title: Patient characteristics of women and men cared for during the first 10 years at an inpatient hospice ward in Sweden.
abstract: The hospice philosophy with focus on the patient's autonomy and the ideal of a good death are the overall objectives of palliative care. Often-raised questions, when discussing hospice, are for which of the incurable ill inpatient hospice is the most optimal care alternative together with who are making use of hospice. The aim of the present study was to describe patient characteristics such as age, marital status, diagnosis, referral source and length of stay (LoS) in relation to gender, during the first decade at an inpatient hospice ward (1992-2001). Data, obtained from medical register, were analysed by using descriptive statistics and the chi-square test. The number of patients was 666 women and 555 men, and most of them were elderly. In some respects significant differences were observed between women and men. More women than men were single, had cancer with relatively rapid trajectory and were referred from the oncology department. Men, more often than women, were diagnosed with cancers with a somewhat longer trajectory. Despite the longer trajectory, the LoS was shorter for men (median =13 days) than for women (median = 17 days). The most frequent referral source was hospital, though men, younger men in particular, were more often referred from home-based hospice care than women. During the last 3 years self-referrals were documented. Self-referrals can be seen as one distinct expression from a standpoint of one's own active choice compared with other referrals. Altogether, self-referrals were less frequent among women than men but in relation to age, self-referrals were more common among the youngest (<60 years) and the oldest women (>85 years) than men in the same age groups. Further studies illuminating a gender perspective can broaden the understanding of what these differences may imply for women and men.
authors.affiliation: Department of Health Sciences, Orebro University, Orebro, Sweden. inga_lill.kallstrom-karlsson@hi.oru.se
authors.forename: Inga Lill Källström
authors.initials: IL
authors.lastname: Karlsson
authors.forename: Margareta
authors.initials: M
authors.lastname: Ehnfors
authors.forename: Britt-Marie
authors.initials: BM
authors.lastname: Ternestedt
mesh_terms: D017677:Age Distribution; D000368:Aged; D000369:Aged, 80 and over; D016009:Chi-Square Distribution; D005260:Female; D005544:Forecasting; D006302:Health Services Research; D017051:Hospice Care / Q000639:trends*; D006748:Hospital Departments / Q000639:trends; D006757:Hospital Units / Q000639:trends*; D006801:Humans; D007297:Inpatients / Q000706:statistics & numerical data*; D007902:Length of Stay / Q000639:trends; D008297:Male; D017533:Marital Status / Q000706:statistics & numerical data; D008875:Middle Aged; D009369:Neoplasms / Q000175:diagnosis / Q000453:epidemiology / Q000628:therapy; D009937:Organizational Objectives; D010342:Patient Acceptance of Health Care / Q000706:statistics & numerical data; D010686:Philosophy, Medical; D033302:Postmodernism; D012017:Referral and Consultation / Q000639:trends; D012042:Registries; D017678:Sex Distribution; D013548:Sweden / Q000453:epidemiology