title: Caring for a family member with Alzheimer's disease: coping with caregiver burden post-nursing home placement.
abstract: Most nursing home research has focused on predictors for placement, the placement decision-making process, or the effects of placement on the nursing home resident. Little research is available on family caregivers' experiences after placing their loved ones in a nursing home. The purpose of this qualitative study was to identify how family caregivers coped with the burden of post-nursing home placement of a family member with Alzheimer's disease (AD). Several factors that positively or negatively affected coping among family caregivers were identified. Family caregivers' interactions with their loved one, other nursing home residents, family and friends, nursing staff, and the nursing home-sponsored support group all contributed positively to their coping with the burden of post-nursing home placement. Factors that decreased family caregivers' coping were role disruption, guilt over placement, and uncertainty about the future.
authors.affiliation: College of Nursing and Health Sciences, University of Massachusetts, Boston 02125, USA.
authors.forename: Joan
authors.initials: J
authors.lastname: Garity
mesh_terms: D000223:Adaptation, Psychological; D000368:Aged; D000544:Alzheimer Disease / Q000523:psychology*; D001294:Attitude to Health; D017028:Caregivers / Q000523:psychology*; D017281:Cost of Illness; D005190:Family / Q000523:psychology*; D005260:Female; D006167:Guilt; D006701:Home Nursing / Q000523:psychology; D006801:Humans; D008297:Male; D008875:Middle Aged; D009511:New England; D009735:Nursing Homes; D015404:Nursing Methodology Research; D010343:Patient Admission; D011340:Problem Solving; D011368:Professional-Family Relations; D036301:Qualitative Research; D012380:Role; D012944:Social Support; D013315:Stress, Psychological / Q000517:prevention & control / Q000523:psychology; D035501:Uncertainty; D016526:Workload