Mother's home healthcare: emotion work when a child has cancer.
Home healthcare work, involving physical labor, nursing care, medical monitoring, administrative, planning and accounting, advocacy and emotion work, is unpaid and largely invisible. This article, based on focus group interviews with mothers whose children have had cancer, describes one part of their home healthcare labor, their emotion work. Specifically, it examines how mothers: manage the moral imperatives of mothering; think about and try to manage the strong feelings, particularly of fear and uncertainty that they often have when their children are ill with cancer; work to understand and maintain their marital relationships; the strategies that seemed to help; and finally, the self-transformation that many mothers experience. The article concludes with a discussion of the substantive, theoretical, research, and policy implications of emotion work in the provision of home healthcare work.
Clarke
Juanne N
JN
Department of Sociology and Anthropology, Wilfrid Laurier University, 73 University Avenue West, Waterloo, Ontario, Canada, N2L 3C5. jclarke@wlu.ca
D000223:Adaptation, Psychological; D000293:Adolescent; D000328:Adult; D001294:Attitude to Health; D002170:Canada; D002648:Child; D002675:Child, Preschool; D017281:Cost of Illness; D004644:Emotions; D005239:Fear; D005260:Female; D017144:Focus Groups; D006701:Home Nursing / Q000523:psychology*; D006801:Humans; D007223:Infant; D008393:Marriage / Q000523:psychology; D008875:Middle Aged; D009035:Mothers / Q000523:psychology*; D009369:Neoplasms / Q000451:nursing*; D015404:Nursing Methodology Research; D036301:Qualitative Research; D012649:Self Concept; D012934:Social Isolation; D011795:Surveys and Questionnaires; D035502:Trust; D035501:Uncertainty; D016526:Workload / Q000523:psychology*