Does autonomy require freedom? The importance of options in international HIV/AIDS research.
This paper analyses the way in which being in possession of an adequate range of options is an essential component of autonomy. I discuss the way in which the conceptualisation of options in terms of basic rights might assist this argument, and apply these ideas to HIV/AIDS clinical research in the developing world. Finally, I suggest that mechanisms should be put in place through which vulnerable research participants can express their views about the relationship between the research in which they are involved, and needs of a worthwhile life.
Zion
Deborah
D
Department of Medicine, Centre for Human Bioethics, Monash University, Alfred Hospital, Prahan, Vic., Australia. deborah.zion@arts.monash.edu.au
D002986:Clinical Trials as Topic / Q000941:ethics*; D003068:Coercion; D032984:Ethics, Research; D005610:Freedom; D015658:HIV Infections; D006806:Human Rights; D006801:Humans; D007258:Informed Consent / Q000941:ethics; D007391:International Cooperation; D026684:Personal Autonomy