title: Increasing participation in cancer research: insights from Native Hawaiian women in medically underserved communities.
abstract: The cancer burden falls heavily on Native Hawaiian women, and of particular concern are those living in medically underserved communities where participation in potentially helpful clinical studies may be limited. Difficulty in accrual of Native Hawaiian women to a culturally-grounded intervention led researchers to conduct focus groups aimed at exploring attitudes towards research, use of a traditional Hawaiian practice for family discussion, and study promotion. Social marketing theory guided the development of discussion questions and a survey. Through purposive sampling, 30 women from medically underserved communities were recruited. Content analysis was used to identify major discussion themes. Findings indicate that lack of informational access may be a major barrier to participation. Study information disseminated through community channels with targeted outreach to social and religious organizations, promotion through face-to-face contact with researchers, and culturally tailored messages directed to families were preferred. Community oriented strategies based on linkages with organizational networks may increase participation.
authors.affiliation: Cancer Research Center of Hawai'i, University of Hawai'i, USA. lkaopua@crch.hawaii.edu
authors.forename: Lana Sue
authors.initials: LS
authors.lastname: Ka'opua
authors.forename: Diane
authors.initials: D
authors.lastname: Mitschke
authors.forename: Joelene
authors.initials: J
authors.lastname: Lono
mesh_terms: D035843:Biomedical Research; D005260:Female; D017144:Focus Groups; D006254:Hawaii; D019538:Health Care Surveys; D006303:Health Services, Indigenous; D006801:Humans; D008507:Medically Underserved Area; D008875:Middle Aged; D044468:Native Hawaiian or Pacific Islander / Q000523:psychology*; D009369:Neoplasms / Q000208:ethnology* / Q000628:therapy; D018579:Patient Selection; D035842:Research Subjects / Q000523:psychology* / Q000600:supply & distribution; D026443:Spiritual Therapies; D011795:Surveys and Questionnaires; D016387:Women's Health / Q000208:ethnology*