title: Caring for children with special healthcare needs in the managed care environment.
abstract: Dramatic medical and technological advances over the past 15 years have resulted in the survival into adulthood of children with chronic health conditions. As this population subset has increased, the demand of caring for these children in the managed care arena has become challenging from a clinical, fiscal, and member satisfaction perspective. A disease management program was designed for children, ages birth through age 18, identified as having special needs at the time of birth or at any point throughout childhood related to disease processes such as diabetes, sickle cell disease, genetic aberrations, or the multiple complications of extreme prematurity. Components of the program included identification of the population, coordinated risk assessment, and ongoing case management interventions. Most important, outcome indicators were tracked to demonstrate program effectiveness. The formulation and function of a dedicated disease management database is also discussed.
authors.affiliation: Care Management at Johns Hopkins HealthCare, Glen Burnie, MD 21060, USA.
authors.forename: Michelle R
authors.initials: MR
authors.lastname: Hawkins
authors.forename: Beth
authors.initials: B
authors.lastname: Diehl-Svrjcek
authors.forename: Linda J
authors.initials: LJ
authors.lastname: Dunbar
mesh_terms: D000293:Adolescent; D019090:Case Management / Q000191:economics / Q000458:organization & administration*; D002648:Child; D002675:Child, Preschool; D002908:Chronic Disease / Q000451:nursing*; D003191:Comprehensive Health Care / Q000458:organization & administration; D000013:Congenital Abnormalities / Q000451:nursing*; D003362:Cost-Benefit Analysis; D019468:Disease Management; D005260:Female; D006801:Humans; D007223:Infant; D007231:Infant, Newborn; D008297:Male; D008329:Managed Care Programs; D008396:Maryland; D017063:Outcome Assessment, Health Care; D015397:Program Evaluation