title: Changes in family involvement following a relative's move to a long-term care facility.
abstract: The purpose of this study was to examine changes in family involvement following a relative's move to a long-term care facility as well as factors associated with these changes. Qualitative data, using in-depth, active interviews were gathered from 35 family members at two points in time following a relative's move to a facility. Findings showed some changes in contact that were related to personal, social, institutional, and health conditions. Occasionally, new types of care were provided; more often care was re-balanced or expressed in alternative ways. The majority of participants did not view themselves as caregivers, a perception that remained stable over time. Consistent with continuity theory, families, in most cases, tended to seek ways to maintain consistency in their roles as family members and carers, particularly in the first year or so after placement. Nonetheless, facility staff should be aware of the factors that might influence changes over time in family caregiving roles and offer support to families dealing with these issues.
authors.affiliation: School of Social Work, McMaster University, Hamilton, ON, L8S 4M4, Canada. jwgladstone@aol.com
authors.forename: James W
authors.initials: JW
authors.lastname: Gladstone
authors.forename: Sherry L
authors.initials: SL
authors.lastname: Dupuis
authors.forename: Evelyn
authors.initials: E
authors.lastname: Wexler
mesh_terms: D000223:Adaptation, Psychological; D000368:Aged; D001294:Attitude to Health; D003704:Dementia / Q000628:therapy*; D005190:Family / Q000523:psychology*; D006801:Humans; D008134:Long-Term Care / Q000592:standards*; D008875:Middle Aged; D010549:Personal Satisfaction; D011368:Professional-Family Relations; D036301:Qualitative Research; D011795:Surveys and Questionnaires