The social experience of aging with a chronic illness: perspectives of older adults with multiple sclerosis.
OBJECTIVE
The purpose of this study was to explore the social experiences of older adults with multiple sclerosis (MS) in order to recognize the changes in social experience and social needs that may occur with aging with a chronic illness.


METHODS
Analysis of qualitative data from an exploratory study utilizing a phenomenological approach with 27 older adults with MS, aged 55 - 81.


RESULTS
In-depth interviews revealed that the social experience was influenced by groups of factors including the person's social needs, experience of MS, values and expectations, characteristics of the social support system, the response of the support providers, and the accessibility of the social environment. The participants discussed concerns about the future adequacy of support. A process of negotiation was also described and was seen as an opportunity to change the social experience and social support received.


CONCLUSIONS
This study provides an insider's view of the social changes that older adults living with MS experience. This study also identifies barriers to the acquisition of support and addresses the importance of appropriately responding to the changing needs of this population.
Fong
Terry
T
Department of Occupational Therapy, University of Illinois at Chicago, Chicago, IL, USA.
Finlayson
Marcia
M
Peacock
Nadine
N
D000368:Aged; D000369:Aged, 80 and over; D000375:Aging / Q000523:psychology; D003430:Cross-Sectional Studies; D005260:Female; D006801:Humans; D007398:Interpersonal Relations; D007407:Interviews as Topic; D008297:Male; D008875:Middle Aged; D051346:Mobility Limitation; D009103:Multiple Sclerosis / Q000523:psychology*; D036301:Qualitative Research; D012931:Social Environment; D012944:Social Support