title: [Improvement and evaluation of QOL for the patients with nanbyo, intractable diseases].
abstract: The intractable diseases that are nanbyo in Japanese, have been defined by the Ministry for establishing the care system. This article argued the key issues including narrative based approach, palliative care and SEIQoL-DW for improving and evaluating of QOL of the patients with nanbyo.
authors.affiliation: Niigata National Hospital, National Hospital Organization, Dept. of Neurology.
authors.forename: Takashi
authors.initials: T
authors.lastname: Nakajima
mesh_terms: D016223:Advance Directives; D002388:Catastrophic Illness / Q000451:nursing* / Q000523:psychology; D006801:Humans; D033262:Narration; D010166:Palliative Care / Q000592:standards*; D011788:Quality of Life; D012297:Right to Die