title: Practical challenges of conducting research into rheumatic fever in remote Aboriginal communities.
abstract: Before embarking on an epidemiological study of acute rheumatic fever in remote Aboriginal communities, researchers engaged in the processes of community consultation, consent and household enrollment. Community expectations and time constraints are not necessarily those of the funding bodies, and a considerable investment of time and local engagement was required before the project proceeded with local support. The remoteness of the communities, harsh climate and limited infrastructure made working conditions difficult. Nevertheless, the study was completed and the results are being returned to the local councils and households. The research team continues to maintain its relationship with each study community.
authors.affiliation: Menzies School of Health Research, Charles Darwin University, Darwin, NT, Australia.
authors.forename: Malcolm I
authors.initials: MI
authors.lastname: McDonald
authors.forename: Norma
authors.initials: N
authors.lastname: Benger
authors.forename: Alex
authors.initials: A
authors.lastname: Brown
authors.forename: Bart J
authors.initials: BJ
authors.lastname: Currie
authors.forename: Jonathan R
authors.initials: JR
authors.lastname: Carapetis
mesh_terms: D003256:Community Participation; D006297:Health Services Accessibility; D006302:Health Services Research / Q000379:methods; D006303:Health Services, Indigenous; D006801:Humans; D007258:Informed Consent; D008507:Medically Underserved Area; D015876:Northern Territory / Q000453:epidemiology; D012213:Rheumatic Fever / Q000453:epidemiology / Q000208:ethnology*