title: Professionals' views on the issues and challenges arising from providing a fertility preservation service through sperm banking to teenage males with cancer.
abstract: Interviews were undertaken with 22 health and social work professionals. Their analysis was completed using "selective transcription", noting understanding of process, issues and themes, and building a picture against which to consider the analysis of subsequent interviews with teenagers and parents. Professionals were also asked to identify areas for feedback from these participants. This work was part of a larger study of (i) the perceptions of adolescent males and their parents of fertility preservation services following a cancer diagnosis, and (ii) national postal surveys of common practices, areas of variance and issues experienced by professionals in UK regional paediatric oncology centres and licensed assisted conception centres. A large number of concerns were identified, which reflected professionals' difficulties in building and maintaining a relevant, adequate knowledge and skills base given the limited numbers of teenagers offered this service. The lack of appropriate training about the legal and consent frameworks, and the processes involved was also highlighted across all professional groups as was the confusion around professional and legal responsibilities for follow up. Thus, there was considerable professional uncertainty in a number of aspects of this sensitive area of service provision. Consideration needs to be given to the needs for national guidance, for training, support and updating, for liaison between the different health and social care sectors that may be involved, and for appropriate information systems. These need to be in place for each stage of the process, from diagnosis through to eventual discharge from the health system.
authors.affiliation: Department of Social Policy & Social Work University of York, York, UK. mac7@york.ac.uk
authors.forename: Marilyn
authors.initials: M
authors.lastname: Crawshaw
authors.forename: Adam
authors.initials: A
authors.lastname: Glaser
authors.forename: Juliet
authors.initials: J
authors.lastname: Hale
authors.forename: Patricia
authors.initials: P
authors.lastname: Sloper
mesh_terms: D000293:Adolescent; D003376:Counseling; D006801:Humans; D007258:Informed Consent; D008297:Male; D009369:Neoplasms / Q000628:therapy*; D010290:Parents; D012662:Semen Preservation; D006113:United Kingdom