Caregiver burden, time spent caring and health status in the first 12 months following stroke.
OBJECTIVE
To quantify time caring, burden and health status in carers of stroke patients after discharge from rehabilitation; to identify the potentially modifiable sociodemographic and clinical characteristics associated with these outcomes.


METHODS
Patients and carers prospectively interviewed 6 (n=71) and 12 (n=57) months after discharge. Relationships of carer and patient variables with burden, health status and time analysed by Gaussian and Poisson regression.


RESULTS
Carers showed considerable burden at 6 and 12 months. Carers spent 4.6 and 3.6 hours per day assisting patients with daily activities at 6 and 12 months, respectively. Improved patient motor and cognitive function were associated with reductions of up to 20 minutes per day in time spent in daily activities. Better patient mental health and cognitive function were associated with better carer mental health.


CONCLUSIONS
Potentially modifiable factors such as these may be able to be targeted by caregiver training, support and education programmes and outpatient therapy for patients.
Tooth
L
L
School of Population Health, University of Queensland, Queensland, Australia. l.tooth@sph.uq.edu.au
McKenna
K
K
Barnett
A
A
Prescott
C
C
Murphy
S
S
D000203:Activities of Daily Living; D000328:Adult; D000368:Aged; D000369:Aged, 80 and over; D017028:Caregivers / Q000523:psychology*; D017281:Cost of Illness; D005192:Family Health; D005260:Female; D006304:Health Status; D006305:Health Status Indicators; D006701:Home Nursing / Q000523:psychology / Q000706:statistics & numerical data*; D006801:Humans; D008297:Male; D008875:Middle Aged; D011446:Prospective Studies; D011594:Psychometrics; D011793:Queensland; D012944:Social Support; D013315:Stress, Psychological / Q000209:etiology; D020521:Stroke / Q000451:nursing* / Q000523:psychology; D013997:Time Factors