Parental perspectives on hospital staff members' acts of kindness and commemoration after a child's death.
OBJECTIVE
Acts of kindness and commemoration by staff members often follow the death of a patient. Acts include attending funerals, sending sympathy cards, sending cards on birthdays/anniversaries, telephoning/visiting family homes, and attending memorial services. This study explores the significance of these acts for bereaved parents.


METHODS
Twelve parents whose children died in the ICU of a tertiary care pediatric hospital were interviewed, to explore their experiences of the death. Investigators reviewed transcripts and observational field notes. Multidisciplinary team triangulation was used to corroborate themes, with cross-case analysis.


RESULTS
Three themes emerged regarding parental experiences of staff members' acts, ie, (1) parents placed great importance on the hospital's memorial service and on staff members' presence at the service; (2) parents found it difficult to return to the hospital after the child's death but all attended the memorial service, finding some closure in the return; and (3) parents appreciated receiving cards and greatly valued staff members' efforts to telephone/visit and to attend the funeral. Months later, parents remembered positively which staff members engaged in which activities. Conversely, parents expressed disappointment when staff members did not engage in these activities and/or were absent from memorial/funeral services.


CONCLUSIONS
Efforts to support families and to commemorate deceased children are appreciated by bereaved parents. Staff members' absences at commemorative events and a lack of supportive acts are noticed and regretted by families. Staff members and program administrators should attempt to arrange workloads to ensure meaningful contact between staff members and parents during the bereavement period.
Macdonald
Mary Ellen
ME
Pediatric Palliative Care Program, Montreal Children's Hospital, McGill University Health Centre, Montreal, Quebec, Canada. mary.macdonald@elf.mcgill.ca
Liben
Stephen
S
Carnevale
Franco A
FA
Rennick
Janet E
JE
Wolf
Susan L
SL
Meloche
Donald
D
Cohen
S Robin
SR
D001601:Bereavement; D002648:Child; D003643:Death; D006776:Hospitals, Pediatric; D006801:Humans; D015278:Intensive Care Units, Pediatric; D010290:Parents / Q000523:psychology*; D010564:Personnel, Hospital; D011368:Professional-Family Relations; D012944:Social Support