title: Recruiting African-American research participation in the Jackson Heart Study: methods, response rates, and sample description.
abstract: OBJECTIVE
  The sampling and recruitment methods, response rate, and cohort description for the all-African-American Jackson Heart Study (JHS) are detailed.
  
  
  METHODS
  Four subsamples of participants residing in the Jackson, Mississippi metropolitan statistical area (MSA) were included: random, volunteer, ARIC (continuing from Atherosclerosis Risk in Communities study), and family. A community-driven recruitment model was developed, and community representatives guided recruitment.
  
  
  RESULTS
  96% (n=5,302) of target enrollment was achieved with diversity in sex, education, and income. The JHS cohort provides a sample of African-American adults for longitudinal investigation.
  
  
  CONCLUSIONS
  Cohort recruitment was challenging. The JHS experiences provide useful lessons for observational epidemiological studies recruiting African-American research participation. Co-participation of researchers and researched in study design and realistic evidence of community benefit were crucial to recruitment success.
authors.affiliation: School of Medicine, Jackson Heart Study, University of Mississippi Medical Center Jackson, Mississippi 39216-4505, USA.
authors.forename: Sonja R
authors.initials: SR
authors.lastname: Fuqua
authors.forename: Sharon B
authors.initials: SB
authors.lastname: Wyatt
authors.forename: Michael E
authors.initials: ME
authors.lastname: Andrew
authors.forename: Daniel F
authors.initials: DF
authors.lastname: Sarpong
authors.forename: Frances R
authors.initials: FR
authors.lastname: Henderson
authors.forename: Margie F
authors.initials: MF
authors.lastname: Cunningham
authors.forename: Herman A
authors.initials: HA
authors.lastname: Taylor
mesh_terms: D000328:Adult; D000368:Aged; D000369:Aged, 80 and over; D044383:Black People; D002318:Cardiovascular Diseases / Q000453:epidemiology / Q000208:ethnology*; D005260:Female; D006801:Humans; D008297:Male; D008875:Middle Aged; D008922:Mississippi / Q000453:epidemiology; D018579:Patient Selection; D011446:Prospective Studies; D012107:Research Design; D035842:Research Subjects; D012111:Residence Characteristics; D001741:Black or African American