title: "Suspended animation," my mother's wife and cultural discernment: considerations for genetic research among immigrants.
abstract: One of the most difficult contemporary issues facing the bioethics of clinical research is balancing the maintaining of a universality of ethics standards with a sensitivity to cultural issues and differences. The concept of "vulnerability" for research subjects is especially apt for investigating the ethical and cultural issues surrounding the conduct of genetic research among new immigrants to the United States, using the Sudanese Nuer and Dinka tribes, recently settled in the Midwest, as an example. Issues of cultural vulnerability arise for some immigrants, related to relationship to the earth and to kinship issues, that threaten the narrative richness of a subject's life as well as the way she situates herself in the world.
authors.affiliation: Center for Health Policy and Ethics, Creighton University, Omaha, NE, 68178, USA. jkissell@creighton.edu
authors.forename: Judith Lee
authors.initials: JL
authors.lastname: Kissell
mesh_terms: D003466:Cultural Characteristics; D018864:Cultural Diversity; D004641:Emigration and Immigration; D028781:Ethical Relativism; D032984:Ethics, Research; D036281:Genetic Research / Q000941:ethics; D006801:Humans; D015146:Midwestern United States; D012941:Social Responsibility; D013397:Sudan; D014481:United States; D035862:Vulnerable Populations