title: Development of an interactive computer-assisted instruction (ICAI) program for patient prenatal genetic screening and carrier testing for use in clinical settings.
abstract: Educating patients on prenatal genetic screening and carrier testing in a timely and effective manner is faced with barriers including, providers' limited knowledge, and little time available to spend discussing screening and testing during a visit. This paper describes the use of cognitive response interviews (CRI) and usability testing (UT) in the development of an interactive computer assisted instruction (ICAI) program for use by prenatal patients in clinical settings. Lessons learned during the program development process included simplification of content and adaptation of navigational features in response to observations and interviews of a sample of patients representing the intended population. The resulting program functions as a targeted patient education program that maintains the level of medical information needed, as specified by professional practices guidelines, in a patient friendly format. In addition, this ICAI program functions as a research tool that can collect data on program effectiveness. Researchers developing other patient education programs will benefit from the lessons learned during development of this ICAI program by considering rephrasing of content to fit patient understanding, and adding navigational features to help further facilitate effective program use.
authors.affiliation: Decision Support Lab, Sheps Center for Health Services Research, University of North Carolina at Chapel Hill, 725 Airport Road, CB #7590, Chapel Hill, NC 27599-7590, USA. jgriffith@unc.edu
authors.forename: Jennifer M
authors.initials: JM
authors.lastname: Griffith
authors.forename: James R
authors.initials: JR
authors.lastname: Sorenson
authors.forename: Tracey
authors.initials: T
authors.lastname: Jennings-Grant
authors.forename: Beth
authors.initials: B
authors.lastname: Fowler
mesh_terms: D000328:Adult; D001294:Attitude to Health; D003196:Computer Graphics / Q000592:standards; D003194:Computer-Assisted Instruction / Q000379:methods* / Q000592:standards; D003479:Curriculum; D005260:Female; D006580:Genetic Carrier Screening / Q000379:methods; D005820:Genetic Testing / Q000379:methods; D006801:Humans; D020380:Needs Assessment; D009657:North Carolina; D010353:Patient Education as Topic / Q000379:methods* / Q000592:standards; D011247:Pregnancy; D011296:Prenatal Diagnosis / Q000379:methods; D016730:Program Development; D015397:Program Evaluation; D018570:Risk Assessment; D014584:User-Computer Interface; D014930:Women / Q000193:education / Q000523:psychology