title: Patient-reported assessment of quality care at end of life: development and validation of Quality Care Questionnaire-End of Life (QCQ-EOL).
abstract: Our goal was to validate an instrument with which terminally ill patients could evaluate the quality of care they receive at the end of life (EOL). Questionnaire development followed a four-phase process: item generation and reduction, construction, pilot testing, and field-testing. Using relevance and priority criteria and pilot testing, we developed a 16-item questionnaire. Factor analyses of data from 235 patients resulted in the Quality Care Questionnaire-End of Life (QCQ-EOL) covering dignity-conserving care, care by health care professionals, individualised care, and family relationships. All subscales and total scores showed high internal consistency (Cronbach alpha range, 0.73-0.89). The ability of total score and selective subscale scores clearly differentiated patients on the basis of clinical situation, sense of dignity, and general rating of care quality. Correlations of scores between patients and caregivers were substantial. The QCQ-EOL can be adopted to assess the quality of care received by terminally ill patients.
authors.affiliation: Research Institute and Hospital, National Cancer Center, Branch of Quality Cancer Care, 809 Madul-dong, Ilsan-gu, 410-769 Goyang-si, Gyeonggi-do, Republic of Korea. lawyun08@ncc.re.kr
authors.forename: Young Ho
authors.initials: YH
authors.lastname: Yun
authors.forename: Soo-Hyun
authors.initials: SH
authors.lastname: Kim
authors.forename: Kyoung-Min
authors.initials: KM
authors.lastname: Lee
authors.forename: Sang Min
authors.initials: SM
authors.lastname: Park
authors.forename: Chang Geol
authors.initials: CG
authors.lastname: Lee
authors.forename: Youn Seon
authors.initials: YS
authors.lastname: Choi
authors.forename: Won Sup
authors.initials: WS
authors.lastname: Lee
authors.forename: Si-Young
authors.initials: SY
authors.lastname: Kim
authors.forename: Dae Seog
authors.initials: DS
authors.lastname: Heo
mesh_terms: D000328:Adult; D000368:Aged; D005260:Female; D006801:Humans; D008297:Male; D008875:Middle Aged; D009369:Neoplasms / Q000523:psychology / Q000628:therapy*; D017060:Patient Satisfaction; D010865:Pilot Projects; D011788:Quality of Life; D011795:Surveys and Questionnaires / Q000592:standards*; D013727:Terminal Care / Q000592:standards*; D019452:Terminally Ill