Information sharing: its impact on donor and nondonor families' experiences in the hospital.
OBJECTIVE
To illustrate the methods used to convey complicated information regarding the critical injury, and death diagnosed by means of brainstem testing, to the next of kin of potential organ donors.


METHODS
3-year, prospective, longitudinal study.


METHODS
Forty-three family members who chose to donate their deceased relatives' organs were recruited via 4 transplant coordinating centers, and 3 family members who chose not to donate were recruited via 1 intensive care unit.


METHODS
Face-to-face qualitative interviews were carried out with 46 family members of 43 individuals who died between June and December 2000. Family members who agreed to donation were interviewed during and after their next of kin's admission to hospital and 3 to 5 months, 13 to 15 months, and 18 to 26 months after bereavement. Three participants who chose not to donate were interviewed on 1 occasion only. Interviews were audio-recorded, and the transcribed reports were analyzed using a comparative, thematic approach focusing on the detection of similarities and differences between cases.


RESULTS
Participants who were offered verbal information supported by complementary methods of communication had (1) a greater understanding of the critical injury sustained by their next of kin, and (2) fewer questions over time regarding brainstem testing.


CONCLUSIONS
Better methods of communicating complicated information are needed, as the sheer load of information shared makes demands of next of kin at a time when they are cognitively and emotionally poorly equipped to respond.
Long
Tracy
T
University of Southampton, Southampton, United Kingdom.
Sque
Magi
M
Payne
Sheila
S
D000293:Adolescent; D000328:Adult; D000368:Aged; D001926:Brain Death / Q000175:diagnosis; D001930:Brain Injuries; D003142:Communication; D003657:Decision Making; D006801:Humans; D008137:Longitudinal Studies; D008875:Middle Aged; D011368:Professional-Family Relations; D009927:Tissue and Organ Procurement