Ethics guidelines for research with the recently dead.
The objective of the multidisciplinary expert Consensus Panel on Research with the Recently Dead (CPRRD) was to craft ethics guidelines for research with the recently dead. The CPRRD recommends that research with the recently dead: (i) receive scientific and ethical review and oversight; (ii) involve the community of potential research subjects; (iii) be coordinated with organ procurement organizations; (iv) not conflict with organ donation or required autopsy; (v) use procedures respectful of the dead; (vi) be restricted to one procedure per day; (vii) preferably be authorized by first-person consent, though both general advance research directives and surrogate consent are acceptable; (viii) protect confidentiality; (ix) not impose costs on subjects' estates or next of kin and not involve payment; (x) clearly explain ultimate disposition of the body.
Pentz
Rebecca D
RD
Winship Cancer Institute, Emory University, 1365-C Clifton Road NE, C30008, Atlanta, Georgia 30322, USA. rebecca.pentz@emoryhealthcare.org
Cohen
Cynthia B
CB
Wicclair
Mark
M
DeVita
Michael A
MA
Flamm
Anne Lederman
AL
Youngner
Stuart J
SJ
Hamric
Ann B
AB
McCabe
Mary S
MS
Glover
Jacqueline J
JJ
Kittiko
Winona J
WJ
Kinlaw
Kathy
K
Keller
James
J
Asch
Adrienne
A
Kavanagh
John J
JJ
Arap
Wadih
W
D003643:Death; D026724:Ethical Review; D028744:Ethics Committees, Research; D017408:Guidelines as Topic; D006801:Humans; D012106:Research; D014481:United States