title: Ethics guidelines for research with the recently dead.
abstract: The objective of the multidisciplinary expert Consensus Panel on Research with the Recently Dead (CPRRD) was to craft ethics guidelines for research with the recently dead. The CPRRD recommends that research with the recently dead: (i) receive scientific and ethical review and oversight; (ii) involve the community of potential research subjects; (iii) be coordinated with organ procurement organizations; (iv) not conflict with organ donation or required autopsy; (v) use procedures respectful of the dead; (vi) be restricted to one procedure per day; (vii) preferably be authorized by first-person consent, though both general advance research directives and surrogate consent are acceptable; (viii) protect confidentiality; (ix) not impose costs on subjects' estates or next of kin and not involve payment; (x) clearly explain ultimate disposition of the body.
authors.affiliation: Winship Cancer Institute, Emory University, 1365-C Clifton Road NE, C30008, Atlanta, Georgia 30322, USA. rebecca.pentz@emoryhealthcare.org
authors.forename: Rebecca D
authors.initials: RD
authors.lastname: Pentz
authors.forename: Cynthia B
authors.initials: CB
authors.lastname: Cohen
authors.forename: Mark
authors.initials: M
authors.lastname: Wicclair
authors.forename: Michael A
authors.initials: MA
authors.lastname: DeVita
authors.forename: Anne Lederman
authors.initials: AL
authors.lastname: Flamm
authors.forename: Stuart J
authors.initials: SJ
authors.lastname: Youngner
authors.forename: Ann B
authors.initials: AB
authors.lastname: Hamric
authors.forename: Mary S
authors.initials: MS
authors.lastname: McCabe
authors.forename: Jacqueline J
authors.initials: JJ
authors.lastname: Glover
authors.forename: Winona J
authors.initials: WJ
authors.lastname: Kittiko
authors.forename: Kathy
authors.initials: K
authors.lastname: Kinlaw
authors.forename: James
authors.initials: J
authors.lastname: Keller
authors.forename: Adrienne
authors.initials: A
authors.lastname: Asch
authors.forename: John J
authors.initials: JJ
authors.lastname: Kavanagh
authors.forename: Wadih
authors.initials: W
authors.lastname: Arap
mesh_terms: D003643:Death; D026724:Ethical Review; D028744:Ethics Committees, Research; D017408:Guidelines as Topic; D006801:Humans; D012106:Research; D014481:United States