title: Living with disability: part 1.
abstract: This is the first of three articles which consider the holistic care required by children with a disability and their families. Although the articles mainly address care of children with disabilities in the acute hospital setting, the concepts and knowledge can be transferred to care in other settings. The articles aim to provide a summary of the main subject areas while prompting readers to revisit their own opinions and experiences. This article provides an overview of: commonly used terminolgy; receiving the news that your child has a disability; impact on family members; and relevant social policy. The second and third articles cover: the therapeutic use of self; the value of communication; meeting complex needs on a paediatric ward and multi-diciplinary working.
authors.affiliation: Canterbury Christ Church University.
authors.forename: Claire
authors.initials: C
authors.lastname: Thurgate
authors.forename: Helen
authors.initials: H
authors.lastname: Warner
mesh_terms: D000223:Adaptation, Psychological; D001291:Attitude of Health Personnel; D001294:Attitude to Health; D002648:Child; D002651:Child Advocacy / Q000331:legislation & jurisprudence; D002662:Child Health Services / Q000458:organization & administration; D002669:Child Welfare; D003142:Communication; D017281:Cost of Illness; D019988:Children with Disabilities / Q000523:psychology / Q000534:rehabilitation* / Q000706:statistics & numerical data; D005190:Family / Q000523:psychology; D006117:Grief; D006291:Health Policy / Q000331:legislation & jurisprudence; D006694:Holistic Health; D006801:Humans; D016294:Models, Nursing; D020380:Needs Assessment / Q000458:organization & administration*; D024802:Nurse's Role; D009730:Nursing Assessment; D010371:Pediatric Nursing / Q000458:organization & administration*; D011287:Prejudice; D002666:Psychology, Child; D012944:Social Support; D006113:United Kingdom