Integrative health care: how can we determine whether patients benefit?
OBJECTIVE
Evaluation of integrative health care (IHC) models is becoming increasingly important. One of the areas that requires further attention is the development of an appropriate set of outcome measures. The purpose of this study was: (1) to identify how cancer patients phrase and frame the beneficial outcomes they experienced from IHC, and (2) to develop recommendations for an appropriate outcome measures package for evaluation of IHC.


METHODS
This study involved two different parts: (1) a secondary analysis of qualitative data consisting of transcripts from 42 personal interviews and three focus groups from previous studies related to IHC use by cancer patients; and (2) a content analysis of goal-setting data collected from patients attending an IHC clinic to categorize the type and range of their treatment goals.


RESULTS
Six types of benefits were identified: physical well-being, change in physiological indicators, improved emotional well-being, personal transformation, feeling connected, global state of well-being, and cure. Types of goals identified by patients confirmed these benefits and include: to improve state of being, to be cancer free, to have more energy, more effective pain management, and improved quality of life.


CONCLUSIONS
A patient's perspective is crucial in understanding the process and outcomes of intentional selfhealing. Assessing self-identified goals suggests the need for patient empowerment through participation in outcome evaluation. We present recommendations for an appropriate outcomes package that is relevant, practical, and based on patient experiences.
Verhoef
Marja J
MJ
Department of Community Health Sciences, University of Calgary, Calgary, Alberta, Canada. mverhoef@ucalgary.ca
Mulkins
Andrea
A
Boon
Heather
H
D000529:Complementary Therapies / Q000706:statistics & numerical data*; D019033:Delivery of Health Care, Integrated / Q000706:statistics & numerical data*; D017144:Focus Groups; D006801:Humans; D033262:Narration; D009369:Neoplasms / Q000628:therapy*; D017063:Outcome Assessment, Health Care; D017060:Patient Satisfaction / Q000706:statistics & numerical data*; D011788:Quality of Life; D011795:Surveys and Questionnaires