title: Transition to adulthood in congenital heart disease: missed adolescent milestones.
abstract: OBJECTIVE
  To determine whether adults with congenital heart disease (CHD) are better adjusted than adults with acquired heart disease (AHD).
  
  
  METHODS
  Twenty-five adults with CHD completed the Patient Adjustment to Illness Self Report (PAIS-SR).
  
  
  RESULTS
  CHD patients had good adjustment for Heath Care Orientation and Family Relations, but poorer adjustment for Vocational, Social and Domestic Environment, Sexual Relations, and Psychological Distress.
  
  
  CONCLUSIONS
  The needs of CHD patients are not being met.
authors.affiliation: Division of Adolescent and Young Adult Medicine, Center for Cancer and Immunology Research, Children's National Medical Center and George Washington University School of Medicine and Health Science, Washington, DC 20010-2970, USA. mlyon@cnmc.org
authors.forename: Maureen E
authors.initials: ME
authors.lastname: Lyon
authors.forename: Karen
authors.initials: K
authors.lastname: Kuehl
authors.forename: Robert
authors.initials: R
authors.lastname: McCarter
mesh_terms: D000223:Adaptation, Psychological; D000328:Adult; D000368:Aged; D003625:Data Collection; D005195:Family Relations; D005260:Female; D006296:Health Services / Q000706:statistics & numerical data; D006330:Heart Defects, Congenital / Q000523:psychology*; D006801:Humans; D008297:Male; D008875:Middle Aged; D020380:Needs Assessment; D012725:Sexual Behavior; D013315:Stress, Psychological; D017741:Survivors / Q000523:psychology