Rare visible disorders/ diseases as individually identifiable health information.
Individually identifiable health information needs to be masked or deleted in the secondary use of data for research. We defined and identified rare visible disorders as part of de-identification of individually identifiable health information. The prevalence of these disorders was evaluated using an administrative database and conformed to our definition. Due emphasis should be given to rare visible disorders in the de-identification process of health information.
Eguale
Tewodros
T
Clinical and Health Informatics Research Group, McGill University, Montreal, Quebec, Canada. tewodros.eguale@mail.mcgill.ca
Bartlett
Gillian
G
Tamblyn
Robyn
R
D003219:Confidentiality; D006801:Humans; D038801:International Classification of Diseases; D015995:Prevalence; D035583:Rare Diseases / Q000453:epidemiology*