title: The role of power, process, and relationships in participatory research for statewide HIV/AIDS programming.
abstract: This paper presents a case study of a participatory process that was used to understand the needs of persons living with HIV/AIDS in a US state. The case illustrates that participation in a community-based research project is a dynamic phenomenon that must be negotiated among an evolving web of roles and relationships. Using a continuum to model the multiple modes of community participation, we follow the changing nature of participation over the course of a single project. Our analysis illustrates the different levels of participation given by the continuum as well as the dynamic nature of participation. A shared understanding of participation evolves as the roles and relationships of those involved are negotiated and renegotiated. However, lack of reflection over power differentials can lead to disempowering outcomes even after achieving a seemingly participatory process. The case reveals that failing to resolve divergent assumptions about power and purpose can lead to fissures that are difficult to overcome.
authors.affiliation: Department of Community, Agriculture, Recreation, and Resource Studies, 317 Natural Resources Building, Michigan State University, East Lansing, MI 48824-1222, USA. kchung@msu.edu
authors.forename: Kimberly
authors.initials: K
authors.lastname: Chung
authors.forename: David W
authors.initials: DW
authors.lastname: Lounsbury
mesh_terms: D000163:Acquired Immunodeficiency Syndrome / Q000517:prevention & control / Q000523:psychology; D026683:Advisory Committees; D018672:Community Health Planning / Q000458:organization & administration*; D003256:Community Participation; D003159:Community-Institutional Relations; D003254:Consumer Advocacy; D003299:Cooperative Behavior; D003659:Decision Making, Organizational; D015658:HIV Infections / Q000517:prevention & control* / Q000523:psychology; D006801:Humans; D007407:Interviews as Topic; D020380:Needs Assessment; D017008:Negotiating; D019982:Organizational Case Studies; D011209:Power, Psychological; D014481:United States