title: Breaking bad news: experiences and preferences of advanced cancer patients at a Portuguese oncology centre.
abstract: The disclosure of information to patients about diagnosis and prognosis and other aspects of care is still a matter of debate. We have conducted a study in advanced cancer patients about their experiences and preferences concerning this issue. A questionnaire was developed and completed during the first appointment in the outpatient clinic of an oncology centre's palliative care unit, before the patient had any contact with the staff of the unit. The study was conducted on a convenience sample of 47 patients. We found that 34 (72%) of those patients thought they had been informed of their diagnosis, most of them by the hospital doctor. However, not all stated the diagnosis in a manner clearly showing that they were aware of the nature of their disease. Most patients were with a family member when the diagnosis was disclosed, which is what the majority had preferred. Of the 13 uninformed patients, only one preferred to remain uninformed. Most patients (89%) participated in decisions concerning treatment, although only 68% thought they should have participated. Some 39 patients (83%) were informed that they were being referred to the palliative care unit, but surprisingly only eight had received an explanation of the unit's function. We concluded that, although most patients had been informed of their disease, there remains many problems, the most important of which, in our view, is the difference between the information provided and the patients' needs.
authors.affiliation: Palliative Care Unit, Portuguese Institute of Oncology, Oporto. ferrazg@netcabo.pt
authors.forename: Ferraz
authors.initials: F
authors.lastname: Gonçalves
authors.forename: Agata
authors.initials: A
authors.lastname: Marques
authors.forename: Sónia
authors.initials: S
authors.lastname: Rocha
authors.forename: Pedro
authors.initials: P
authors.lastname: Leitão
authors.forename: Teresa
authors.initials: T
authors.lastname: Mesquita
authors.forename: Susana
authors.initials: S
authors.lastname: Moutinho
mesh_terms: D000328:Adult; D000368:Aged; D000369:Aged, 80 and over; D005260:Female; D006801:Humans; D008297:Male; D008875:Middle Aged; D009369:Neoplasms / Q000523:psychology*; D010166:Palliative Care / Q000592:standards*; D010358:Patient Participation; D017060:Patient Satisfaction; D010817:Physician-Patient Relations; D011795:Surveys and Questionnaires; D014342:Truth Disclosure