title: A new Internet resource for chronic kidney disease patients.
abstract: This paper focuses on the development of a portal in the World Wide Web (WWW), which captures and locates quality information for patients with chronic kidney disease (CKD). It examines the problems patients face when accessing and understanding information gleaned from Web sites and describes an idea from a Research Board Member to facilitate patient access to quality information. The idea germinated into the development of a patient specific Web site, providing one stop access and links to appropriate CKD information, assessed by patients and health professionals. Collaboration between the EDTNA/ERCA Research Board and CEAPIR the European Federation of Kidney Patients has enhanced the project.
authors.affiliation: Institute for Health and Social Care Research, University of Salford, UK.
authors.forename: P
authors.initials: P
authors.lastname: Ormandy
authors.forename: H
authors.initials: H
authors.lastname: Vlaminck
authors.forename: M
authors.initials: M
authors.lastname: Harrington
authors.forename: M
authors.initials: M
authors.lastname: Forest
authors.forename: R
authors.initials: R
authors.lastname: Visser
mesh_terms: D003197:Computer Literacy; D003200:Computer User Training; D003255:Consumer Organizations; D003299:Cooperative Behavior; D004522:Educational Status; D005060:Europe; D006801:Humans; D016247:Information Storage and Retrieval; D007373:Interinstitutional Relations; D020407:Internet / Q000458:organization & administration*; D007676:Kidney Failure, Chronic / Q000517:prevention & control*; D009398:Nephrology; D010353:Patient Education as Topic / Q000458:organization & administration*; D012955:Societies, Medical; D012956:Societies, Nursing; D014584:User-Computer Interface