title: The most personal information of all: an appraisal of genetic privacy in the shadow of the Human Genome Project.
abstract: The advent of genetics and genetic testing has given rise to unique problems for the family. The discovery of a predisposition to a genetic condition in one individual also reveals information about the genetic make-up and potential risks of family members. There is, therefore, potential for conflict over access to and control of such information. Traditionally the duty of confidentiality owed by a health care professional to a patient has provided an appropriate means by which personal health information has been kept secured. It is not clear, however, that the problems which surrounds genetic information in the familial milieu can be adequately dealt with using confidentiality. This article examines these problems and argues for the value of an appeal to the concept of privacy in seeking to resolve some of the more intractable issues.
authors.forename: G T
authors.initials: GT
authors.lastname: Laurie
mesh_terms: D002755:Choice Behavior; D003219:Confidentiality / Q000941:ethics / Q000331:legislation & jurisprudence; D030881:Disclosure / Q000941:ethics / Q000331:legislation & jurisprudence; D017007:Duty to Warn / Q000941:ethics / Q000331:legislation & jurisprudence; D005190:Family; D030342:Genetic Diseases, Inborn / Q000145:classification; D030661:Genetic Privacy / Q000941:ethics* / Q000331:legislation & jurisprudence; D005820:Genetic Testing; D006679:HIV Seropositivity; D008318:Malpractice; D028681:Moral Obligations; D026684:Personal Autonomy; D018907:Privacy / Q000331:legislation & jurisprudence; D046269:Reproductive Rights