Transition to adulthood in congenital heart disease: missed adolescent milestones.
OBJECTIVE
To determine whether adults with congenital heart disease (CHD) are better adjusted than adults with acquired heart disease (AHD).


METHODS
Twenty-five adults with CHD completed the Patient Adjustment to Illness Self Report (PAIS-SR).


RESULTS
CHD patients had good adjustment for Heath Care Orientation and Family Relations, but poorer adjustment for Vocational, Social and Domestic Environment, Sexual Relations, and Psychological Distress.


CONCLUSIONS
The needs of CHD patients are not being met.
Lyon
Maureen E
ME
Division of Adolescent and Young Adult Medicine, Center for Cancer and Immunology Research, Children's National Medical Center and George Washington University School of Medicine and Health Science, Washington, DC 20010-2970, USA. mlyon@cnmc.org
Kuehl
Karen
K
McCarter
Robert
R
D000223:Adaptation, Psychological; D000328:Adult; D000368:Aged; D003625:Data Collection; D005195:Family Relations; D005260:Female; D006296:Health Services / Q000706:statistics & numerical data; D006330:Heart Defects, Congenital / Q000523:psychology*; D006801:Humans; D008297:Male; D008875:Middle Aged; D020380:Needs Assessment; D012725:Sexual Behavior; D013315:Stress, Psychological; D017741:Survivors / Q000523:psychology