title: Genetic/metabolic health care delivery during and after hurricanes Katrina and Rita.
abstract: Provision of health care to patients during and after events like those which occurred in association with hurricanes Katrina and Rita poses particular difficulties for rare disease patients, including those with genetic/metabolic diseases. In this summary, we recount the obstacles encountered in attempting to maintain and restore essential medical care to these patients, and offer proposals which may mitigate future such events.
authors.affiliation: Hayward Genetic Center, Tulane University, School of Medicine, 1430 Tulane Ave, SL-31, New Orleans, LA 70112, USA.
authors.forename: Hans C
authors.initials: HC
authors.lastname: Andersson
authors.forename: T C
authors.initials: TC
authors.lastname: Narumanchi
authors.forename: Amy
authors.initials: A
authors.lastname: Cunningham
authors.forename: Bruce
authors.initials: B
authors.lastname: Bowdish
authors.forename: Jess
authors.initials: J
authors.lastname: Thoene
mesh_terms: D003695:Delivery of Health Care / Q000458:organization & administration*; D004190:Disasters; D030342:Genetic Diseases, Inborn / Q000628:therapy; D006801:Humans; D007755:Laboratories, Hospital / Q000600:supply & distribution; D008145:Louisiana; D008659:Metabolic Diseases / Q000628:therapy; D010353:Patient Education as Topic / Q000458:organization & administration; D013685:Telecommunications / Q000458:organization & administration