title: [The year 2003 National Registry of Home-based Parenteral Nutrition].
abstract: OBJECTIVE
  To report the results of the Home-based Parenteral Nutrition (HBPN) registry of the NADYA-SENPE working group, for the year 2003.
  
  
  METHODS
  Gathering of registry data introduced by all units responsible of HBPN patient care. This an on-line registry available for authorized users of the working group web page (www.nadya-senpe.com). Epidemiological data, diagnosis, access route, complications, hospital admissions, disability degree, and course at December 31st, 2003
  
  
  RESULTS
  Data from 86 patients (62% female and 38% male) from 17 hospitals were gathered. Mean age of adult patients was 50.7 +/- 15.0 years, whereas for patients younger than 14 years was 2.4 +/- 1.5 years (n = 5 patients). Diseases that prone HBPN were neoplasm (21%), followed by mesenteric ischemia (20%), radiation enteritis (16.3%), motility impairments (10.5%), and Crohn's disease (4.6%). Tunneled catheters were used in 66.3% of the cases versus 29.1% of subcutaneous reservoirs. Mean treatment duration has been 8.5 +/- 4.6 months; 67.4% of patients had been on HBPN for a period of time longer than 6 months. Patient follow-up was mostly done from the reference area hospital (88.4%). In no case patient follow-up was done by the primary care team or by specialists other than those prescribing nutritional support. Nutritional support-related complications were seen in 98 occasions. The most frequent complications were infectious ones. They represented 1.60 hospital admissions per patient. The mean number of visits was 7.9 per patient (6.4 for scheduled visits and 1.5 for emergency visits). By the end of the year, we observed that 73.3% of the patients were still on the program, whereas in 23.3% HBPN had been withdrawn. The main reasons for withdrawal were decease (11 patients), and advancing to oral diet (9 patients). As for the disability degree, 13% were confined to a wheelchair or bed, and only 28% had no disability degree or only mild social disability.
  
  
  CONCLUSIONS
  We observed a mild increase in HBPN prevalence rate in Spain (2.15 patients pmp). The main indication was cancer followed by short-bowel syndrome secondary to vascular pathology. Nutritional support-related complications were common, especially those of an infectious origin.
authors.affiliation: Unidad de Nutrición Clínica Hospital 12 de Octubre Ctra. de Andalucía, km. 5,400 28041 Madrid. jmoreno.hdoc@salud.madrid.org
authors.forename: J M
authors.initials: JM
authors.lastname: Moreno
authors.forename: M
authors.initials: M
authors.lastname: Planas
authors.forename: A I
authors.initials: AI
authors.lastname: de Cos
authors.forename: N
authors.initials: N
authors.lastname: Virgili
authors.forename: P
authors.initials: P
authors.lastname: Gómez-Enterría
authors.forename: J
authors.initials: J
authors.lastname: Ordóñez
authors.forename: C
authors.initials: C
authors.lastname: de la Cuerda
authors.forename: E
authors.initials: E
authors.lastname: Martí
authors.forename: A
authors.initials: A
authors.lastname: Apezetxea
authors.forename: M T
authors.initials: MT
authors.lastname: Forga
authors.forename: A
authors.initials: A
authors.lastname: Pérez de la Cruz
authors.forename: A
authors.initials: A
authors.lastname: Muñoz
authors.forename: A
authors.initials: A
authors.lastname: Rodríguez
authors.forename: D
authors.initials: D
authors.lastname: Cardona
authors.forename: C
authors.initials: C
authors.lastname: Pedrón
authors.forename: L M
authors.initials: LM
authors.lastname: Luengo
authors.forename: C
authors.initials: C
authors.lastname: Garde
authors.forename: R M
authors.initials: RM
authors.lastname: Parés
mesh_terms: D000293:Adolescent; D000328:Adult; D017677:Age Distribution; D000368:Aged; D002648:Child; D005260:Female; D006801:Humans; D008297:Male; D008875:Middle Aged; D016331:Parenteral Nutrition, Home / Q000009:adverse effects / Q000706:statistics & numerical data*; D015995:Prevalence; D012042:Registries; D013030:Spain / Q000453:epidemiology