title: Living donation: focus on public concerns.
abstract: In December 2002, a conference was held in Philadelphia to discuss public concerns about living organ transplantation with the goal of reaching a consensus about new strategies for such transplants. The conference was hosted by the Hospital of the University of Pennsylvania and the Center for Bioethics. A multidisciplinary group of leading experts and stakeholders was called to assess the current status of living donation and suggest productive changes to ensure safer and more ethically sound procedures for both donors and recipients. Prior to the meeting, the research team from the University of Pennsylvania, Center for Bioethics, conducted literature reviews and extensive background research on living organ transplantation. Summary briefs were prepared for all conference participants. Issues were divided into four subcategories; two or three experts led the discussion on each topic. At the conclusion of the conference, the points raised were summarized and discussed, and additional comments were offered before general agreement was reached on each subject. Transcribed minutes and summary statements were reviewed and circulated among participants to allow for additional comments and clarification. All feedback was incorporated into the statement, and a draft of the article was recirculated. Participants who have endorsed the following statements have agreed that these points represent the intent and spirit of the discussion, yet each participant reserves the right to disclaim the document in its entirety. The views represented in the consensus points are held by members of the consensus group and do not necessarily represent the views of the sponsor. A consensus was reached to propose new strategies and make improvements on existing practices and protocols. Specific attention was paid to the widely accepted needs of consistent and responsible communication with the public and press, standardization in donor assessment, a national living donor registry and new research focusing on larger sample numbers and long-term donor follow-up. These consensus points support the work carried out by other advisory transplant organizations and should assist in advocating for living organ donors, the live donor transplant process and the concerns of the public.
authors.affiliation: Center for Bioethics, University of Pennsylvania, Philadelphia, PA 19104, USA. sheldonz@mail.med.upenn.edu
authors.forename: Sheldon
authors.initials: S
authors.lastname: Zink
authors.forename: Robert
authors.initials: R
authors.lastname: Weinreib
authors.forename: Thalia
authors.initials: T
authors.lastname: Sparling
authors.forename: Arthur L
authors.initials: AL
authors.lastname: Caplan
mesh_terms: D003226:Congresses as Topic; D032921:Consensus; D006801:Humans; D007258:Informed Consent / Q000941:ethics*; D019520:Living Donors / Q000941:ethics*; D015143:Philadelphia; D014850:Waiting Lists