title: Family functioning in children and adolescents with spina bifida: an evidence-based review of research and interventions.
abstract: Research on the adjustment of families of children with spina bifida is reviewed, with a focus on delineating the impact of spina bifida on family functioning, the strengths and weaknesses of past research, and the needs for future evidence-based research on family interventions with this population. PsychINFO and MEDLINE literature searches were used to identify studies of family functioning and family-based interventions for children with spina bifida. Identified studies were empirically evaluated for the presence or absence of key methodological or analytic criteria. Thirty-two studies of family functioning were identified from 25 separate research groups; most studies displayed significant methodological limitations. No published studies of interventions to promote adaptive family functioning were identified. Methodologically sound, longitudinal, and theory-driven studies of family functioning are needed, as are randomized family-based intervention trials to promote adaptive functioning and better psychosocial outcomes in families of children with spina bifida. Specific recommendations for future work as well as clinical implications are noted.
authors.affiliation: Department of Psychology, Loyola University Chicago, Illinois 60626, USA. gholmbe@luc.edu
authors.forename: Grayson N
authors.initials: GN
authors.lastname: Holmbeck
authors.forename: Rachel Neff
authors.initials: RN
authors.lastname: Greenley
authors.forename: Rachael Millstein
authors.initials: RM
authors.lastname: Coakley
authors.forename: Joshua
authors.initials: J
authors.lastname: Greco
authors.forename: Jennifer
authors.initials: J
authors.lastname: Hagstrom
mesh_terms: D000223:Adaptation, Psychological; D000293:Adolescent; D002648:Child; D019317:Evidence-Based Medicine; D005190:Family / Q000523:psychology*; D005192:Family Health; D005196:Family Therapy; D005260:Female; D006801:Humans; D008297:Male; D012107:Research Design; D016135:Spinal Dysraphism / Q000523:psychology*