title: [Parcours de femmes 2001, a French survey on the management and needs of women with breast and gynecological cancer: what's new after 8 years?].
abstract: The aim of the survey Parcours de Femmes 2001 was to evaluate at a national level, the overall management of patients with breast or gynecological cancers and to determine their needs. Eligible patients had either received at least 3 months of treatment or had completed treatment less than 1 year before the study. from February to November 2001, 2 839 questionnaires were distributed ; 1 870 were returned (66% response rate); 87% of patients had breast cancer and 76% de novo cancer (primary management). Overall, 92% of women received information/explanations with an acceptable quality. Information of patients clearly improved during last years but insufficiencies persist for two points : adverse events of treatments and disease progression, especially for recurrent patients. Fatigue (78%), anxiety (66%) and chemotherapy adverse events were the most frequent problems and were well managed by caregivers, except for fatigue due to diagnostic and treatment difficulties. Problems relating to daily life (48% of patients reported difficulty in doing housework), material and social life were poorly identified and remained largely unmanaged. Information given to female cancer patients must be improved particularly in relapsed patients. Psychosocial management requires a more holistic approach through new channels together with the coordination of existing structures.
authors.affiliation: Institut Sainte-Catherine, chemin du Lavarin, 84086 Avignon. d.serin@institut-ste-catherine.rss.fr
authors.forename: Daniel
authors.initials: D
authors.lastname: Serin
authors.forename: Jean-Marie
authors.initials: JM
authors.lastname: Dilhuydy
authors.forename: Nicole
authors.initials: N
authors.lastname: Guiochet
authors.forename: Pascale
authors.initials: P
authors.lastname: Romestaing
authors.forename: Jane
authors.initials: J
authors.lastname: Gledhill
authors.forename: Patricia
authors.initials: P
authors.lastname: Bret
authors.forename: Jacqueline
authors.initials: J
authors.lastname: Savary
authors.forename: Alain
authors.initials: A
authors.lastname: Flinois
mesh_terms: D000203:Activities of Daily Living; D000328:Adult; D000368:Aged; D000505:Alopecia; D001943:Breast Neoplasms / Q000175:diagnosis / Q000523:psychology / Q000628:therapy*; D003430:Cross-Sectional Studies; D005221:Fatigue; D005260:Female; D005602:France; D005833:Genital Neoplasms, Female / Q000175:diagnosis / Q000523:psychology / Q000628:therapy*; D006306:Health Surveys; D006801:Humans; D008875:Middle Aged; D009325:Nausea; D020380:Needs Assessment; D059408:Pain Management; D010353:Patient Education as Topic; D017060:Patient Satisfaction; D014839:Vomiting