title: The PedsQL in pediatric cerebral palsy: reliability, validity, and sensitivity of the Generic Core Scales and Cerebral Palsy Module.
abstract: This investigation determined the measurement properties of the Pediatric Quality of Life Inventory (PedsQL) 3.0 Cerebral Palsy (CP) Module. PedsQL 4.0 Generic Core Scales and 3.0 CP Module were administered to 245 families. Mean age of the 134 males and 107 females was 8 years 1 month (SD 4y 4mo; range 2-18y). The sample included children with hemiplegia (n=55), diplegia (n=84), and quadriplegia (n=85). Twenty eight children had a Gross Motor Function Classification System classification at Level I, 40 at Level II, 86 at Level III, 43 at Level IV, and 37 at Level V. Reliability was demonstrated for the PedsQL 4.0 (alpha=0.86 child, 0.89 parent) and CP Module (alpha=0.79 child, 0.91 parent). The PedsQL 4.0 distinguished between healthy children and children with CP. Construct validity of the CP Module was supported. Sensitivity of the PedsQL was demonstrated among children with different diagnostic categories and gross motor function.
authors.affiliation: Department of Landscape Architecture and Urban Planning, College of Architecture, Texas A&M University, College Station, 77843-3137, USA. jvarni@archmail.tamu.edu
authors.forename: James W
authors.initials: JW
authors.lastname: Varni
authors.forename: Tasha M
authors.initials: TM
authors.lastname: Burwinkle
authors.forename: Susan J
authors.initials: SJ
authors.lastname: Berrin
authors.forename: Sandra A
authors.initials: SA
authors.lastname: Sherman
authors.forename: Kanela
authors.initials: K
authors.lastname: Artavia
authors.forename: Vanessa L
authors.initials: VL
authors.lastname: Malcarne
authors.forename: Henry G
authors.initials: HG
authors.lastname: Chambers
mesh_terms: D000293:Adolescent; D002547:Cerebral Palsy / Q000453:epidemiology* / Q000523:psychology*; D002648:Child; D002675:Child, Preschool; D005260:Female; D006801:Humans; D008297:Male; D019957:Motor Skills Disorders / Q000453:epidemiology* / Q000523:psychology*; D011788:Quality of Life / Q000523:psychology*; D015203:Reproducibility of Results; D012680:Sensitivity and Specificity; D011795:Surveys and Questionnaires