Living well with end stage renal disease: patients' narratives interrupted from a virtue perspective.
Over the last few decades there has been a revival of interest in virtue ethics, with the emphasis on the virtuous caregiver. This paper deals with the 'virtuous patient', specifically the patient with End Stage Renal Disease (ESRD). We believe that a virtue approach provides insights not available to current methods of studying coping styles and coping strategies. Data are derived from seven semi-structured in-depth interviews. The transcripts of the interviews were subjected to an Interpretative Phenomenological Analysis (IPA). The focus of the analysis was on 'living well with chronic illness.' It appears that the moral challenges faced by patients with ESRD are manifold. When they are invited to tell the story of their illness, they do not explicitly speak of virtues, but they often refer to moral qualities, and to attitudes that can be regarded as virtuous. We identify several such concepts in the narratives of patients with ESRD. We conclude that the Aristotelian model of virtue ethics is particularly descriptively (and possibly also normatively) relevant to the explanation of the life narratives and the moral challenges of patients with an ESRD.
Dekker
Wim
W
Department of Ethics, Philosophy and History of Medicine, Radboud University Nijmegen Medical Centre, P.O. Box 9101, 6500 HB Nijmegen, The Netherlands. w.dekkers@efg.umcn.nl
Uerz
Inez
I
Wils
Jean-Pierre
JP
D000223:Adaptation, Psychological / Q000941:ethics*; D002908:Chronic Disease / Q000523:psychology; D028663:Ethical Theory; D006801:Humans; D007407:Interviews as Topic; D007676:Kidney Failure, Chronic / Q000523:psychology*; D033262:Narration; D010361:Patients / Q000523:psychology*; D036301:Qualitative Research; D011788:Quality of Life; D006435:Renal Dialysis / Q000523:psychology; D028722:Virtues