title: The need for national registries in rare diseases.
authors.forename: Rogério
authors.initials: R
authors.lastname: Souza
authors.forename: Carlos
authors.initials: C
authors.lastname: Jardim
authors.forename: Carlos
authors.initials: C
authors.lastname: Carvalho
mesh_terms: D000755:Anemia, Sickle Cell / Q000453:epidemiology; D001938:Brazil / Q000453:epidemiology; D015897:Comorbidity; D005602:France / Q000453:epidemiology; D015658:HIV Infections / Q000453:epidemiology; D006801:Humans; D006976:Hypertension, Pulmonary / Q000453:epidemiology*; D035583:Rare Diseases / Q000453:epidemiology*; D012042:Registries; D012552:Schistosomiasis / Q000453:epidemiology