title: Promoting respect for persons: developing a brochure for research participants.
abstract: The Institute of Medicine report Responsible Research: A Systems Approach to Protecting Research Participants noted that research participants require educational materials and ongoing interactions with investigators and healthcare professionals to have sufficient information to make a choice and be empowered to ask questions regarding their research participation. One of the ethical principles outlined in the Belmont Report, Respect for Persons, provided the framework for developing a brochure for research participants specific to the Department of Veterans Affairs (VA). The intent was to provide veterans and their families information about research in the VA and a list of basic questions to guide them through the complex decision making about their rights as research participants.
authors.affiliation: Department of Veterans Affairs, Washington, DC 20420, USA. anna.alt-white@va.gov
authors.forename: Anna C
authors.initials: AC
authors.lastname: Alt-White
authors.forename: Joan P
authors.initials: JP
authors.lastname: Porter
mesh_terms: D006801:Humans; D007258:Informed Consent / Q000941:ethics*; D010174:Pamphlets; D010353:Patient Education as Topic; D035842:Research Subjects; D014481:United States; D014493:United States Department of Veterans Affairs; D014728:Veterans