title: Social integration of adults with cerebral palsy.
abstract: Social integration and independence is the ultimate goal of habilitation and social support for patients with cerebral palsy (CP). Having a partner and having children provide support for social integration of adults with or without a disability. We studied 416 participants with CP born between 1965 and 1970 (243 males, 173 females; mean age 32 y 2 mo [SD 2 y]; age range 29-35 y) and compared them with 2247 age-matched comparison individuals. Diagnostic subtypes of the 416 participants were: 31% hemiplegia, 49% diplegia, 11% tetraplegia, and 9% other types. The level of motor impairment, estimated in childhood, with regard to walking ability was 65% able to walk without assistance, 22% with assistance, and 12% not able to walk (for 1% of the participants their walking ability was not known). We found no sign of increased social integration over the past two or three decades in Denmark. Sixty-eight per cent lived independently, 13% lived with their parents, and 16% lived at an accommodation facility arranged by the county (institution). Twenty-eight per cent of the participants were cohabiting and 19% had children. The presence of epilepsy and the severity of physical or cognitive impairment as assessed in childhood predicted independent living and physical and cognitive impairment predicted cohabitation, but parents' socioeconomic position and region of living did not. Fifty-five percent of the participants, compared with 4% of the comparison group, had no competitive employment, cohabiting partner, or biological children. The remaining participants had at least one of these types of social contact, but this more optimally socially integrated half of the participants only combined all three types of social contact half as often as the comparison group. This could be due to cognitive difficulties or premature ageing.
authors.affiliation: National Institute of Public Health, Rigshospitalet (National University Hospital) Copenhagen, Denmark. sim@niph.dk
authors.forename: Susan Ishøy
authors.initials: SI
authors.lastname: Michelsen
authors.forename: Peter
authors.initials: P
authors.lastname: Uldall
authors.forename: Thomas
authors.initials: T
authors.lastname: Hansen
authors.forename: Mette
authors.initials: M
authors.lastname: Madsen
mesh_terms: D000203:Activities of Daily Living; D000328:Adult; D016022:Case-Control Studies; D002547:Cerebral Palsy / Q000145:classification / Q000523:psychology*; D003718:Denmark; D004522:Educational Status; D004651:Employment; D005191:Family Characteristics; D005260:Female; D006801:Humans; D007326:Institutionalization / Q000706:statistics & numerical data; D007398:Interpersonal Relations; D008297:Male; D012042:Registries; D012720:Severity of Illness Index; D012931:Social Environment; D012959:Socioeconomic Factors