title: Parental experience of family stress during hematopoietic stem cell transplantation of pediatric patients in germ-free isolation in Taiwan.
abstract: This qualitative inquiry study used convenience sampling through in-depth interviews to obtain life experiences and feelings of parents while their children underwent hematopoietic stem cell transplantation. Eleven parents of children younger than 18 years undergoing hematopoietic stem cell transplantation in a medical center in north Taiwan consented to participate in this study and provide oral and written responses in Mandarin or Taiwanese. Semistructured interviews lasting 60 minutes were conducted privately and audiotaped. Verbatim transcriptions of the interviews were examined by the content analysis method. The trustworthiness of the data was examined by Lincoln and Guba (Naturalistic Inquiry. Newbury Park, Calif: Sage; 1985) principles. Results indicated that family stress experiences of parents of children undergoing hematopoietic stem cell transplants include 4 themes: parental psychological distress, family lifestyle disturbances, parents' coping patterns, and family resources. The results of this study provide evidence of the nature of parents' experiences while their children undergo hematopoietic stem cell transplantation and provide guidelines for family-centered nursing care.
authors.affiliation: Veterans General Hospital, Taipei, Taiwan, ROC.
authors.forename: Jane
authors.initials: J
authors.lastname: Wu
authors.forename: Pei-Fan
authors.initials: PF
authors.lastname: Mu
authors.forename: Shiow-Luan
authors.initials: SL
authors.lastname: Tsay
authors.forename: Tzeon-Jye
authors.initials: TJ
authors.lastname: Chiou
mesh_terms: D000223:Adaptation, Psychological; D000293:Adolescent; D000328:Adult; D001294:Attitude to Health; D002648:Child; D002673:Child, Hospitalized / Q000523:psychology; D002675:Child, Preschool; D017281:Cost of Illness; D005192:Family Health; D005260:Female; D018380:Hematopoietic Stem Cell Transplantation / Q000009:adverse effects / Q000451:nursing / Q000523:psychology*; D006801:Humans; D007223:Infant; D008016:Life Change Events; D008019:Life Style; D008297:Male; D008875:Middle Aged; D015404:Nursing Methodology Research; D010290:Parents / Q000523:psychology*; D010356:Patient Isolation / Q000523:psychology*; D036301:Qualitative Research; D012944:Social Support; D013315:Stress, Psychological / Q000209:etiology / Q000517:prevention & control / Q000523:psychology*; D011795:Surveys and Questionnaires; D013624:Taiwan