title: Experiences of mothers of children with Down syndrome.
abstract: This qualitative study explored the experiences and lifestyles of families in Turkey with children with Down syndrome, including the impact on family members. Twelve mothers with a Down syndrome child (three from each of the age groups 1-3 years, 4-6 years, 7-12 years and 13-18 years of age) participated in the study. The data were collected during in-depth interviews and were evaluated using qualitative data analysis methods. Families were affected socially, physically, economically and emotionally by having a child with Down syndrome.
authors.affiliation: Dokuz Eylül University School of Nursing, Izmir, Turkey.
authors.forename: Hatice Yildirim
authors.initials: HY
authors.lastname: Sari
authors.forename: Gunsel
authors.initials: G
authors.lastname: Baser
authors.forename: Janet Molzan
authors.initials: JM
authors.lastname: Turan
mesh_terms: D000223:Adaptation, Psychological; D000293:Adolescent; D000328:Adult; D001294:Attitude to Health; D002648:Child; D002675:Child, Preschool; D017281:Cost of Illness; D004314:Down Syndrome / Q000451:nursing*; D005192:Family Health; D005260:Female; D006301:Health Services Needs and Demand; D006801:Humans; D008019:Life Style; D008297:Male; D009035:Mothers / Q000523:psychology*; D024802:Nurse's Role; D015404:Nursing Methodology Research; D010371:Pediatric Nursing; D036301:Qualitative Research; D012919:Social Behavior; D012959:Socioeconomic Factors; D011795:Surveys and Questionnaires; D014421:Turkey; D016526:Workload