[Caring for the highly dependent elderly in the community: a study on the main family caregivers].
This study aims to contribute to a better understanding of the main family caregivers of highly dependent elderly. Performed in a geriatric outpatient unit, the study used a content analysis methodology, and data were collected with interviews and 14 group sessions with 24 subjects. The following categories emerged: denial versus acceptance of the disease before and after diagnosis; how and why the main caregiver assumes this role; caregiver's characteristics; caregiver's experiences; meanings ascribed to care-giving; history of the caregiver's relationship to the elder before the disease; caregiver/elder relationship since onset of the disease; changes in the caregiver's life; changes in the family; and causes for the appearance of the disease. In conclusion, there are three dimensions in the target issue: (1) implications of the legacies, multi-generational transmission, repetition of the patterns, and myths and beliefs in each family system; (2) seniors as active participants in the care-giving decision; and (3) the support group as a key resource for the family.
da Silveira
Teresinha Mello
TM
Instituto de Psicologia, Universidade do Estado do Rio de Janeiro, Rio de Janeiro, Rio de Janeiro, Brasil.
Caldas
Célia Pereira
CP
Carneiro
Terezinha Féres
TF
D000328:Adult; D000368:Aged; D000369:Aged, 80 and over; D017028:Caregivers / Q000523:psychology*; D003430:Cross-Sectional Studies; D003704:Dementia / Q000451:nursing* / Q000523:psychology; D004522:Educational Status; D005190:Family / Q000523:psychology*; D005260:Female; D006801:Humans; D007407:Interviews as Topic; D008016:Life Change Events; D008297:Male; D008875:Middle Aged