title: [Experience of parents and other family members in the care to children and adolescents after bone marrow transplantation].
abstract: The purpose of this study is to describe how parents and other family members of children and adolescents submitted to Bone Marrow Transplantation, specially in the post operative period. Thirteen subjects responsible to the care of eleven patients under 18 years old participated in the study. Authors used semi-structured interviews to collected data. Data were analyzed through a qualitative approach. The following themes were identified: impact of transplantation and family life. Results indicated that due to the complexity of Bone Marrow Transplantation, the knowledge on the family reality is crucial as family plays a fundamental role in patients' quality of life. Therefore, to identify conditions, experiences and the life style of families enable the work based on their real needs, respecting their possibilities and limitations.
authors.affiliation: Instituto Superior e Centro Educacional Luterano de Santa Catarina - Bom Jesus (IELUSC). jane.anders@uol.com.br
authors.forename: Jane Cristina
authors.initials: JC
authors.lastname: Anders
authors.forename: Regina Aparecida Garcia
authors.initials: RA
authors.lastname: de Lima
authors.forename: Semiramis Melani Melo
authors.initials: SM
authors.lastname: Rocha
mesh_terms: D000293:Adolescent; D016026:Bone Marrow Transplantation / Q000451:nursing*; D017028:Caregivers; D002648:Child; D005190:Family; D006701:Home Nursing; D006801:Humans; D007407:Interviews as Topic