title: A network of patients with orphan retinal diseases for clinical trials: goals, structure, challenges.
authors.affiliation: Oregon Retinal Degeneration Center and Ophthalmology and Molecular & Medical Genetics at the Casey Eye Institute at Oregon, Health Science & University in Portland, OR, USA.
authors.forename: Richard G
authors.initials: RG
authors.lastname: Weleber
mesh_terms: D002986:Clinical Trials as Topic / Q000379:methods*; D019058:Community Networks / Q000458:organization & administration; D015785:Eye Diseases, Hereditary / Q000235:genetics / Q000628:therapy*; D006801:Humans; D007255:Information Services / Q000458:organization & administration*; D018579:Patient Selection; D035583:Rare Diseases / Q000235:genetics / Q000628:therapy*; D012164:Retinal Diseases / Q000235:genetics / Q000628:therapy*