EORTC QLQ-INFO26: a questionnaire to assess information given to cancer patients a preliminary analysis in eight countries.
Information disclosure is a key factor in the support for cancer patients. The European Organisation for Research and Treatment of Cancer (EORTC) Quality of Life Group has developed a questionnaire to evaluate the level of information received by cancer patients at different stages of their disease and treatment: the EORTC QLQ-INFO26. It can be used in clinical practice and research, including clinical trials. The questionnaire was developed following EORTC Quality of Life Group guidelines. The paper presents the data on 133 patients from eight countries. The resulting EORTC QLQ-INFO26 questionnaire includes four sub-scales on information regarding their cancer, medical tests, treatment and other services and several single items.
Arraras
Juan Ignacio
JI
Oncology Department, Hospital of Navarre, Pamplona, Spain. jiarraras@correo.cop.es
Kuljanic-Vlasic
Karin
K
Bjordal
Kristin
K
Yun
Young Ho
YH
Efficace
Fabio
F
Holzner
Bernhard
B
Mills
Judith
J
Greimel
Elfriede
E
Krauss
Oliver
O
Velikova
Galina
G
D000328:Adult; D000368:Aged; D000369:Aged, 80 and over; D003710:Demography; D030881:Disclosure; D005260:Female; D006801:Humans; D008297:Male; D008875:Middle Aged; D009367:Neoplasm Staging; D009369:Neoplasms / Q000523:psychology* / Q000628:therapy; D010353:Patient Education as Topic / Q000592:standards*; D011788:Quality of Life / Q000523:psychology*; D015203:Reproducibility of Results; D011795:Surveys and Questionnaires; D013997:Time Factors