title: Growing up and moving on in rheumatology: development and preliminary evaluation of a transitional care programme for a multicentre cohort of adolescents with juvenile idiopathic arthritis.
abstract: This article describes the development and initial evaluation of an evidence-based transitional care programme recently implemented in a multicentre controlled trial in the United Kingdom. The individual components of the programme are described. Evaluation of the acceptability and utilization of these components employed questionnaires administered to users (adolescents with juvenile idiopathic arthritis and their parents) and providers (rheumatology health professionals). The results confirm the acceptability and utilization of the programme components in addition to further innovative developments during the course of the study. In conclusion, the evidence-based transitional care programme components reported here are acceptable and useful to both user and provider and are potentially feasible in clinical practice in a revised format.
authors.affiliation: Institute of Child Health, University of Birmingham and Diana, Princess of Wales Children's Hospital, Birmingham, UK. j.e.mcdonagh@bham.ac.uk
authors.forename: Janet E
authors.initials: JE
authors.lastname: McDonagh
authors.forename: Karen L
authors.initials: KL
authors.lastname: Shaw
authors.forename: Taunton R
authors.initials: TR
authors.lastname: Southwood
mesh_terms: D000293:Adolescent; D041923:Adolescent Development; D016497:Adolescent Health Services / Q000458:organization & administration*; D000367:Age Factors; D001171:Arthritis, Juvenile / Q000523:psychology* / Q000628:therapy; D003266:Continuity of Patient Care / Q000458:organization & administration*; D019317:Evidence-Based Medicine; D005260:Female; D017144:Focus Groups; D006801:Humans; D008297:Male; D020380:Needs Assessment; D015404:Nursing Methodology Research; D010342:Patient Acceptance of Health Care / Q000523:psychology*; D010353:Patient Education as Topic / Q000592:standards; D016730:Program Development; D015397:Program Evaluation; D000297:Psychology, Adolescent; D036301:Qualitative Research; D012219:Rheumatology / Q000458:organization & administration*; D011795:Surveys and Questionnaires; D013664:Teaching Materials / Q000592:standards