Discovering the research priorities of people with diabetes in a multicultural community: a focus group study.
BACKGROUND
Usually experts decide on which research is worthwhile, yet it is government policy to involve service users in research. There has been a lack of published research about involving patients from minority ethnic groups and people from deprived areas in setting research agendas. In this study we wanted to hear the voices of patients that are not often heard.


OBJECTIVE
To find out the research priorities of people with diabetes from an inner city community and compare these with current expert-led research priorities in diabetes.


METHODS
A qualitative study using a participatory approach with consumer groups.


METHODS
Primary care within inner city Nottingham, UK.


METHODS
Thirty-nine adult patients with diabetes with varying ethnic backgrounds recruited from three general practices. Six focus groups carried out in participants' preferred language, analysed using the constant comparative method.


RESULTS
Nine main themes equating to research priorities were identified. Within these themes, information and awareness, service delivery and primary prevention of diabetes emerged as the main factors. There were no science-based topics and there was more emphasis on culturally influenced research questions, which differed from recent Department of Health priorities. There were several themes about service delivery, patient self-management and screening and prevention of diabetes that overlapped.


CONCLUSIONS
There is some divergence between expert-led and patient-led agendas in research about diabetes. Patient perspectives have a significant influence on research priorities, and there are likely to be several different patient perspectives.
Brown
Ken
K
Family Medical Centre, Nottingham. ken.brown@gp-c84018.nhs.uk
Dyas
Jane
J
Chahal
Prit
P
Khalil
Yesmean
Y
Riaz
Perween
P
Cummings-Jones
Joy
J
D000328:Adult; D000368:Aged; D000369:Aged, 80 and over; D001294:Attitude to Health; D018864:Cultural Diversity; D003695:Delivery of Health Care / Q000379:methods; D003920:Diabetes Mellitus / Q000517:prevention & control / Q000523:psychology*; D005260:Female; D017144:Focus Groups; D006301:Health Services Needs and Demand / Q000458:organization & administration; D006801:Humans; D008297:Male; D008875:Middle Aged; D010353:Patient Education as Topic; D010358:Patient Participation / Q000523:psychology*; D012106:Research; D012648:Self Care