title: Ethical genetic research on human subjects.
abstract: Since the Nuremberg trials and the Nazi doctors trial following World War II, international ethics protocols have emerged designed to protect human subjects from the atrocities of medical experimentation that were literally routine under the Nazis. Some of the apparent "lessons" from the Nazi period have been encapsulated in the Declaration of Helsinki, perhaps the leading medical ethics protocol. This paper argues that these protocols have not been notably conducive to human welfare or to the protection of human rights in the field of human genetics research. The paper proposes new protocols and a new approach to the ethics of research on human subjects.
authors.affiliation: Centre for Social Ethics & Policy, University of Manchester, UK.
authors.forename: J
authors.initials: J
authors.lastname: Harris
mesh_terms: D022126:Access to Information / Q000941:ethics; D030661:Genetic Privacy; D036281:Genetic Research / Q000941:ethics*; D017408:Guidelines as Topic; D006381:Helsinki Declaration; D006805:Human Experimentation / Q000941:ethics / Q000592:standards; D006801:Humans; D007258:Informed Consent / Q000941:ethics; D028681:Moral Obligations; D009042:Motivation; D045808:Refusal to Participate / Q000941:ethics*; D035842:Research Subjects; D018570:Risk Assessment; D012941:Social Responsibility; D014015:Tissue Banks / Q000941:ethics*; D014019:Tissue Donors / Q000941:ethics; D035862:Vulnerable Populations