title: Hereditary neuromuscular disease and multicomposite subjective health status: feasibility, internal consistency and test-retest reliability in the French version of the Nottingham Health Profile, the ISPN.
abstract: OBJECTIVE
  To evaluate the feasibility, internal consistency and reproducibility of the French version of the Nottingham Health Profile (NHP) completed by adults with hereditary neuromuscular disease.
  
  
  METHODS
  Cross-sectional study with evaluation at 15 +/- 7 days for NHP test-retest.
  
  
  METHODS
  Multidisciplinary rehabilitation consultations in Reims.
  
  
  METHODS
  Sixty-four neuromuscular disease outpatients completed the NHP consecutively between April 2002 and December 2003.
  
  
  METHODS
  French version of the Nottingham Health Profile (NHP), Barthel Index and sociodemographic characteristics.
  
  
  RESULTS
  The average completion percentages for the different dimensions was 84.2% (range 72-97%). With respect to the completion feasibility of the physical mobility subscale, 7-20% of neuromuscular disease patients failed to complete four items out of eight. In the pain subscale, the same difficulty was encountered for three items out of eight. Internal consistency as assessed by Cronbach's alpha was acceptable for the subscales physical mobility (0.88), emotional reaction (0.74), sleep (0.77), and pain (0.81); it was less reliable for the subscale social isolation (0.61), and poor for the subscale energy (0.47). Test-retest agreement measured by intraclass correlation coefficient was in all instances greater than 0.70.
  
  
  CONCLUSIONS
  Some items in the pain and physical mobility subscales pose problems related to the relevance of the wording for patients confined to wheelchairs. Recoding of the measure makes it possible to avoid missing data from these dependent patients. Scores differ statistically according to the coding used. In study reports, details of such procedures should be provided for comparison of ISPN results with those from other studies in the literature.
authors.affiliation: Department of Physical Medicine and Rehabilitation, Sébastopol Hospital, Reims, France. fboyer@chu-reims.fr
authors.forename: F
authors.initials: F
authors.lastname: Boyer
authors.forename: J L
authors.initials: JL
authors.lastname: Novella
authors.forename: S
authors.initials: S
authors.lastname: Bertaud
authors.forename: F
authors.initials: F
authors.lastname: Delmer
authors.forename: B
authors.initials: B
authors.lastname: Vesselle
authors.forename: J C
authors.initials: JC
authors.lastname: Etienne
mesh_terms: D000293:Adolescent; D000328:Adult; D000368:Aged; D003430:Cross-Sectional Studies; D006233:Persons with Disabilities; D005240:Feasibility Studies; D005260:Female; D005602:France; D006304:Health Status; D006801:Humans; D007803:Language Arts; D008297:Male; D008875:Middle Aged; D051346:Mobility Limitation; D009468:Neuromuscular Diseases / Q000503:physiopathology*; D010147:Pain Measurement; D015203:Reproducibility of Results; D011795:Surveys and Questionnaires; D014910:Wheelchairs