title: SPIN query tools for de-identified research on a humongous database.
abstract: The Shared Pathology Informatics Network (SPIN), a research initiative of the National Cancer Institute, will allow for the retrieval of more than 4 million pathology reports and specimens. In this paper, we describe the special query tool as developed for the Indianapolis/Regenstrief SPIN node, integrated into the ever-expanding Indiana Network for Patient care (INPC). This query tool allows for the retrieval of de-identified data sets using complex logic, auto-coded final diagnoses, and intrinsically supports multiple types of statistical analyses. The new SPIN/INPC database represents a new generation of the Regenstrief Medical Record system - a centralized, but federated system of repositories.
authors.affiliation: Regenstrief Institute.
authors.forename: Clement J
authors.initials: CJ
authors.lastname: McDonald
authors.forename: Paul
authors.initials: P
authors.lastname: Dexter
authors.forename: Gunther
authors.initials: G
authors.lastname: Schadow
authors.forename: Henry C
authors.initials: HC
authors.lastname: Chueh
authors.forename: Greg
authors.initials: G
authors.lastname: Abernathy
authors.forename: John
authors.initials: J
authors.lastname: Hook
authors.forename: Lonnie
authors.initials: L
authors.lastname: Blevins
authors.forename: J Marc
authors.initials: JM
authors.lastname: Overhage
authors.forename: Jules J
authors.initials: JJ
authors.lastname: Berman
mesh_terms: D003219:Confidentiality; D003628:Database Management Systems; D019992:Databases as Topic; D006751:Hospital Information Systems; D006801:Humans; D016247:Information Storage and Retrieval / Q000379:methods*; D039703:Logical Observation Identifiers Names and Codes; D016347:Medical Records Systems, Computerized; D010336:Pathology; D014584:User-Computer Interface