title: A preliminary study of perceived stress in adults with intellectual disabilities according to self-report and informant ratings.
abstract: BACKGROUND
  Stress is a major risk factor for mental health problems in individuals with intellectual disabilities, however few studies on stress have been conducted that take into account the perspective of both the person with the disability and the caregiver. The present study evaluated an informant version of the Lifestress Inventory, and compared it to the self-report version.
  
  
  METHODS
  Seventy individuals with intellectual disability paired with their caregivers completed the Lifestress Inventory, the Inventory of Negative Social Interactions and the Birleson Depression Scale.
  
  
  RESULTS
  Informant and self-report ratings on the Lifestress Inventory were internally reliable, showed modest agreement with each other and correlated with the Negative Social Interactions and Depression measures. The most troublesome stressors reported by informants and self-reports differed, however, and families tended to agree more with self-reports than did staff informants.
  
  
  CONCLUSIONS
  The informant version of the Lifestress Inventory is a suitable parallel instrument but not a replacement for self-reports.
authors.affiliation: University of Toronto, Toronto, Ontario, Canada. Yona_Lunsky@camh.net
authors.forename: Yona
authors.initials: Y
authors.lastname: Lunsky
authors.forename: Paul
authors.initials: P
authors.lastname: Bramston
mesh_terms: D000223:Adaptation, Psychological; D000328:Adult; D001290:Attitude; D001364:Awareness; D005260:Female; D006801:Humans; D008297:Male; D008875:Middle Aged; D010552:Personality Assessment / Q000706:statistics & numerical data*; D010555:Personality Inventory / Q000706:statistics & numerical data*; D019989:Persons with Intellectual Disabilities / Q000523:psychology*; D011594:Psychometrics / Q000706:statistics & numerical data; D011788:Quality of Life / Q000523:psychology; D015203:Reproducibility of Results; D013315:Stress, Psychological / Q000150:complications* / Q000523:psychology