title: In our own words: consumers' views on the reality of consumer participation in mental health care.
abstract: The opportunity for consumers to participate in all stages of mental health service delivery, including the planning of their individual care, is now clearly enshrined in Australian mental health policy. Published research which examines the extent to which this has been realised in practice is limited, and the paucity is even greater for research reflecting the views of the consumers themselves. This paper presents the findings of a qualitative study. In-depth interviews were undertaken with consumers of mental health services from two rural areas in Victoria to explore their views and opinions regarding their ability for genuine participation in the planning and delivery of their mental health care, and in particular on the role of nurses in facilitating this process. Data were analysed with the assistance of NVivo, using a content analysis approach. The main themes identified were: respect, encouragement, collaboration and systemic barriers. The findings suggest that consumer participants identify a number of barriers which limit their ability to participate effectively. The implications for the role of the nurse in facilitating genuine consumer participation are discussed.
authors.affiliation: Centre for Psychiatric Nursing Research and Practice, School of Nursing, The University of Melbourne and Psychiatric Nurse Consultant, Division of Psychiatric Services, Northeast Health Wangaratta, Wangaratta, Victoria.
authors.forename: Val
authors.initials: V
authors.lastname: Goodwin
authors.forename: Brenda
authors.initials: B
authors.lastname: Happell
mesh_terms: D001294:Attitude to Health; D003256:Community Participation; D003695:Delivery of Health Care; D006801:Humans; D001523:Mental Disorders / Q000451:nursing*; D024802:Nurse's Role; D014739:Victoria