title: EORTC QLQ-INFO26: a questionnaire to assess information given to cancer patients a preliminary analysis in eight countries.
abstract: Information disclosure is a key factor in the support for cancer patients. The European Organisation for Research and Treatment of Cancer (EORTC) Quality of Life Group has developed a questionnaire to evaluate the level of information received by cancer patients at different stages of their disease and treatment: the EORTC QLQ-INFO26. It can be used in clinical practice and research, including clinical trials. The questionnaire was developed following EORTC Quality of Life Group guidelines. The paper presents the data on 133 patients from eight countries. The resulting EORTC QLQ-INFO26 questionnaire includes four sub-scales on information regarding their cancer, medical tests, treatment and other services and several single items.
authors.affiliation: Oncology Department, Hospital of Navarre, Pamplona, Spain. jiarraras@correo.cop.es
authors.forename: Juan Ignacio
authors.initials: JI
authors.lastname: Arraras
authors.forename: Karin
authors.initials: K
authors.lastname: Kuljanic-Vlasic
authors.forename: Kristin
authors.initials: K
authors.lastname: Bjordal
authors.forename: Young Ho
authors.initials: YH
authors.lastname: Yun
authors.forename: Fabio
authors.initials: F
authors.lastname: Efficace
authors.forename: Bernhard
authors.initials: B
authors.lastname: Holzner
authors.forename: Judith
authors.initials: J
authors.lastname: Mills
authors.forename: Elfriede
authors.initials: E
authors.lastname: Greimel
authors.forename: Oliver
authors.initials: O
authors.lastname: Krauss
authors.forename: Galina
authors.initials: G
authors.lastname: Velikova
mesh_terms: D000328:Adult; D000368:Aged; D000369:Aged, 80 and over; D003710:Demography; D030881:Disclosure; D005260:Female; D006801:Humans; D008297:Male; D008875:Middle Aged; D009367:Neoplasm Staging; D009369:Neoplasms / Q000523:psychology* / Q000628:therapy; D010353:Patient Education as Topic / Q000592:standards*; D011788:Quality of Life / Q000523:psychology*; D015203:Reproducibility of Results; D011795:Surveys and Questionnaires; D013997:Time Factors