Unresolved issues in diagnosis and management of inherited bleeding disorders in the perinatal period: a White Paper of the Perinatal Task Force of the Medical and Scientific Advisory Council of the National Hemophilia Foundation, USA.
Haemophilia and inherited bleeding disorders in newborns and their carrier mothers pose unique challenges. The pattern of bleeding and the causes and risk factors for bleeding are decidedly different than an older child or an adult with haemophilia/inherited bleeding disorder. This document outlines the needs for further research and education, summarizes the state of the art background information and provides guidance regarding research, education and access to care issues in this population.
Kulkarni
R
R
Department of Pediatrics and Human Development, Michigan State University, East Lansing, MI 48824, USA. roshni@msu.edu
Ponder
K P
KP
James
A H
AH
Soucie
J M
JM
Koerper
M
M
Hoots
W K
WK
Lusher
J M
JM
D000328:Adult; D026683:Advisory Committees; D001779:Blood Coagulation Factors / Q000627:therapeutic use; D036861:Delivery, Obstetric / Q000379:methods; D005260:Female; D006580:Genetic Carrier Screening / Q000379:methods; D015316:Genetic Therapy / Q000379:methods; D006467:Hemophilia A / Q000175:diagnosis / Q000235:genetics* / Q000628:therapy; D006470:Hemorrhage / Q000175:diagnosis / Q000235:genetics* / Q000628:therapy; D006801:Humans; D007231:Infant, Newborn; D020300:Intracranial Hemorrhages / Q000175:diagnosis / Q000628:therapy; D011247:Pregnancy; D011296:Prenatal Diagnosis / Q000379:methods; D012106:Research
D001779:Blood Coagulation Factors