title: School and leisure activities in adolescents and young adults with chronic digestive disorders: impact of burden of disease.
abstract: First, we compared the nature of burden of disease (i.e., manifestations of the disease in daily life) in adolescents and young adults with various chronic digestive disorders with controls. After that, we investigated whether burden of disease is associated with difficulties in school and leisure activities of adolescents and young adults with various digestive disorders. For this purpose, we performed a multicenter study in 5 diagnostic groups (total N = 758; ages 12 to 25 years) including inflammatory bowel diseases (IBD), chronic liver diseases, congenital disorders, celiac disease, and food allergy and a population based control group (N = 306) using a self-report questionnaire. Especially adolescents and young adults with a chronic liver disease, IBD, and food allergy were found to experience daily manifestations of their disease. Several disease burden characteristics, of which especially depression, could be identified as important contributors to difficulties in school performance and leisure activities.
authors.affiliation: Netherlands Institute for Health Services Research (Nivel), The Netherlands. h.calsbeek@nivel.nl
authors.forename: Hiske
authors.initials: H
authors.lastname: Calsbeek
authors.forename: Mieke
authors.initials: M
authors.lastname: Rijken
authors.forename: Marc J T M
authors.initials: MJ
authors.lastname: Bekkers
authors.forename: Joost
authors.initials: J
authors.lastname: Dekker
authors.forename: Gerard P
authors.initials: GP
authors.lastname: van Berge Henegouwen
mesh_terms: D000293:Adolescent; D000328:Adult; D002446:Celiac Disease / Q000523:psychology; D002648:Child; D017281:Cost of Illness; D003866:Depressive Disorder / Q000523:psychology; D004066:Digestive System Diseases / Q000191:economics / Q000523:psychology*; D004493:Education; D005260:Female; D005512:Food Hypersensitivity / Q000523:psychology; D006801:Humans; D015212:Inflammatory Bowel Diseases / Q000523:psychology; D007899:Leisure Activities; D008107:Liver Diseases / Q000523:psychology; D008297:Male; D012959:Socioeconomic Factors