title: Caring Connection: developing an Internet resource for family caregivers of children with cancer.
abstract: This poster will describe the development of a family-focused, web-based resource, the "Caring Connection", designed to provide individualized clinical information, patient-centered information resources, and access to online family-provider and family-to-family communication for caregivers of children with cancer. Data from structured interviews with family caregivers and healthcare providers describe their current Internet use and information needs. Website prototype development and user testing provide additional insights that are informing the ongoing design of the "Caring Connection" website.
authors.affiliation: University of Pittsburgh, PA, USA.
authors.forename: Deborah
authors.initials: D
authors.lastname: Lewis
authors.forename: Sriya
authors.initials: S
authors.lastname: Gunawardena
authors.forename: James H
authors.initials: JH
authors.lastname: Harrison
authors.forename: Jason
authors.initials: J
authors.lastname: Cooper
authors.forename: Gilan
authors.initials: G
authors.lastname: El Saadawi
mesh_terms: D017028:Caregivers; D002648:Child; D006266:Health Education; D006801:Humans; D007255:Information Services; D020407:Internet; D009369:Neoplasms; D010290:Parents; D018802:Patient-Centered Care