title: Introducing the need for lung transplantation in children with cystic fibrosis: parental experiences.
abstract: Lung transplantation (LTx) is the only treatment available for adult and pediatric end-stage lung disease secondary to cystic fibrosis (CF). The timing of introducing LTx has significant medical and psychological implications for the child and the family. This study explored the views and recommendations of parents of children with CF, who had been asked to consider LTx and referred to a national transplant centre. Parents participated in a telephone-based, semi-structured interview. Responses were analysed using Content Analysis. Parental recommendations and the emergent protocol are discussed, together with implications for clinical practice.
authors.affiliation: School of Medicine, Leeds University, Leeds, UK.
authors.forename: Lisa
authors.initials: L
authors.lastname: Lang
authors.forename: Alistair J A
authors.initials: AJ
authors.lastname: Duff
authors.forename: Keith G
authors.initials: KG
authors.lastname: Brownlee
mesh_terms: D000293:Adolescent; D000328:Adult; D001294:Attitude to Health; D002648:Child; D002675:Child, Preschool; D003550:Cystic Fibrosis / Q000523:psychology / Q000601:surgery*; D005260:Female; D006801:Humans; D007407:Interviews as Topic; D016040:Lung Transplantation / Q000523:psychology*; D008297:Male; D008875:Middle Aged; D010290:Parents / Q000523:psychology*