title: Economic expenditures associated with instrumental caregiving roles of adult siblings of persons with severe mental illness.
abstract: Siblings of persons with mental illness who assume primary caregiving roles experience substantial and tangible economic impacts associated with this responsibility. This study investigated mailed survey responses collected from 156 adult siblings of persons with mental illness from New York State to examine instrumental costs associated with providing support to siblings with illness. Genders of both siblings, severity of the relatives' mental illness, and number of surviving parents in the family distinguished those occupying primary caregiving responsibility from those not in primary roles. Current caregivers incurred greater instrumental costs in the form of financial expenses, time spent in care activities, and crisis involvement than did those who were not primary care providers. Additional demographic and behavioral factors related to siblings with and without illness were associated with specific dimensions of instrumental expenditure. As siblings become increasingly engaged in caregiving, social service professionals must assume leadership in promoting programs and policies that meaningfully support family involvement for relatives with mental illness.
authors.affiliation: University of California-San Francisco, San Francisco, USA.
authors.forename: Steven P
authors.initials: SP
authors.lastname: Lohrer
authors.forename: Ellen P
authors.initials: EP
authors.lastname: Lukens
authors.forename: Helle
authors.initials: H
authors.lastname: Thorning
mesh_terms: D000203:Activities of Daily Living / Q000523:psychology; D000293:Adolescent; D000328:Adult; D000368:Aged; D000369:Aged, 80 and over; D017028:Caregivers / Q000191:economics* / Q000523:psychology / Q000706:statistics & numerical data; D017281:Cost of Illness; D003419:Crisis Intervention / Q000191:economics; D005191:Family Characteristics; D005260:Female; D005382:Financing, Personal / Q000191:economics; D006760:Hospitalization / Q000191:economics / Q000706:statistics & numerical data; D006801:Humans; D008297:Male; D009518:New York; D011618:Psychotic Disorders / Q000191:economics* / Q000523:psychology / Q000628:therapy; D035781:Siblings / Q000523:psychology; D012944:Social Support; D012959:Socioeconomic Factors; D011795:Surveys and Questionnaires