title: Adolescent decisional autonomy regarding participation in an emergency department youth violence interview.
abstract: Much attention has been given to determining whether an adolescent patient has the capacity to consent to research. This study explores the factors that influence adolescents' decisions to participate in a research study about youth violence and to determine positive or negative feelings elicited by being a research subject. The majority of subjects perceived their decision to participate to be free of coercion, and few felt badly about having participated. However, adolescents who were alone in the room during the assent process were more likely to report that they chose freely to be a research subject. This study may influence the ways physicians communicate with adolescent patients around research assent within a clinical care environment.
authors.affiliation: Children's Hospital Boston, USA.
authors.forename: Jennifer M
authors.initials: JM
authors.lastname: Cohn
authors.forename: Kenneth R
authors.initials: KR
authors.lastname: Ginsburg
authors.forename: Nancy
authors.initials: N
authors.lastname: Kassam-Adams
authors.forename: Joel A
authors.initials: JA
authors.lastname: Fein
mesh_terms: D000293:Adolescent; D000294:Adolescent Behavior; D000328:Adult; D002648:Child; D002755:Choice Behavior; D003657:Decision Making; D004636:Emergency Service, Hospital; D004644:Emotions; D032984:Ethics, Research; D006805:Human Experimentation / Q000941:ethics*; D006801:Humans; D026684:Personal Autonomy; D035842:Research Subjects / Q000523:psychology; D011795:Surveys and Questionnaires; D014754:Violence