title: [Structural quality of rheumatology clinics for children and adolescents. Paper by a task force of the "Society of Pediatric and Adolescent Rheumatology" and of the "Association of Rheumatology Clinics in Germany"].
abstract: Rheumatic diseases in childhood and adolescence differ from those of adulthood according to type, manifestation, treatment and course. A specialized therapy, starting as early as possible, improves the prognosis, can prevent long-term damage and saves the costs of long-term care. Only a specialized pediatric care system can guarantee optimum quality of the processes involved and the results for rheumatology in childhood and adolescence within a global financial system. This requires adequate structural quality of the specialized clinics and departments for pediatric rheumatology. The management of rheumatic diseases in childhood and adolescence is comprehensive and requires a multidisciplinary, specialized and engaged team which can cover the whole spectrum of rheumatic diseases with their various age-dependent aspects. In order to guarantee an adequate, cost-efficient routine, a specialized center which concentrates on inpatient care should treat at least 300 patients with pediatric rheumatic diseases per year. The diagnoses should be divided among the various disease categories with at least 70% of them involving inflammatory rheumatic diseases. For the inpatient care of small children, an accompanying person (parent) is necessary, requiring adequate structures and services. Patient rooms as well as diagnostic (radiography, sonography, etc.) and therapeutic services (physiotherapy, occupational therapy, pool, etc.) must be adequate for small children and school children as well as adolescents. Suitable mother-child units must also be provided and a school for patients is required within the clinic. A pediatric rheumatologist must be available 24 h a day, and it must be possible to reach other specialists within a short time. For painful therapeutic procedures, age-appropriate pain management is obligatory. A continuous adjustment of these recommendations to changing conditions in health politics is intended.
authors.affiliation: Deutsches Zentrum für Kinder- und Jugendrheumatologie, Gehfeldstrasse 24, 82467, Garmisch-Partenkirchen. michels.hartmut@rummelsberger.net
authors.forename: H
authors.initials: H
authors.lastname: Michels
authors.forename: G
authors.initials: G
authors.lastname: Ganser
authors.forename: G
authors.initials: G
authors.lastname: Dannecker
authors.forename: J
authors.initials: J
authors.lastname: Forster
authors.forename: R
authors.initials: R
authors.lastname: Häfner
authors.forename: G
authors.initials: G
authors.lastname: Horneff
authors.forename: R M
authors.initials: RM
authors.lastname: Küster
authors.forename: H-J
authors.initials: HJ
authors.lastname: Lakomek
authors.forename: H
authors.initials: H
authors.lastname: Lehmann
authors.forename: K
authors.initials: K
authors.lastname: Minden
authors.forename: B
authors.initials: B
authors.lastname: Rogalski
authors.forename: M
authors.initials: M
authors.lastname: Schöntube
mesh_terms: D000293:Adolescent; D002648:Child; D003362:Cost-Benefit Analysis / Q000592:standards; D042241:Early Diagnosis; D005858:Germany; D006301:Health Services Needs and Demand / Q000592:standards; D006748:Hospital Departments / Q000592:standards*; D006749:Hospital Design and Construction / Q000706:statistics & numerical data*; D006776:Hospitals, Pediatric / Q000592:standards*; D006782:Hospitals, Special / Q000592:standards*; D006801:Humans; D017063:Outcome Assessment, Health Care / Q000592:standards; D010348:Patient Care Team / Q000592:standards*; D011785:Quality Assurance, Health Care / Q000592:standards*; D012216:Rheumatic Diseases / Q000175:diagnosis / Q000628:therapy*; D013038:Specialization / Q000592:standards