title: Genetic testing of embryos: a critical need for data.
abstract: Preimplantation genetic diagnosis (PGD), the genetic testing of embryos developed through IVF is one of the fastest growing techniques in reproductive medicine and IVF. Some suggest that PGD will become part of every IVF cycle in the future. The growing popularity of PGD has highlighted the fact that there are no comprehensive data available about the use of PGD, its accuracy, or the health outcomes of babies born following PGD. For patients, practitioners, and policymakers alike, such information is critical. To address the gaps in knowledge, a working group of the leading experts in the development and practice of PGD and IVF has begun to design a database to collect information about PGD as practised in the United States.
authors.affiliation: Genetics and Public Policy Centre, Berman Bioethics Institute, Johns Hopkins University, Washington DC 20036, USA. sbaruch2@jhu.edu
authors.forename: Susannah
authors.initials: S
authors.lastname: Baruch
authors.forename: G David
authors.initials: GD
authors.lastname: Adamson
authors.forename: Jacques
authors.initials: J
authors.lastname: Cohen
authors.forename: William E
authors.initials: WE
authors.lastname: Gibbons
authors.forename: Mark R
authors.initials: MR
authors.lastname: Hughes
authors.forename: Anver
authors.initials: A
authors.lastname: Kuliev
authors.forename: Santiago
authors.initials: S
authors.lastname: Munné
authors.forename: Robert W
authors.initials: RW
authors.lastname: Rebar
authors.forename: Joe Leigh
authors.initials: JL
authors.lastname: Simpson
authors.forename: Yury
authors.initials: Y
authors.lastname: Verlinsky
authors.forename: Kathy L
authors.initials: KL
authors.lastname: Hudson
mesh_terms: D016208:Databases, Factual; D005260:Female; D005307:Fertilization in Vitro; D006801:Humans; D007231:Infant, Newborn; D008297:Male; D011247:Pregnancy; D011256:Pregnancy Outcome; D019836:Preimplantation Diagnosis / Q000706:statistics & numerical data*; D012042:Registries; D014481:United States