (n = 10) and seven patients without G-tubes. Median age at Tx of gastrostomy patients was significantly lower than that of patients without a G-tube (median 3.0 yr, range 1.2-4.7 yr vs. median 14 yr, range 6-17 yr, p < 0.0001) and significantly younger than in previous studies on gastrostomies. At the time of the survey, only three of 10 patients had their G-tube removed at 22, 41 and 61 months after Tx at the ages of 3, 5.5 and 9 yr, respectively. The median age at recent follow up of the remaining seven patients was 4.7 yr (range 2.6-8.75 yr). The most important reason for continued use was fluid intake and medication. Results of our survey showed appropriate concern regarding the risk of prolonged use of the gastrostomy. Caregivers felt that benefits of the gastrostomy in the post-transplant period outweighed the risks. Caregivers felt pressured towards removal by the physicians. Our findings support the decision to remove gastrostomies based on individual patient needs and total fluid intake rather than a fixed time following successful Tx.
authors.affiliation: Divisions of Nephrology, Department of Pediatrics, Children's Hospital of Eastern Ontario, Ottawa, Ontario, Canada.
authors.forename: Hubert
authors.initials: H
authors.lastname: Wong
authors.forename: Kyle
authors.initials: K
authors.lastname: Mylrea
authors.forename: Angela
authors.initials: A
authors.lastname: Cameron
authors.forename: Ian
authors.initials: I
authors.lastname: Manion
authors.forename: Juan
authors.initials: J
authors.lastname: Bass
authors.forename: Janusz
authors.initials: J
authors.lastname: Feber
authors.forename: Guido
authors.initials: G
authors.lastname: Filler
mesh_terms: D000293:Adolescent; D001290:Attitude; D017028:Caregivers / Q000523:psychology*; D002648:Child; D002675:Child, Preschool; D020878:Device Removal; D004750:Enteral Nutrition / Q000523:psychology; D005190:Family / Q000523:psychology*; D005774:Gastrostomy / Q000523:psychology*; D006801:Humans; D007223:Infant; D016030:Kidney Transplantation