title: How many doctors does it take to make an autism spectrum diagnosis?
abstract: Parents of children with pervasive developmental disorders (n = 494) were surveyed to determine their level of satisfaction with the process of getting an autism spectrum diagnosis. Participants in this web-based study (mean age = 37.8 years) came from five countries and reported on children with an average age of 8.3 years (range = 1.7 to 22.1). All children had a diagnosis of either autism (59.9%), Asperger syndrome (23.5%), or PDD-NOS (16.6%). Higher levels of parental education and income were associated with earlier diagnosis and greater satisfaction with the diagnostic process. Parents were more satisfied with the diagnostic process when they saw fewer professionals to get the diagnosis and when the children received the diagnoses at younger ages.
authors.affiliation: Baylor College of Medicine, Texas Children's Hospital, Houston, TX 77030, USA. kochel@bcm.tmc.edu
authors.forename: Robin P
authors.initials: RP
authors.lastname: Goin-Kochel
authors.forename: Virginia H
authors.initials: VH
authors.lastname: Mackintosh
authors.forename: Barbara J
authors.initials: BJ
authors.lastname: Myers
mesh_terms: D000293:Adolescent; D000328:Adult; D020817:Asperger Syndrome / Q000175:diagnosis; D001321:Autistic Disorder / Q000175:diagnosis* / Q000453:epidemiology; D002648:Child; D002675:Child, Preschool; D002983:Clinical Competence; D003937:Diagnosis, Differential; D005260:Female; D006801:Humans; D007223:Infant; D008297:Male; D010290:Parents / Q000523:psychology; D010549:Personal Satisfaction; D011795:Surveys and Questionnaires