title: Assessing quality of life of patients with advanced chronic obstructive pulmonary disease in the end of life.
abstract: Given the limitations of existing health-related quality-of-life (QOL) measures in capturing the end-of-life experience of patients with advanced chronic diseases, an empirically grounded instrument, the quality-of-life concerns in the end of life questionnaire (QOLC-E), was developed. Though it was built on the McGill quality of life questionnaire (MQOL), its sphere is more holistic and culturally specific for the Chinese patients in Hong Kong. One hundred and forty-nine patients with advanced chronic obstructive pulmonary disease (COPD) or metastatic cancer completed the questionnaire. Seven factors (28 items) which emerged from the factor analysis were grouped into four positive (support, value of life, food-related concerns, and healthcare concerns) and four negative (physical discomfort, negative emotions, sense of alienation, and existential distress) subscales. Good internal consistency and concurrent validity were shown. The results also revealed that these two groups of patients had similar QOL concerns. The validity of applying QOLC-E as an outcome measure to evaluate the effectiveness of palliative and psychoexistential interventions has yet to be tested.
authors.affiliation: School of Nursing, The Hong Kong Polytechnic University, China.
authors.forename: Samantha M C
authors.initials: SM
authors.lastname: Pang
authors.forename: Kin-sang
authors.initials: KS
authors.lastname: Chan
authors.forename: Betty P M
authors.initials: BP
authors.lastname: Chung
authors.forename: Kam-shing
authors.initials: KS
authors.lastname: Lau
authors.forename: Edward M F
authors.initials: EM
authors.lastname: Leung
authors.forename: Amanda W K
authors.initials: AW
authors.lastname: Leung
authors.forename: Helen Y L
authors.initials: HY
authors.lastname: Chan
authors.forename: Tony M F
authors.initials: TM
authors.lastname: Chan
mesh_terms: D000203:Activities of Daily Living; D000328:Adult; D000368:Aged; D000369:Aged, 80 and over; D002681:China / Q000208:ethnology; D003430:Cross-Sectional Studies; D005163:Factor Analysis, Statistical; D005260:Female; D006723:Hong Kong; D006801:Humans; D008297:Male; D008875:Middle Aged; D009369:Neoplasms / Q000523:psychology; D009730:Nursing Assessment / Q000379:methods* / Q000592:standards; D015403:Nursing Evaluation Research; D011594:Psychometrics; D029424:Pulmonary Disease, Chronic Obstructive / Q000208:ethnology / Q000451:nursing / Q000523:psychology*; D011788:Quality of Life / Q000523:psychology*; D012680:Sensitivity and Specificity; D011795:Surveys and Questionnaires / Q000592:standards*; D019452:Terminally Ill / Q000523:psychology*