Associations between a functional independence measure (WeeFIM) and the pediatric quality of life inventory (PedsQL4.0) in young children with physical disabilities.
OBJECTIVE
To determine the association between functional status, measured by the WeeFIM and health-related quality of life (HRQL), measured by the PedsQL4.0 for children with physical disabilities. To explore child, parent and service-related factors associated with each of these measures.


METHODS
Parents of 115 children (2-5 years) with physical disabilities who were referred to occupational (OT) or physical therapy (PT). Mean age of the children was 3 years 7 months (+/-10 months), 79 were boys and 67 were diagnosed with global developmental delay.


RESULTS
Children had more difficulties with self-care tasks and cognitive abilities, as compared to mobility activities on the WeeFIM. The correlation between total WeeFIM and total PedsQL4.0 was r=0.39. WeeFIM mobility and self-care quotients were each fairly correlated with PedsQL-Physical Health Summary Score (rs=0.29 and rs=0.28 respectively). There was no significant association between WeeFIM cognition quotient and each of PedsQL scores (rs=0.03-0.05). The receipt of PT services was highly associated (p<0.001) with lower scores on the PedsQL-Physical Health Summary score, PedsQL-Total score, and WeeFIM mobility quotient.


CONCLUSIONS
The WeeFIM and the PedsQL4.0 appear to assess related but different constructs, supporting the need to incorporate complementary measures when measuring general health of children with disabilities.
Grilli
Lisa
L
Université de Montréal, Ecole de réadaptation, and McGill University Health Centre, Montreal Children's Hospital, QC, Canada. lisa.grilli@muhc.mcgill.ca
Feldman
Debbie Ehrmann
DE
Majnemer
Annette
A
Couture
Melanie
M
Azoulay
Laurent
L
Swaine
Bonnie
B
D000203:Activities of Daily Living; D000367:Age Factors; D002675:Child, Preschool; D019988:Children with Disabilities / Q000523:psychology* / Q000534:rehabilitation; D005260:Female; D006776:Hospitals, Pediatric; D006801:Humans; D007223:Infant; D008297:Male; D051346:Mobility Limitation; D010290:Parents; D010372:Pediatrics; D010465:Perception; D011594:Psychometrics / Q000295:instrumentation; D011788:Quality of Life / Q000523:psychology*; D011792:Quebec; D012648:Self Care; D018434:Sickness Impact Profile; D011795:Surveys and Questionnaires